Guest guest Posted January 20, 2007 Report Share Posted January 20, 2007 Hi Marge welcome to the group. I was wondering do you have other health issues besides your MS. It seems like many with MS have more trouble than their MS. I have diabetes, I had that first. Sometimes it is hard to tell which is causing me my trouble. Bill Thank you Hi Everyone: I don't know any of you yet as I'm new to the group, but I wanted to write in anyway to thank you all for sharing your experiences. I am learning a great deal about this disease from your postings and it is helping me to know that others experience and understand what I am dealing with on a daily basis. I have lost most of my vision in my left eye from several serious bouts of optic neuritis, and am now dealing with being fitted for a leg brace for weakness in my left leg. We are hoping that it will help with my balance issues, which I sometimes think is worse than dealing with the chronic pain. What amazes me most is that I can be in so much pain in one part of my body for days or weeks at a time, and then it magically disappears as quickly as appeared, only to take up residence in an other area. What a strange disease MS is. Marge Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2007 Report Share Posted January 20, 2007 Hello Marge- Welcome to the group! We are so very glad you have joined. One thing you can count one here, is we all can feel for each other, 'cause at one time or another, we've all experienced the same problems. Right now, I am experiencing the blindness in one eye and the chronic pain. The blindness, I'm finally starting to deal with. The pain....Not so easy. You are right! It's a real buggar! I just wish they'd come up with something for the pain. If you are anything like me, you've probably tried everything for it, and can't find relief. I hope you start to feeling better soon. And I hope you enjoy your stay here with the rest of us. I'm glad you're here... Blessed be...Val -- Thank you Hi Everyone: I don't know any of you yet as I'm new to the group, but I wanted to write in anyway to thank you all for sharing your experiences. I am learning a great deal about this disease from your postings and it is helping me to know that others experience and understand what I am dealing with on a daily basis. I have lost most of my vision in my left eye from several serious bouts of optic neuritis, and am now dealing with being fitted for a leg brace for weakness in my left leg. We are hoping that it will help with my balance issues, which I sometimes think is worse than dealing with the chronic pain. What amazes me most is that I can be in so much pain in one part of my body for days or weeks at a time, and then it magically disappears as quickly as appeared, only to take up residence in an other area. What a strange disease MS is. Marge Font Times New Roman Art by Engelbreit May, 2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2007 Report Share Posted January 20, 2007 Hi Marge:It's good to have you here and I look forward to getting to know you!I know just what you mean. I have had severe back pain and weakness for several years. I just assumed it was from a bad wreck I had in 2002 where I broke all my right posterior ribs and my neck. Suddenly that pain just suddenly disappeared! No more weakness or pain. What a miracle! Then the severe nocturnal leg pain started and that made me wish for the back pain instead. I need to remember that my mother always said "be careful what you wish for--it just might come true." Now I have bouts of the back pain/weakness WITH the leg pain. ROFL But, thankfully, the back pain comes and goes just as suddenly as it appeared. Weird. On Thursday I was remarking to myself that I felt wonderful! I had gone shopping the day before (usually wipes me out) but I felt great. I washed dishes, did laundry, cooked and then suddenly my back weakness hit and I couldn't stand up without hanging on the counter. It is a strange disease indeed. Sharon If the government is big enough to give you everything you want, it is big enough to take away everything you have. - Gerald Ford Thank you Hi Everyone: I don't know any of you yet as I'm new to the group, but I wanted to write in anyway to thank you all for sharing your experiences. I am learning a great deal about this disease from your postings and it is helping me to know that others experience and understand what I am dealing with on a daily basis. I have lost most of my vision in my left eye from several serious bouts of optic neuritis, and am now dealing with being fitted for a leg brace for weakness in my left leg. We are hoping that it will help with my balance issues, which I sometimes think is worse than dealing with the chronic pain. What amazes me most is that I can be in so much pain in one part of my body for days or weeks at a time, and then it magically disappears as quickly as appeared, only to take up residence in an other area. What a strange disease MS is. Marge Sucker-punch spam with award-winning protection. Try the free Yahoo! Mail Beta. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2007 Report Share Posted January 20, 2007 Hi Sharon~ ya know, I always wondered what you meant, or others meant when they spoke of 'spacicity'...Jeepers, now I know. Slowly but surely beginning early this week I started having trouble walking--alot of trouble. The neuro had a cancellation yesterday. He evaluated me and said I was having real bad spasicity--so NOW i know what it is! It is horrible! he put me on Flexoril HCL 3x/day. It helped a bit, but not that much. The pain in my lower back is horrific--do you know if that is because of walking stiffly from the spasicity? Gee...I sure wish the pain would quit. What do you use for the back pain? Today I'm bringing 2 kids and neighbors to the mall---I'm getting pressured terribly. I know I should stay home...Everyone hates my MS. So..back to the appt.-neuro wants me to get off copaxone and start Tysabri. I suggested copaxone with LDN. He was unfamiliar; he knows of it, but doesn't know the success rate, whether or not I'm a good candidate for it, etc. So he has me going to a local MS specialist to discuss these 2 options. Unfortunately, he can't see me til March...If ANYone on the group has an opinion on this , I would LOVE the input--sincerely. Love to all on this wonderful group--Marge, you are a doll! kate Thank you> > Hi Everyone:> I don't know any of you yet as I'm new to the group, but I > wanted to write in anyway to thank you all for sharing your > experiences. I am learning a great deal about this disease from > your postings and it is helping me to know that others > experience and understand what I am dealing with on a daily basis.> I have lost most of my vision in my left eye from several > serious bouts of optic neuritis, and am now dealing with being > fitted for a leg brace for weakness in my left leg. We are > hoping that it will help with my balance issues, which I > sometimes think is worse than dealing with the chronic pain. > What amazes me most is that I can be in so much pain in one > part of my body for days or weeks at a time, and then it > magically disappears as quickly as appeared, only to take up > residence in an other area. > What a strange disease MS is.> Marge> > > > > > > > > > ____________________________________________________________________________________> We won't tell. Get more on shows you hate to love > (and love to hate): Yahoo! TV's Guilty Pleasures list.> http://tv.yahoo.com/collections/265 > Recharge Your Chi! Believe and Achieve! Dreams are Worth Striving For! 10 lbs down, 40 to go! Ask me~I'm on Fire! ians 4:13 I can do all things through Crhist who gives me strength. Attachment: vcard [not shown] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2007 Report Share Posted January 20, 2007 Hi Kate:I know I didn't understand what spasticity was until I had it either, so don't feel bad. I guess it's something you have to experience and not just read about. I take Baclofen for the spasticity but I also take clonazepam. Your back pain could be from either the way you are walking, from the spasticity or from both. You can get spasticity in your back just as you can your legs. You asked what I use for the back pain. When it's spasticity related I take and extra half of a clonazepam. If it's nerve related I will up my neurontin. If it's from the healed broken neck and rib bones I just take Tylenol and get one of my grandkids to massage my back. They are really good about that. I used to take hydrocodone but I stopped it on August 15 in preparation for starting LDN. I thought I would have a hard time doing without it but it truly didn't make a difference in my pain. I found that out after I stopped it. :)I have read that Tysabri should only be used when nothing else has worked. And my neuro told me the same thing about it. My thoughts on Tysabri? I would be very leery of it myself. But that's just the way I feel personally. When I wrote to the researcher who just got the grant from the National MS Society to start LDN research-- to ask about LDN he told me there is no research to support the use of it in MS. He said his advice would be to try it for 2 months. If it didn't work in that time he advised getting off of it and getting on an approved therapy. I thought that was prudent advice and I decided to try it for myself no matter what my neuro said. I am fortunate to have a back-up source for medications (a PA who has his own practice and is into alternatives). If you are considering trying LDN then you should get some information for your doctor and perhaps he'll change his mind. Let me know if that's what you want and I'll send you a few things that might help.Everyone hates your MS? I'm sure they do but for your own good you need to say NO when you aren't up to being active. Do you have a wheelchair for the mall? If I walk very much it increases the spasticity for me and the pain. Take care of YOU!love..Sharon If the government is big enough to give you everything you want, it is big enough to take away everything you have. - Gerald Ford Thank you> > Hi Everyone:> I don't know any of you yet as I'm new to the group, but I > wanted to write in anyway to thank you all for sharing your > experiences. I am learning a great deal about this disease from > your postings and it is helping me to know that others > experience and understand what I am dealing with on a daily basis.> I have lost most of my vision in my left eye from several > serious bouts of optic neuritis, and am now dealing with being > fitted for a leg brace for weakness in my left leg. We are > hoping that it will help with my balance issues, which I > sometimes think is worse than dealing with the chronic pain. > What amazes me most is that I can be in so much pain in one > part of my body for days or weeks at a time, and then it > magically disappears as quickly as appeared, only to take up > residence in an other area. > What a strange disease MS is.> Marge> > > > > > > > > > ____________ _________ _________ _________ _________ _________ _________ _________ _________> We won't tell. Get more on shows you hate to love > (and love to hate): Yahoo! TV's Guilty Pleasures list.> http://tv.yahoo. com/collections/ 265 > Recharge Your Chi! Believe and Achieve! Dreams are Worth Striving For! 10 lbs down, 40 to go! Ask me~I'm on Fire! ians 4:13 I can do all things through Crhist who gives me strength. begin:vcardn:Rothschild;katefn:Kate Rothschildtel;cell:tel;home:914 762-8734tel;work:914 332-1943url:http://www.phil413.isagenix.com/org:http://www.allinonebusiness.net;Recharge Your Chiurl:http://www.phil413.isagenix.com/adr:;;6 Spaulding Place;Ossining;NY;10562;USAemail;home;internet:katelloydkidz@...title:Associate and moving UP!version:2.1end:vcard Get your own web address. Have a HUGE year through Yahoo! Small Business. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2007 Report Share Posted January 20, 2007 I am so very grateful to you Sharon for your response. Yes, my neuro had felt my two real options were either Avonex or Copaxone from the start. I went with Copaxone as my sister is on the Avonex, so I'm familiar with the flu-like stuff--but for me, it was more than that--it was the depression-aspect. I have had a couple of suicide attempts within the last 2 years or so, and a history of depression. Despite the fact that I'm currently being treated for this, I don't wish additional depression! My neuro agrees with my stand on this.I am not certain why he isn't considering Rebif or Betaseron, I'm unclear on that, but will address this question with the MS specialist I'm supposed to see in March. I'm kinda leary of both tysabri and LDN. Yes, I'd be very interested in any links or info on either/both of these treatments. Starting in Aug.of 05 with my microvascular decompression(brain surgery) for my TN-which was helpful only for 2 months,my subsequent gamma knife this past Nov.;I still suffer with the trigeminal neuralgia.I've had 3 major flares since July of 06. I've been on solumedrol for 2 of those;but really can't afford to go on it anymore as I already have osteoporosis and a T 11 & 12 compression fx. Gee, I do wonder how you are able to figure out your source of pain-I'm pretty impressed that you are able to do that. All I know is I hurt real bad-the pain wakes me up many times a night.It is in my neck and lumbar. well, i so do appreciate all your help and input...and I really thank God you started this group, Sharon, I don't know what I'd do without you all! blessings, hugs and love,kate Thank you> > > > Hi Everyone:> > I don't know any of you yet as I'm new to the group, but I > > wanted to write in anyway to thank you all for sharing your > > experiences. I am learning a great deal about this disease > from > > your postings and it is helping me to know that others > > experience and understand what I am dealing with on a daily basis.> > I have lost most of my vision in my left eye from several > > serious bouts of optic neuritis, and am now dealing with being > > fitted for a leg brace for weakness in my left leg. We are > > hoping that it will help with my balance issues, which I > > sometimes think is worse than dealing with the chronic pain. > > What amazes me most is that I can be in so much pain in one > > part of my body for days or weeks at a time, and then it > > magically disappears as quickly as appeared, only to take up > > residence in an other area. > > What a strange disease MS is.> > Marge> > > > > > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ _________ > _________ _________ _________> > We won't tell. Get more on shows you hate to love > > (and love to hate): Yahoo! TV's Guilty Pleasures list.> > http://tv.yahoo. com/collections/ 265 > > > > > Recharge Your Chi! Believe and Achieve! Dreams are Worth > Striving For! > 10 lbs down, 40 to go! Ask me~I'm on Fire! > ians 4:13 I can do all things through Crhist who gives > me strength. > begin:vcard> n:Rothschild;kate> fn:Kate Rothschild> tel;cell:> tel;home:914 762-8734> tel;work:914 332-1943> url:http://www.phil413.isagenix.com/> org:http://www.allinonebusiness.net;Recharge Your Chi> url:http://www.phil413.isagenix.com/> adr:;;6 Spaulding Place;Ossining;NY;10562;USA> email;home;internet:katelloydkidz@...> title:Associate and moving UP!> version:2.1> end:vcard> > > > > > > > > ____________________________________________________________________________________> It's here! Your new message! > Get new email alerts with the free Yahoo! Toolbar.> http://tools.search.yahoo.com/toolbar/features/mail/> Recharge Your Chi! Believe and Achieve! Dreams are Worth Striving For! 10 lbs down, 40 to go! Ask me~I'm on Fire! ians 4:13 I can do all things through Crhist who gives me strength. Attachment: vcard [not shown] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2007 Report Share Posted January 20, 2007 I have had depression issues. Rebif made me suicidal, maybe that's way he isn't considering it? Akiba (now on LDN only) --- katelloydkidz@... wrote: > I am so very grateful to you Sharon for your > response. Yes, my neuro had felt my two real options > were either Avonex or Copaxone from the start. I > went with Copaxone as my sister is on the Avonex, so > I'm familiar with the flu-like stuff--but for me, it > was more than that--it was the depression-aspect. I > have had a couple of suicide attempts within the > last 2 years or so, and a history of depression. > Despite the fact that I'm currently being treated > for this, I don't wish additional depression! My > neuro agrees with my stand on this.I am not certain > why he isn't considering Rebif or Betaseron, I'm > unclear on that, but will address this question with > the MS specialist I'm supposed to see in March. I'm > kinda leary of both tysabri and LDN. Yes, I'd be > very interested in any links or info on either/both > of these treatments. > Starting in Aug.of 05 with my microvascular > decompression(brain surgery) for my TN-which was > helpful only for 2 months,my subsequent gamma knife > this past Nov.;I still suffer with the trigeminal > neuralgia.I've had 3 major flares since July of 06. > I've been on solumedrol for 2 of those;but really > can't afford to go on it anymore as I already have > osteoporosis and a T 11 & 12 compression fx. > Gee, I do wonder how you are able to figure out > your source of pain-I'm pretty impressed that you > are able to do that. All I know is I hurt real > bad-the pain wakes me up many times a night.It is in > my neck and lumbar. well, i so do appreciate all > your help and input...and I really thank God you > started this group, Sharon, I don't know what I'd do > without you all! blessings, hugs and love,kate > > Re: Thank you > > To: MSersLife@yahoogrou ps.com > > > > > Hi Marge: > > > > > > It's good to have you here and I look forward to > getting to > > know you! > > > > > > I know just what you mean. I have had severe > back pain and > > > weakness for several years. I just assumed it > was from a bad > > > wreck I had in 2002 where I broke all my right > posterior ribs > > > and my neck. Suddenly that pain just suddenly > disappeared! No > > > more weakness or pain. What a miracle! Then the > severe > > > nocturnal leg pain started and that made me wish > for the back > > > pain instead. I need to remember that my > mother always > > > said " be careful what you wish for--it just > might come true. " > === message truncated ===> begin:vcard > n:Rothschild;kate > fn:Kate Rothschild > tel;cell: > tel;home:914 762-8734 > tel;work:914 332-1943 > url:http://www.phil413.isagenix.com/ > org:http://www.allinonebusiness.net;Recharge Your > Chi > url:http://www.phil413.isagenix.com/ > adr:;;6 Spaulding Place;Ossining;NY;10562;USA > email;home;internet:katelloydkidz@... > title:Associate and moving UP! > version:2.1 > end:vcard > Peace and Blessings ~*~ Akiba ~*~ Pragmatic Visionary & Eternal Optimist! http://yodamamma.blogspot.com/ http://www.solay-twinflames.com ________________________________________________________________________________\ ____ Don't pick lemons. See all the new 2007 cars at Yahoo! Autos. http://autos.yahoo.com/new_cars.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2007 Report Share Posted January 21, 2007 Hi Kate with myself having to use a walker to get around I rarely go any place other than sometimes making a trip to the store. This MS group is a great way for me to be able to still socialize with people and sometimes blow off steam and pass on good things going on. If you feel down let the group know. Bill Thank you> > > > Hi Everyone:> > I don't know any of you yet as I'm new to the group, but I > > wanted to write in anyway to thank you all for sharing your > > experiences. I am learning a great deal about this disease > from > > your postings and it is helping me to know that others > > experience and understand what I am dealing with on a daily basis.> > I have lost most of my vision in my left eye from several > > serious bouts of optic neuritis, and am now dealing with being > > fitted for a leg brace for weakness in my left leg. We are > > hoping that it will help with my balance issues, which I > > sometimes think is worse than dealing with the chronic pain. > > What amazes me most is that I can be in so much pain in one > > part of my body for days or weeks at a time, and then it > > magically disappears as quickly as appeared, only to take up > > residence in an other area. > > What a strange disease MS is.> > Marge> > > > > > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ _________ > _________ _________ _________> > We won't tell. Get more on shows you hate to love > > (and love to hate): Yahoo! TV's Guilty Pleasures list.> > http://tv.yahoo. com/collections/ 265 > > > > > Recharge Your Chi! Believe and Achieve! Dreams are Worth > Striving For! > 10 lbs down, 40 to go! Ask me~I'm on Fire! > ians 4:13 I can do all things through Crhist who gives > me strength. > begin:vcard> n:Rothschild;kate> fn:Kate Rothschild> tel;cell:> tel;home:914 762-8734> tel;work:914 332-1943> url:http://www.phil413.isagenix.com/> org:http://www.allinonebusiness.net;Recharge Your Chi> url:http://www.phil413.isagenix.com/> adr:;;6 Spaulding Place;Ossining;NY;10562;USA> email;home;internet:katelloydkidzoptonline (DOT) net> title:Associate and moving UP!> version:2.1> end:vcard> > > > > > > > > ____________________________________________________________________________________> It's here! Your new message! > Get new email alerts with the free Yahoo! Toolbar.> http://tools.search.yahoo.com/toolbar/features/mail/> Recharge Your Chi! Believe and Achieve! Dreams are Worth Striving For! 10 lbs down, 40 to go! Ask me~I'm on Fire! ians 4:13 I can do all things through Crhist who gives me strength. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2007 Report Share Posted January 21, 2007 Bill I think I sort of recognize you from a group from years and years ago called ms christians.....There was a lady there that posted quite often who was in pain a lot....lived alone, needed major assistance from home health care, and had the son who was kinda uncaring and the baby granddaughter she loved so much.........I often wondered what became of her? HEAVEN I HOPE? Thank you> > > > Hi Everyone:> > I don't know any of you yet as I'm new to the group, but I > > wanted to write in anyway to thank you all for sharing your > > experiences. I am learning a great deal about this disease > from > > your postings and it is helping me to know that others > > experience and understand what I am dealing with on a daily basis.> > I have lost most of my vision in my left eye from several > > serious bouts of optic neuritis, and am now dealing with being > > fitted for a leg brace for weakness in my left leg. We are > > hoping that it will help with my balance issues, which I > > sometimes think is worse than dealing with the chronic pain. > > What amazes me most is that I can be in so much pain in one > > part of my body for days or weeks at a time, and then it > > magically disappears as quickly as appeared, only to take up > > residence in an other area. > > What a strange disease MS is.> > Marge> > > > > > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ _________ > _________ _________ _________> > We won't tell. Get more on shows you hate to love > > (and love to hate): Yahoo! TV's Guilty Pleasures list.> > http://tv.yahoo. com/collections/ 265 > > > > > Recharge Your Chi! Believe and Achieve! Dreams are Worth > Striving For! > 10 lbs down, 40 to go! Ask me~I'm on Fire! > ians 4:13 I can do all things through Crhist who gives > me strength. > begin:vcard> n:Rothschild; kate> fn:Kate Rothschild> tel;cell:914. 618.0061> tel;home:914 762-8734> tel;work:914 332-1943> url:http://www. phil413.isagenix .com/> org:http://www. allinonebusiness .net;Recharge Your Chi> url:http://www. phil413.isagenix .com/> adr:;;6 Spaulding Place;Ossining; NY;10562; USA> email;home;internet :katelloydkidz@ optonline. net> title:Associate and moving UP!> version:2.1> end:vcard> > > > > > > > > ____________ _________ _________ _________ _________ _________ _________ _________ _________> It's here! Your new message! > Get new email alerts with the free Yahoo! Toolbar.> http://tools. search.yahoo. com/toolbar/ features/ mail/> Recharge Your Chi! Believe and Achieve! Dreams are Worth Striving For! 10 lbs down, 40 to go! Ask me~I'm on Fire! ians 4:13 I can do all things through Crhist who gives me strength. The fish are biting. Get more visitors on your site using Yahoo! Search Marketing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2007 Report Share Posted January 22, 2007 ~the mschristians group is still there--someone on the group might know who you are referring to...Bill-you are a sweetie. I am real down as a matter of fact. Lately I feel like I'm just being a downer, and I really don't mean to be. It's just that my kids and my spouse are really NOT supportive. It's not that they are unkind, per se, its like they just don't know HOW to be. It's like-I'm the Mom, I'm the nurturing, caring one. How dare I be sick? or be fatigued or have trouble walking? As I mentioned to Margaret (Marge) the other day--something WE all have to contend with--what does the future hold? No one knows--I guess in life in general, no one knows. But with MS...gee..its just that it is so unpredicatable. I go back and forth about the idea of disability. Do I apply? Don't I apply? Does it mean I'm "giving in" to my MS if I do apply? My younger sister has MS; she is on Avonex. She works F/T in a pretty high pressure job; is single, no kids--and to me--seems to do it all. She bicycles, she hikes--I think she walks an average of 3 or so miles a day. Yes, I'm a bit jealous. And yes, I know I can't compare myself to my sister or anyone else with MS. It just isn't right. Her MS does affect her-with fatigue mainly. If it does in other ways-she chooses not to share with me--that's how she is-private. Very few folk know she even has MS. ME? I don't feel shy about it-I share it. I'm struggling to keep the house clean;yes my husband helps...I don't know, I'm just babbling at this point...It's like this Bill, my husband is ALWAYS on my case about--exercising more, eating less, taking supplements...granted the man has lost 50 lbs in the last yr and a half by cutting carbs out of his diet--but he smokes pot and drinks beer--while he drives the car! ok...now i'm having my pity party again...on one hand-i need him for what he does around the house, and his paycheck...I feel guilty as sin saying this--but i really don't need him for anything else...The kids don't interract with him as he is continuously critical, judgemental, and just has this knack for making most of us feel like crap.... On the bright side--i have the opportunity now that my MS is kinda moving on, to reevaluate with a specialist about Tysabri, LDN or Novantrone...So, hopefully one of those drugs will pull me back out of progressing. Love to the group, kate Thank you> > > > > > Hi Everyone:> > > I don't know any of you yet as I'm new to the group, but I > > > wanted to write in anyway to thank you all for sharing your > > > experiences. I am learning a great deal about this disease > > from > > > your postings and it is helping me to know that others > > > experience and understand what I am dealing with on a daily basis.> > > I have lost most of my vision in my left eye from several > > > serious bouts of optic neuritis, and am now dealing with > being > > > fitted for a leg brace for weakness in my left leg. We are > > > hoping that it will help with my balance issues, which I > > > sometimes think is worse than dealing with the chronic pain. > > > What amazes me most is that I can be in so much pain in one > > > part of my body for days or weeks at a time, and then it > > > magically disappears as quickly as appeared, only to take up > > > residence in an other area. > > > What a strange disease MS is.> > > Marge> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ > _________ > > _________ _________ _________> > > We won't tell. Get more on shows you hate to love > > > (and love to hate): Yahoo! TV's Guilty Pleasures list.> > > http://tv.yahoo. com/collections/ 265 > > > > > > > > > Recharge Your Chi! Believe and Achieve! Dreams are Worth > > Striving For! > > 10 lbs down, 40 to go! Ask me~I'm on Fire! > > ians 4:13 I can do all things through Crhist who gives > > me strength. > > begin:vcard> > n:Rothschild; kate> > fn:Kate Rothschild> > tel;cell:914. 618.0061> > tel;home:914 762-8734> > tel;work:914 332-1943> > url:http://www. phil413.isagenix .com/> > org:http://www. allinonebusiness .net;Recharge Your Chi> > url:http://www. phil413.isagenix .com/> > adr:;;6 Spaulding Place;Ossining; NY;10562; USA> > email;home;internet :katelloydkidz@ optonline. net> > title:Associate and moving UP!> > version:2.1> > end:vcard> > > > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ _________ > _________ _________ _________> > It's here! Your new message! > > Get new email alerts with the free Yahoo! Toolbar.> > http://tools. search.yahoo. com/toolbar/ features/ mail/> > > > > Recharge Your Chi! Believe and Achieve! Dreams are Worth > Striving For! > 10 lbs down, 40 to go! Ask me~I'm on Fire! > ians 4:13 I can do all things through Crhist who gives > me strength.> > > > > > > ____________________________________________________________________________________> No need to miss a message. Get email on-the-go > with Yahoo! Mail for Mobile. Get started.> http://mobile.yahoo.com/mail > Recharge Your Chi! Believe and Achieve! Dreams are Worth Striving For! 10 lbs down, 40 to go! Ask me~I'm on Fire! ians 4:13 I can do all things through Crhist who gives me strength. Attachment: vcard [not shown] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2007 Report Share Posted January 22, 2007 Hi Sherri use to be the group owner and she got tired of it for some reason and asked me if I would take it over. She told me it would have been shut down with out help. http://health.groups.yahoo.com/group/MS-Christians/ I don't do well letting people know about the group. Bill Listen Thank you> > > > Hi Everyone:> > I don't know any of you yet as I'm new to the group, but I > > wanted to write in anyway to thank you all for sharing your > > experiences. I am learning a great deal about this disease > from > > your postings and it is helping me to know that others > > experience and understand what I am dealing with on a daily basis.> > I have lost most of my vision in my left eye from several > > serious bouts of optic neuritis, and am now dealing with being > > fitted for a leg brace for weakness in my left leg. We are > > hoping that it will help with my balance issues, which I > > sometimes think is worse than dealing with the chronic pain. > > What amazes me most is that I can be in so much pain in one > > part of my body for days or weeks at a time, and then it > > magically disappears as quickly as appeared, only to take up > > residence in an other area. > > What a strange disease MS is.> > Marge> > > > > > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ _________ > _________ _________ _________> > We won't tell. Get more on shows you hate to love > > (and love to hate): Yahoo! TV's Guilty Pleasures list.> > http://tv.yahoo. com/collections/ 265 > > > > > Recharge Your Chi! Believe and Achieve! Dreams are Worth > Striving For! > 10 lbs down, 40 to go! Ask me~I'm on Fire! > ians 4:13 I can do all things through Crhist who gives > me strength. > begin:vcard> n:Rothschild; kate> fn:Kate Rothschild> tel;cell:914. 618.0061> tel;home:914 762-8734> tel;work:914 332-1943> url:http://www. phil413.isagenix .com/> org:http://www. allinonebusiness .net;Recharge Your Chi> url:http://www. phil413.isagenix .com/> adr:;;6 Spaulding Place;Ossining; NY;10562; USA> email;home;internet :katelloydkidz@ optonline. net> title:Associate and moving UP!> version:2.1> end:vcard> > > > > > > > > ____________ _________ _________ _________ _________ _________ _________ _________ _________> It's here! Your new message! > Get new email alerts with the free Yahoo! Toolbar.> http://tools. search.yahoo. com/toolbar/ features/ mail/> Recharge Your Chi! Believe and Achieve! Dreams are Worth Striving For! 10 lbs down, 40 to go! Ask me~I'm on Fire! ians 4:13 I can do all things through Crhist who gives me strength. The fish are biting.Get more visitors on your site using Yahoo! Search Marketing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2007 Report Share Posted January 22, 2007 I recently went to a local MS support group and a rep for Tysabri was there. I was really looking forward to learn more about it. He told me since I do well on Copaxone that I am best to just stay with it. I agreed I would like to see them have more results from Tysabri since a few died from it. It also sounded if you are on certain meds that Tysabri is not good for you to take at all. Do you have a local MS support group in your area? I think sometimes being around other's with your own MS trouble can be good relief because they know what you are feeling all the time. I would be a bonus if your family members could go to one meeting to meet others with MS. They should find out you are not crazy. My wife and I are great together and we give each other great support. Judy and I met and got married when we were in our mid 20's and I know that helped us a great. We both had our careers and what we wanted to do in life. Both of our jobs have been good to us. This MS treats everyone different I consider my MS curse to be the heat, short term memory really bad, Bladder trouble and have no balance at all and use a walker all the time. I have never had any fatigue trouble. I know if I did have fatigue trouble I would probably be depressed also. Do you have grand kids? If so do they do well with your MS? I have both a 9 year old and 16 year old sons and my 9 year old helps a lot more than my 16 year old. He see's I need something and he just jumps in to help out. My using a walker is handy sometimes because people are always ready to prepare a food plate for me at a family get together. I always hope Judy get to the food be fore my mother does because it is hard telling what I will get from her. I feel for your situation I am very lucky no one in my family of Judy's family have ever given me a hard time for my MS or my diabetes. I am a big fan of You Tube and I put this on YouTube today every Christmas Eve we have the Christmas party at Judy's mothers home with all of her family. She has 4 sisters so it is abusy fun evening. If you have a slow modem you can still download the video. We were all singing Jingle Bells. This is all of Judy's family except for her father and he is in a nursing home with Alzheimers. Bill Jingle Bells01:11 Family Christmas sing along. December 24 2004. The whole family Tags: christmas singing familyAdded: 13 hours ago in Category: MusicViews: 6 Thank you> > > > > > Hi Everyone:> > > I don't know any of you yet as I'm new to the group, but I > > > wanted to write in anyway to thank you all for sharing your > > > experiences. I am learning a great deal about this disease > > from > > > your postings and it is helping me to know that others > > > experience and understand what I am dealing with on a daily basis.> > > I have lost most of my vision in my left eye from several > > > serious bouts of optic neuritis, and am now dealing with > being > > > fitted for a leg brace for weakness in my left leg. We are > > > hoping that it will help with my balance issues, which I > > > sometimes think is worse than dealing with the chronic pain. > > > What amazes me most is that I can be in so much pain in one > > > part of my body for days or weeks at a time, and then it > > > magically disappears as quickly as appeared, only to take up > > > residence in an other area. > > > What a strange disease MS is.> > > Marge> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ > _________ > > _________ _________ _________> > > We won't tell. Get more on shows you hate to love > > > (and love to hate): Yahoo! TV's Guilty Pleasures list.> > > http://tv.yahoo. com/collections/ 265 > > > > > > > > > Recharge Your Chi! Believe and Achieve! Dreams are Worth > > Striving For! > > 10 lbs down, 40 to go! Ask me~I'm on Fire! > > ians 4:13 I can do all things through Crhist who gives > > me strength. > > begin:vcard> > n:Rothschild; kate> > fn:Kate Rothschild> > tel;cell:914. 618.0061> > tel;home:914 762-8734> > tel;work:914 332-1943> > url:http://www. phil413.isagenix .com/> > org:http://www. allinonebusiness .net;Recharge Your Chi> > url:http://www. phil413.isagenix .com/> > adr:;;6 Spaulding Place;Ossining; NY;10562; USA> > email;home;internet :katelloydkidz@ optonline. net> > title:Associate and moving UP!> > version:2.1> > end:vcard> > > > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ _________ > _________ _________ _________> > It's here! Your new message! > > Get new email alerts with the free Yahoo! Toolbar.> > http://tools. search.yahoo. com/toolbar/ features/ mail/> > > > > Recharge Your Chi! Believe and Achieve! Dreams are Worth > Striving For! > 10 lbs down, 40 to go! Ask me~I'm on Fire! > ians 4:13 I can do all things through Crhist who gives > me strength.> > > > > > > ____________________________________________________________________________________> No need to miss a message. Get email on-the-go > with Yahoo! Mail for Mobile. Get started.> http://mobile.yahoo.com/mail > Recharge Your Chi! Believe and Achieve! Dreams are Worth Striving For! 10 lbs down, 40 to go! Ask me~I'm on Fire! ians 4:13 I can do all things through Crhist who gives me strength. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2007 Report Share Posted January 23, 2007 Re: Thank youTo: MSersLife > I recently went to a local MS support group and a rep for > Tysabri was there. I was really looking forward to learn more > about it. He told me since I do well on Copaxone that I am best > to just stay with it. I agreed I would like to see them have > more results from Tysabri since a few died from it. It also > sounded if you are on certain meds that Tysabri is not good for > you to take at all. > Do you have a local MS support group in your area? I think > sometimes being around other's with your own MS trouble can be > good relief because they know what you are feeling all the time. > I would be a bonus if your family members could go to one > meeting to meet others with MS. They should find out you are not > crazy.My wife and I are great together and we give each other > great support. Judy and I met and got married when we were in > our mid 20's and I know that helped us a great. We both had our > careers and what we wanted to do in life. Both of our jobs have > been good to us. > This MS treats everyone different I consider my MS curse to be > the heat, short term memory really bad, Bladder trouble and have > no balance at all and use a walker all the time. I have never > had any fatigue trouble. I know if I did have fatigue trouble I > would probably be depressed also. > Do you have grand kids? If so do they do well with your MS? I > have both a 9 year old and 16 year old sons and my 9 year old > helps a lot more than my 16 year old. He see's I need something > and he just jumps in to help out. My using a walker is handy > sometimes because people are always ready to prepare a food > plate for me at a family get together. I always hope Judy get to > the food be fore my mother does because it is hard telling what > I will get from her. > I feel for your situation I am very lucky no one in my family of > Judy's family have ever given me a hard time for my MS or my diabetes.> I am a big fan of You Tube and I put this on YouTube today every > Christmas Eve we have the Christmas party at Judy's mothers home > with all of her family. She has 4 sisters so it is abusy fun > evening. If you have a slow modem you can still download the video.> We were all singing Jingle Bells. This is all of Judy's family > except for her father and he is in a nursing home with Alzheimers.> Bill> > Hey Bill~ I like the way you write--you put it plainly and truthfully--there is nothing phony about you. I find reading your notes refreshing and interesting. My kids are: 7,9, almost 13, 15, and one off in college-18. No grandkids. I just found out about a fairly local MS support group on Tues. eves. I'm going to see if I can make it. So-thanks for that suggestion-it's a great idea. You and your wife sound like a match made in heaven. I pray that God would just rain down peace, love and unity in our marriage and with our kids...It's just very pathological here. I am trying to encourage everyone to get into family therapy-but everyone is pretty much in denial-except me-i like the truth-grew up in a strict, Irish Catholic home where anything 'negative' bad or depressing was just not discusses--just swept under the carpet, you know? My balance isn't so good lately;hard to explain, but my back buckles back and forth ,and makes it hard to stand. So pain in my back, numb and weak leg and foot, fatigue,yeah, heat sensitive too, like you and most of us, memory-yup, shot--my neuro has suggested 2x i go on aricept-my dad's on that for his Alzheimers-don't want to go that route! Depression, bladder accidents, from time to time, double vision,trouble concentrating, diff. bunch of things...but hey, that's what we all have to deal with...troubling symptoms that have a way of interfering with life...But I want to fight it all. you know? If i dwell on all this stuff, and family junk--i'd just go off the deep end. Hey thanks for sending this along! What fun! You sure are an amazing bunch, and I'm so blessed to know you Bill. Thinking a walker or scooter might be in my future..Only God knows. He is in control. And I thank Him each day for that! blessings and hugs,kate> > Jingle Bells> 01:11 > Family Christmas sing along. December 24 2004. The whole family > Tags:> christmas singing family> Added: 13 hours ago in Category: Music> Views: 6 > > Recharge Your Chi! Believe and Achieve! Dreams are Worth Striving For! 10 lbs down, 40 to go! Ask me~I'm on Fire! ians 4:13 I can do all things through Crhist who gives me strength. Attachment: vcard [not shown] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2011 Report Share Posted April 19, 2011 - I'm sorry I can't help wth your questions regarding the UK, but I can share something of our experience moving our mom. She was living halfway across the US from us and was showing marked decline. We knew moving her closer was the only viable option. I'll be honest and say the move was very hard on her, but leaving her to continue living alone would have been worse. As soon as we could after the move, we established consistent care and a regular schedule, which she thrives on. We also started her on Seroquel, which helps with the hallucinations, anxiety and agitation. The addition of Namenda and later, Aricept, have helped with cognition. As you may have read in the files - when adding medications - add only one new med at a time and start with the lowest dose. Those with LBD can be very sensitive to meds. Wishing you the best as you make difficult decisions. Call on us here in this group any time for support, answers, and experience sharing. Warmly, Katy (the other spelling!); daughter to Jill, age 71 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2011 Report Share Posted April 25, 2011 Hello, I am a new user and greatly appreciate all the wonderful files, articles, medication cards, information for caregivers, doctors, and so on that you have available for us. My daughters and I rotate in taking care of my 91 year old mom so she can still live in her own home " independently. " We are learning so much from reading others' stories and messages you have posted. Thank you all for sharing. Mom is advanced in her 9th year with LBD with Parkinson's symptoms; is in amazingly good physical health, but does have a pacemaker.We have a tablet where we write down all that happened during the day, snacks she is to eat, and what she is to do when we aren't there. The tablet helps her as she reads it again and again as she basically doesn't have a memory. It also helps each one of us know what the other has said or done.. She lives in the country and her 88 year old brother lives across the road from her and they are very close. Our situation is far from ideal but it's as happy as we can make her. Thank you for this web site and all your input! Maribeth Monday Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2011 Report Share Posted April 26, 2011 You're welcome. I'm glad you've found this site useful. > > Hello, > I am a new user and greatly appreciate all the wonderful files, articles, > medication cards, information for caregivers, doctors, and so on that you have > available for us. My daughters and I rotate in taking care of my 91 year old mom > so she can still live in her own home " independently. " We are learning so much > from reading others' stories and messages you have posted. Thank you all for > sharing. Mom is advanced in her 9th year with LBD with Parkinson's symptoms; is > in amazingly good physical health, but does have a pacemaker.We have a tablet > where we write down all that happened during the day, snacks she is to eat, and > what she is to do when we aren't there. The tablet helps her as she reads it > again and again as she basically doesn't have a memory. It also helps each one > of us know what the other has said or done.. She lives in the country and her 88 > year old brother lives across the road from her and they are very close. Our > situation is far from ideal but it's as happy as we can make her. Thank you for > this web site and all your input! > Maribeth Monday > > > Quote Link to comment Share on other sites More sharing options...
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