Re: I need some opinions...

[Guest guest]

Turbodog,

My mom had dementia long before I realized it and lived alone for a long time.

She shouldn't have been alone. When I could get her to live with me for several

months at a time, she would recover and want to go back home. In my blindness

about what was going on, she went home. (In WI and I lived 12 hours away in

MI.)

Finally I went home and set up help for her for part of the day. She could no

long live alone and ended up in the hospital and then my house. Unfortunately

by then I was just trying to keep up to all the problems we were having.

So yes, they can go down over a long period of time. Their MD should be

tracking this, but Mom was so good at keeping it a secret from not only me but

everyone. I thought she was just getting old and more forgetful. Not so. And

she had a personality that I assumed was just a part of all of this. It wasn't.

I hope you will get ahead of the game. Hit the lawyer with her first while she

still can. Let him tell her she needs to get all the right paper work done NOW!

Hope this helps,

Hugs,

Donna R

Cared for Mom 3 years in my home and the last year at a nh. She passed away

from LBD in 2002.

I need some opinions...

I am really confused and would really appreciate the perspective of others who

are familiar with LBD. My mom received a dx years ago. I didn't find out about

it until 1 year ago. My mom has complained off and on literally forever about

memory issues. Probably for at least the last 5 or six years she's been really

complaining about it. I do see some deficits, and they are clearly more

prominent when she is stressed but all in all, nothing significant that I can

see. She has always tended to be " dramatic " and have a " whoa is me " attitude,

so I have to figure that into what is real. Lately, she seems better than ever

to me and is handling a stressful move beautifully--though she still says she

feels off. She has recently gotten off gluten (after testing to be sensitive)

and I am wondering whether that is responsible for what seems to me to be an

improvement. The neurologist she sees where she lives gave her the dx. I took

her to a neuro where I live (and she is moving) and he didn't think it was LBD.

So, here's my question. If she has LBD would we see some decline over a period

of 3-6 years. As far as it seems to me, she doesn't seem to be getting any

worse...which is great news. From what I have understood about LBD, I would

expect to see a decline over that time. Am I right? Any opinions about whether

you suspect it is LBD based on what I have shared? BTW, she is not on any meds.

She is anti-med. She does take lots of supplements though.

Thanks for your thoughts. I will need to " deal " with this more now that she

will be living close to me and I am trying to figure out how to best help her.