Re: lbd

[Guest guest]

Welcome Sharon,

Sorry we have to meet under these conditions. You are a member! Hope we can be

of some help. It is a hard disease to understand and no one is the same. Drugs

are usually a problem.

I am sure Jan will catch up with you as her Jim use to do the same as you are

talking about your Mom doing. Lots of good info in the files.

Hugs,

Donna R

Cared for Mom 3 years in my home and the last year at a nh. She passed away

from LBD in 2002.

lbd

Hi Please let me join the group. My mother was diagnosed after the 8 time

she went to the hospital because we could not wake her up. She would be out

for 1 � hours and then would wake up wondering what was going on. She was

extremely awake after these episodes and her mood was usually pretty good

then. They would raise her arm for the blood pressure and she would leave it

up there. They would put tubes in her nose and down her throat and she

wouldn�t react at all.

Sharon Dowling

punkersad@....

[Guest guest]

Hello Sharon,

Welcome, I am sorry you have to be here, but you will be glad you are with all

this wealth of LBD information and people that you can identify with and you

will know that you are no longer alone in caring for a loved one (LO)

with this dreaded disease.

Your mother's loss of consciousness sounds like my husband. He would have

unexplained loss of consciousness. The first time it happened I thought he died.

It was very scary. His first time was several years ago and he would have them

at least every month until he died last January. I got used to seeing it happen,

so it wasn't as scary as the first time. He would come around and act as if

nothing happened. Thankfully, he was in a wheelchair and didn't collapse to the

floor when it happened. Toward the end, he would frequently lose

consciousness while sitting on the toilet, so someone always had to be near him.

If I gave him a little oxygen, he usually came around faster. He was on oxygen

as needed. I bought an oxymeter online and I could take his oxygen levels and

when it was low is usually when he passed out. The oxymeter went on his finger

to take the oxygen level. I carried it with me all the time.

Has your mother ever been given Haldol? It was in the late 1990s that my husband

was given Haldol against my request not to give it to him. He had been

hospitalized and there was a change of shift and the next doctor did not read my

request. The dangers of Haldol was not known at that time and still is not for

LBD. My husband started to have the loss of consciousness after the Haldol. It

could be a coincidence, but I believe the Haldol had something to do with it.

This is not an easy disease to deal with, but at least you have company now and

at any hour or time of day, because there is usually always someone here, since

our times are all different across the nation and some are from other countries.

So, somewhere in the world someone is up when you are dealing with LBD.

Please take care of yourself too and don't stress too hard.

Janet Colello

San Francisco Bay Area, CA

Husband, Jim, dx w/LBD October 2003

Deceased, January 22, 2011

Subject: lbd

To: LBDcaregivers

Date: Tuesday, June 21, 2011, 5:43 PM

 

Hi Please let me join the group. My mother was diagnosed after the 8 time

she went to the hospital because we could not wake her up. She would be out

for 1 ½ hours and then would wake up wondering what was going on. She was

extremely awake after these episodes and her mood was usually pretty good

then. They would raise her arm for the blood pressure and she would leave it

up there. They would put tubes in her nose and down her throat and she

wouldn’t react at all.

Sharon Dowling

punkersad@....