Guest guest Posted May 31, 2011 Report Share Posted May 31, 2011 Hi- A brief history. My dad was diagnoed at 62yr with parkinsons ayr ago, about 6 mo ago my stepmother and I self diagnosed LBD. About 3 weeks ago he had a break down, resulting in hospitilation. He went to the Univ of Miami and had a full work up. It was discovered that he does not have parkinsons, he is in the late stages of LBD. The docs think it first presented about 4 yrs ago from family history and stories. He is moving to a nursing home today. The doctors agree that he needs 24 hour secure care as he acts out his dreams and hallucinations. He is becoming a danger to himself and my stepmom so can not stay at home. He does not know where he is going, just that he is moving today. I live in London, he lives in Flordia. I will be out to visit for the summer with the kids, 3 and 2 yrs old. I am still getting to grips with everything, done tons of research, Guess my questions are - How to tell him why he is in a nursing home? How to prepare the children for why Poppi has changed and why he might think my daughter is me? AND really wonding how this will end? Will it be the sames as those with parkinsons as well? He is progessing so fast mentally, he can still walk and dress and eat. But really going down hill mentally. Sorry if I am rambling, just looking for some first hand advice. He has had very bad reactions to drugs and currenly is only on Chlonazepam 3 times a day. Thanks for your support Quote Link to comment Share on other sites More sharing options...
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