Guest guest Posted November 29, 2000 Report Share Posted November 29, 2000 - I am glad you found this list. The woman are caring and supportive. We know how you feel. Let us know what you have tried (as far as medication, biofeedback, etc.). I hope its comforting to know that you are not alone. Hoping someday we will be pain free - Nery Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2000 Report Share Posted November 29, 2000 Hi , glad you found us. At least now you know you are not alone. I just wanted to let you know that most women do NOT benefit from surgery. Some get worse after it even. You need to find a doctor who know what vestibulitis is or better yet find a vulvar care specialist. vulvodyniasupport.com has a listing of specialist doctors by state. Is your pain during sex only? If you give us a description of your symptoms maybe someone here is like you and knows a way to help the pain. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2007 Report Share Posted February 13, 2007 I'm so glad to have Challis back, reading and writing on the group. Now I don't have to answer all the "where is Challis?" questions. lolFor those who don't know, Challis is my assistant moderator on the group. hugs))))Sharon Hi! Wow, I'm away for a bit over a month, come back to something over 1600 MSersLife posts, more new listers than I can count, and more going on in everyone's lives than I could have imagined! LOL It's almost like a miniseries, but different. LOL I'm feeling a little guilty for not keeping up with, and not being able to, welcome each of our new listers individually. <gg> Hi to all of you and welcome aboard! ) This is a great list. There are so many wonderful people here! So much wisdom and experience, as well as truly caring and supportive people. I hope you'll all find just what you need here! ) I'm Challis, daughter of Sharon (wobbletowalk, our Fearless and Wobbly Leader). You all know she has MS and found her dx a while back (ten years, almost?). I don't have a dx myself, but I keep looking for my answers! In looking back for first symptoms, I'd guess my first was about 11 years ago now. Then about 7 or 8 years ago, more symptoms came and from that time on it's been more steady, I guess. It wasn't until later 2004 when I decided I'd look at it all and see if someone might help me find some answers. That's when my Mother talked me into coming to this list, too. I'm so glad she did. ) I saw my first Neuro, new to the area and having just completed two MS Fellowships at the Mayo in Rochester. It didn't help him. LOL For the first time, I had a doctor who was younger than me. But I forgave him. LOL He's a nice man, but lacking in experience when dealing with a patient you have no answers for. LOL Eval in his office, lab work, MRI of my brain and brain stem and nothing showed a dx to be given. However, during that follow-up visit to discuss all tests, he at last realized I was breastfeeding my youngest and "oh, well..." in that certain tone, "...it's a noble effort, but..." And he basically decided my problems came from nursing. My husband, who was with me during the visits, told me it was at this point when he feared for the doctor's life. ROFL I'm with a new Neuro and, while he didn't have any answers for me, I at least felt that he heard me. We're waiting for a "significant change in symptoms that lasts at least three days", and I'll call him and we'll do a Lumbar Puncture. Oh goodie! ? LOL My husband, , and I have four children ranging in age from 3½ to 20. is our oldest, and just last week he turned 20. Now that's a strange thing to have happen! LOL Our second is , who is 16½. Then comes Jenna, who is about a month shy of her 7th birthday. And Maya is our youngest at 3½. We live in Arizona, where it's snowing right now. More rain this morning and then turning to snow. Great white flakes and it's beautiful! ) has been a carpenter for many years now and in more recent years went "solo", working on his own and for himself. He now does any number of construction- related things, though swears he does not do plumbing or electric. Sure enough, he often finds himself doing one thing or another along those lines anyway. LOL I do what little there is of the "office" work. This is the busier time, what with taxes due. And I keep putting it off. <gg> LOL We've Homeschooled for a number of years now and are still going strong. Maya isn't yet of "official" schooling age, but she learns right along with the rest of them. "graduated" a while back and is now enrolled in a few classes at our local community college. is also taking a couple classes at the college, and continues his Homeschooling. We also have three kitties (Bullet, Syblet and Elvita), and three dogs (y, Rose and Tippy/Fat Girl). I don't think there's much else to say and probably wasn't really this much to say. LOL Challis Never miss an email again!Yahoo! Toolbar alerts you the instant new Mail arrives. Check it out. 8:00? 8:25? 8:40? Find a flick in no time with theYahoo! Search movie showtime shortcut. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2007 Report Share Posted February 13, 2007 Challis; cancel the "guilt!" We are just glad that you are back! Love, n Rojas5915@... Hi! Wow, I'm away for a bit over a month, come back to something over 1600 MSersLife posts, more new listers than I can count, and more going on in everyone's lives than I could have imagined! LOL It's almost like a miniseries, but different. LOL I'm feeling a little guilty for not keeping up with, and not being able to, welcome each of our new listers individually. <gg> Hi to all of you and welcome aboard! ) This is a great list. There are so many wonderful people here! So much wisdom and experience, as well as truly caring and supportive people. I hope you'll all find just what you need here! ) I'm Challis, daughter of Sharon (wobbletowalk, our Fearless and Wobbly Leader). You all know she has MS and found her dx a while back (ten years, almost?). I don't have a dx myself, but I keep looking for my answers! In looking back for first symptoms, I'd guess my first was about 11 years ago now. Then about 7 or 8 years ago, more symptoms came and from that time on it's been more steady, I guess. It wasn't until later 2004 when I decided I'd look at it all and see if someone might help me find some answers. That's when my Mother talked me into coming to this list, too. I'm so glad she did. ) I saw my first Neuro, new to the area and having just completed two MS Fellowships at the Mayo in Rochester. It didn't help him. LOL For the first time, I had a doctor who was younger than me. But I forgave him. LOL He's a nice man, but lacking in experience when dealing with a patient you have no answers for. LOL Eval in his office, lab work, MRI of my brain and brain stem and nothing showed a dx to be given. However, during that follow-up visit to discuss all tests, he at last realized I was breastfeeding my youngest and "oh, well..." in that certain tone, "...it's a noble effort, but..." And he basically decided my problems came from nursing. My husband, who was with me during the visits, told me it was at this point when he feared for the doctor's life. ROFL I'm with a new Neuro and, while he didn't have any answers for me, I at least felt that he heard me. We're waiting for a "significant change in symptoms that lasts at least three days", and I'll call him and we'll do a Lumbar Puncture. Oh goodie! ? LOL My husband, , and I have four children ranging in age from 3½ to 20. is our oldest, and just last week he turned 20. Now that's a strange thing to have happen! LOL Our second is , who is 16½. Then comes Jenna, who is about a month shy of her 7th birthday. And Maya is our youngest at 3½. We live in Arizona, where it's snowing right now. More rain this morning and then turning to snow. Great white flakes and it's beautiful! ) has been a carpenter for many years now and in more recent years went "solo", working on his own and for himself. He now does any number of construction-related things, though swears he does not do plumbing or electric. Sure enough, he often finds himself doing one thing or another along those lines anyway. LOL I do what little there is of the "office" work. This is the busier time, what with taxes due. And I keep putting it off. <gg> LOL We've Homeschooled for a number of years now and are still going strong. Maya isn't yet of "official" schooling age, but she learns right along with the rest of them. "graduated" a while back and is now enrolled in a few classes at our local community college. is also taking a couple classes at the college, and continues his Homeschooling. We also have three kitties (Bullet, Syblet and Elvita), and three dogs (y, Rose and Tippy/Fat Girl). I don't think there's much else to say and probably wasn't really this much to say. LOL Challis Never miss an email again!Yahoo! Toolbar alerts you the instant new Mail arrives. Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2011 Report Share Posted June 4, 2011 OOps! You don't need a question. Maybe you just want to introduce yourself.! That is welcome too. Donna R Cared for Mom 3 years in my home and the last year at a nh. She passed away from LBD in 2002. Hi! It has been so quiet here again. I know we have a lot of Newbies who must have some questions. I know it is helpful to read a lot of the info that is available. And it might be worth it to risk a question? And if you are anything like me when I came here, I sure had questions. We have had several new comers who are also in the " Spouse " group. Hope we can be of some help to you too. Hope to hear from some of you? Donna R Cared for Mom 3 years in my home and the last year at a nh. She passed away from LBD in 2002. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2011 Report Share Posted June 4, 2011 Hi, Donna! :-) Big hugs- Sandie and Des Moines, IA ----- Hi! Date: Sat, 04 Jun 2011 11:05:25 GMT It has been so quiet here again. I know we have a lot of Newbies who must have some questions. I know it is helpful to read a lot of the info that is available. And it might be worth it to risk a question? And if you are anything like me when I came here, I sure had questions. We have had several new comers who are also in the " Spouse " group. Hope we can be of some help to you too. Hope to hear from some of you? Donna R Cared for Mom 3 years in my home and the last year at a nh. She passed away from LBD in 2002. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2011 Report Share Posted June 5, 2011 Hi Sandie and , You are still reading!! Good to hear from you. Hugs, Donna R Cared for Mom 3 years in my home and the last year at a nh. She passed away from LBD in 2002. Re: Hi! Hi, Donna! :-) Big hugs- Sandie and Des Moines, IA ----- Hi! Date: Sat, 04 Jun 2011 11:05:25 GMT It has been so quiet here again. I know we have a lot of Newbies who must have some questions. I know it is helpful to read a lot of the info that is available. And it might be worth it to risk a question? And if you are anything like me when I came here, I sure had questions. We have had several new comers who are also in the " Spouse " group. Hope we can be of some help to you too. Hope to hear from some of you? Donna R Cared for Mom 3 years in my home and the last year at a nh. She passed away from LBD in 2002. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2011 Report Share Posted June 5, 2011 Yup, mainly just read but you drew me (us) out. All is well in Des Moines. It's HOT and humid but status quo this time of year with the weather in the midwest. Many hugs- Sandie and ----- Hi! Date: Sat, 04 Jun 2011 11:05:25 GMT It has been so quiet here again. I know we have a lot of Newbies who must have some questions. I know it is helpful to read a lot of the info that is available. And it might be worth it to risk a question? And if you are anything like me when I came here, I sure had questions. We have had several new comers who are also in the " Spouse " group. Hope we can be of some help to you too. Hope to hear from some of you? Donna R Cared for Mom 3 years in my home and the last year at a nh. She passed away from LBD in 2002. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2011 Report Share Posted June 6, 2011 Good to hear from you Sandie and that all is well with you. Here too on our beautiful Sunshine Coast, BC. > > Yup, mainly just read but you drew me (us) out. All is well in Des Moines. It's HOT and humid but status quo this time of year with the weather in the midwest. Many hugs- Sandie and > > ----- Hi! > Date: Sat, 04 Jun 2011 11:05:25 GMT > > It has been so quiet here again. I know we have a lot of Newbies who must have some questions. > > I know it is helpful to read a lot of the info that is available. And it might be worth it to risk a question? And if you are anything like me when I came here, I sure had questions. > > We have had several new comers who are also in the " Spouse " group. Hope we can be of some help to you too. > > Hope to hear from some of you? > > Donna R > > Cared for Mom 3 years in my home and the last year at a nh. She passed away from LBD in 2002. > > > > > Quote Link to comment Share on other sites More sharing options...
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