Re: Re: An Open Letter to My Loved One's Doctor

[Guest guest]

I have medical POA, and the hospital had my guardianship papers on file

as well when I directed them NOT to give her any drugs without my

approval. They said they were going to give her risperdal for her

ambulance ride to a psych hospital several hours away, and I told them

they could not do that. They put me on hold, then came back to the phone

to tell me that they just did it - WHILE I WAS ON HOLD! At that point my

mother was chatty and in a fairly good mood after having a delusional

paranoid episode earlier in the day, and it was unnecessary. It doesn't

matter what is best for the patient; it matters what is easiest for the

staff.

--

His,

Sherry

daughter/guardian of , dx 4/09 with LBD, living in a nearby NH

> Unfortunately this can happen even with Healthcare POA. My father was sent to

the ED a few months ago with sharp pain in his shoulder and back along with a

low fever. The doc ended up sending him to a cardiac ICU for obervation while

they tested further based on labwork in the ED. I had the nurse put a note I had

made in the chart to say no new antipsychotics (he gets Seroquel at night)

without contacting me first, and included the list of bad meds from this site.

The next morning he was unresponsive when we arrived and stayed that way for

several hours. Upon investigation, they had given him his once a day Seroquel in

the morning instead of evening, and when he acted out at night CICU protocol

allowed nurses to give nitroglycerine, morphine and ativan if the patient was

experiencing chest pain. A nurse interpreted his REM behavior as possible chest

pain...Thankfully, he emerged from the effects the second evening and we were

able to get him discharged back to home. We are avoiding the hospital at all

costs these days, have him on Palliative Care program since he's not at the

point of Hospice yet,

[Guest guest]

I am SO sorry. He knows you loved him...and I think it is criminal that they

didn't let you enter the hospital. You're in my thoughts and prayers.

Lori

Re: An Open Letter to My Loved One's Doctor

passed away this morning probably from the drugs. I was forbidden from

entering the hospital because my outburst on monday. He died alone.

>

> Unfortunately this can happen even with Healthcare POA. My father was sent

to the ED a few months ago with sharp pain in his shoulder and back along with a

low fever. The doc ended up sending him to a cardiac ICU for obervation while

they tested further based on labwork in the ED. I had the nurse put a note I had

made in the chart to say no new antipsychotics (he gets Seroquel at night)

without contacting me first, and included the list of bad meds from this site.

The next morning he was unresponsive when we arrived and stayed that way for

several hours. Upon investigation, they had given him his once a day Seroquel in

the morning instead of evening, and when he acted out at night CICU protocol

allowed nurses to give nitroglycerine, morphine and ativan if the patient was

experiencing chest pain. A nurse interpreted his REM behavior as possible chest

pain...Thankfully, he emerged from the effects the second evening and we were

able to get him discharged back to home. We are avoiding the hospital at all

costs these days, have him on Palliative Care program since he's not at the

point of Hospice yet,

>

>

>

>

[Guest guest]

I'm so very sorry for your pain and I'm so very angry at the so called

health care professionals who refuse to spend any time to get educated about

the real issues of LBD. Something must be done to remedy this loudly. It's

way past time. They are causing so much pain and suffering with their

arrogant ignorance.

Dorothy

From: LBDcaregivers [mailto:LBDcaregivers ]

On Behalf Of railfan2001@...

Sent: Saturday, April 02, 2011 11:39 AM

To: LBDcaregivers

Subject: Re: An Open Letter to My Loved One's Doctor

passed away this morning probably from the drugs. I was forbidden from

entering the hospital because my outburst on monday. He died alone.

>

> Unfortunately this can happen even with Healthcare POA. My father was sent

to the ED a few months ago with sharp pain in his shoulder and back along

with a low fever. The doc ended up sending him to a cardiac ICU for

obervation while they tested further based on labwork in the ED. I had the

nurse put a note I had made in the chart to say no new antipsychotics (he

gets Seroquel at night) without contacting me first, and included the list

of bad meds from this site. The next morning he was unresponsive when we

arrived and stayed that way for several hours. Upon investigation, they had

given him his once a day Seroquel in the morning instead of evening, and

when he acted out at night CICU protocol allowed nurses to give

nitroglycerine, morphine and ativan if the patient was experiencing chest

pain. A nurse interpreted his REM behavior as possible chest

pain...Thankfully, he emerged from the effects the second evening and we

were able to get him discharged back to home. We ! are avoiding the hospital

at all costs these days, have him on Palliative Care program since he's not

at the point of Hospice yet,

>

>

>

>

[Guest guest]

Rick, my condolences on the passing of . I am so sorry that you were not

able to be there for when he passed. I hope in time those that decided to

shut you out come to realize the error of their ways. I am so angry on your

behalf. Sending you strength.

Courage

From: railfan2001@...

Sent: Saturday, April 02, 2011 2:38 PM

To: LBDcaregivers

Subject: Re: An Open Letter to My Loved One's Doctor

passed away this morning probably from the drugs. I was forbidden from

entering the hospital because my outburst on monday. He died alone.

>

> Unfortunately this can happen even with Healthcare POA. My father was sent to

the ED a few months ago with sharp pain in his shoulder and back along with a

low fever. The doc ended up sending him to a cardiac ICU for obervation while

they tested further based on labwork in the ED. I had the nurse put a note I had

made in the chart to say no new antipsychotics (he gets Seroquel at night)

without contacting me first, and included the list of bad meds from this site.

The next morning he was unresponsive when we arrived and stayed that way for

several hours. Upon investigation, they had given him his once a day Seroquel in

the morning instead of evening, and when he acted out at night CICU protocol

allowed nurses to give nitroglycerine, morphine and ativan if the patient was

experiencing chest pain. A nurse interpreted his REM behavior as possible chest

pain...Thankfully, he emerged from the effects the second evening and we were

able to get him discharged back to home. We are avoiding the hospital at all

costs these days, have him on Palliative Care program since he's not at the

point of Hospice yet,

>

>

>

>

[Guest guest]

I wholeheartly agree with Leona. This was so uncalled for and has to have

brought you much pain.

My thoughts are with you and I hope you find some peace.

Hugs,

Donna R

Cared for Mom 3 years in my home and the last year at a nh. She passed away

from LBD in 2002.

Re: An Open Letter to My Loved One's Doctor

This is sad news. I hope like others that they realize the error of their

ways. I am not a lawsuit-happy person but perhaps you should look into

something in this case. Its not like you did not tell them of the danger

from new medicines. In the days ahead I hope you somehow find some peace

from the fact he is no longer suffering. Our prayers and thoughts are with

you. Leona

'Love is not finding someone to live with; it's finding someone you don't

want to live without.'