Guest guest Posted June 29, 2011 Report Share Posted June 29, 2011 Hello , Sorry you have to be here, but welcome. You are in the right place for all the information on DLB. Yes, we have had a few women in their 40s and 50s on this support site with DLB. It seems very young, but DLB seems to strike at a younger age at times than the usual ages we think of. Mostly it is with 65 and over, but it is not uncommon to hear of someone under age 65, even for men. I'm sorry to hear of your wife's diagnosis. You will get a lot of support and help here and you will never feel alone in caring for a loved one with this disease. Everyone here can relate to what you are going through and you will find someone you can identify with in most situations. Please remember your health and care is just as important as your wife's and you must watch your health and take time for yourself once in awhile. This disease can be very stressful on the caregiver. Keeping you and your wife in my thoughts during your journey with this disease. Jan Colello San Francisco Bay Area, CA Husband, Jim, dx w/LBD Oct. 2003 Deceased, January 22, 2011      Subject: wife with LBD To: LBDcaregivers Date: Tuesday, June 28, 2011, 10:36 PM  has anyone heard of someone under 65 and female having LBD? my wife was treated for psychotic depression/pseudo dementia for 1 1/2 years till now when they have mentioned possible DLB. the literature says hits people over 65 and usually men. she presented with memory loss, being unorganized (can't find things), talked to herself a little, then crying,delusions and paranoia. she now has cognitive, emotional, and walking problems. her drugs have helped a bit but she is basically disabled- eats,sleeps, watches tv...needs help for everything and can't be left alone. she is not even 60. does this sound like DLB to anyone out there? thanks, gary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2011 Report Share Posted June 29, 2011 I really wonder how many people have had lbd and have been put into mental hospitals because people thought they had something else. Just the some one is ok one day and the next day they have hallucinations. They are taken to a hospital where they are given the one kind of medicine that is very bad for people with lbd. I know that the first time that my mom switched we were very frightened and that was 2 years ago. She was not diagnosed until last month. Sometimes I think that she is Dr Jekyll and Mr. Hyde --- there is such a difference between good days and bad days sometimes. Sharon Dowling punkersad@.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2011 Report Share Posted June 30, 2011 that's what happened to my mom! she was sent to a psychiatric/geriatric hospital, given several meds, including one (IMHO) that did her in (Risperidone) -- w/in 3 weeks she went from being self sufficient to needing 24/7 nursing home care, she went from walking into the hospital to being wheeled out in a wheelchair never to walk again. It's why I've become a volunteer with LBDA and I help out here at LBDCaregivers so that maybe one person's family doesn't go through the same thing... > > I really wonder how many people have had lbd and have been put into mental > hospitals because people thought they had something else. Just the some one > is ok one day and the next day they have hallucinations. They are taken to a > hospital where they are given the one kind of medicine that is very bad for > people with lbd. I know that the first time that my mom switched we were > very frightened and that was 2 years ago. She was not diagnosed until last > month. Sometimes I think that she is Dr Jekyll and Mr. Hyde --- there is > such a difference between good days and bad days sometimes. > > > > Sharon Dowling > > punkersad@... > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2011 Report Share Posted June 30, 2011 This is 's reply to this email -- it was accidentally deleted: i agree, many people with lbd are probably put in psychiatric hospitals because their loved ones are frightened and have never heard of lbd. looking back, i am sorry i put my wife thru that experience. she didn't come out any better. i had limited visiting time and drs weren't there to ask-how convenient for them. i really didn't know what they did. gary--- On Wed, 6/29/11, > > I really wonder how many people have had lbd and have been put into mental > hospitals because people thought they had something else. Just the some one > is ok one day and the next day they have hallucinations. They are taken to a > hospital where they are given the one kind of medicine that is very bad for > people with lbd. I know that the first time that my mom switched we were > very frightened and that was 2 years ago. She was not diagnosed until last > month. Sometimes I think that she is Dr Jekyll and Mr. Hyde --- there is > such a difference between good days and bad days sometimes. > > > > Sharon Dowling > > punkersad@... > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.