re: question about a lazy eye

[Guest guest]

My son has surgery to correct his eye, but still required glasses afterwards.

[Guest guest]

Deepta-

Aubrie has a severe coloboma in one eye and near normal vision in the

other. We have not done patching as it would greatly limit her

activities if we did. She seems to have very limited useful vision in

her bad eye. She has had 1 surgery so far to correct her lazy eye. We

have opted to go for surgeries rather than patching because she would be

basically blind if we patched her good eye. How bad is Amita's worst

eye? Even if you don't do patching, there are surgical procedures to

help.

Anyone else in the gang reading this -- does it sound right to you? Is

there anyone patching who leaves the child with severely limited vision

while patched? Aubrie can't lose any precious developmental time being

blinded by a patch. I welcome any comments in disagreement.

Michele W

mom to Aubrie (2.5 yrs) CHaRgE and (8 yrs), wife to DJ, in IL

west@...

[Guest guest]

Michele,

I wouldn't say Kennedy is greatly limited when patched. I would probably have to think twice about patching her if that was the case. She always seems to function pretty much the same as when not patched so it's not that big a deal. I don't disagree with you.

Mom to Kennedy 2yr old CHARGEr, 10, 9, and wife to GraemeNew Brunswick, CanadaVisit the "Weir homepage" at: http://www.geocities.com/SunsetStrip/Palms/5716ICQ #1426476

re: question about a lazy eye

Deepta-Aubrie has a severe coloboma in one eye and near normal vision in theother. We have not done patching as it would greatly limit heractivities if we did. She seems to have very limited useful vision inher bad eye. She has had 1 surgery so far to correct her lazy eye. Wehave opted to go for surgeries rather than patching because she would bebasically blind if we patched her good eye. How bad is Amita's worsteye? Even if you don't do patching, there are surgical procedures tohelp.Anyone else in the gang reading this -- does it sound right to you? Isthere anyone patching who leaves the child with severely limited visionwhile patched? Aubrie can't lose any precious developmental time beingblinded by a patch. I welcome any comments in disagreement.Michele Wmom to Aubrie (2.5 yrs) CHaRgE and (8 yrs), wife to DJ, in ILwest@...For information about the CHARGE Syndrome Foundation or to become a member please contact marion@... or visit the CHARGE Syndrome Foundation web page at http://www.chargesyndrome.org