Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 Elaine, my condolences on the passing of Jim. Sending you much strength. Courage From: elaine.elliott49 Sent: Wednesday, February 16, 2011 6:18 AM To: LBDcaregivers Subject: Sad News from Sydney, Australia Dear Friends I bring you the sad news that my Jim died last Saturday night in the Royal North Shore Hospital in Sydney. Jim had been in hospital three weeks, originally going in because he was refusing to eat and drink. With very warm weather at the time (temperatures of 35 degrees celsius = 95 degrees fahrenheit and more)he became quickly dehydrated. He was on a saline drip for two weeks but was only eating teaspoonfuls of food. For a while I thought I was going to be able to bring him home and nurse him there. Arrangements were made to hire a hospital bed with an air mattress and for extra household help to be available as it required two people to turn him. However his condition deteriorated before that could happen. Once the drip was removed and they began to administer morphine , I decided that he needed to stay in hospital. I lived at the hospital 24/7 for the last five days, helping to reposition him - something he found very painful and would cause him to panic - and just spending as much time as I could with him. After five days without food and drink, he fell into a coma. It was so hard to see him waste away and when he died it was such a relief. The funeral is this Friday (18th). I have donated his brain to Neuroscience Research Australia. I could not have cared for Jim without the love, support and encouragement of my family, my friends and my faith. I also appreciate the support of this group, as well as the wealth of information I gained from the group. Thank you to you all. I look forward to being a more active part of the group once I have caught up on much needed sleep! Elaine (61) from Sydney Australia Carer for husband Jim (82) who was offically diagnosed LBD Oct 2009, but symptoms began at least 5 years before. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 Elaine, My deepest sympathy on the loss of your Jim. You will be in my prayers and thoughts. Come back and be an advisor when you feel up to it. Hugs, Nan > > Dear Friends > I bring you the sad news that my Jim died last Saturday night in the Royal North Shore Hospital in Sydney. > Jim had been in hospital three weeks, originally going in because he was refusing to eat and drink. With very warm weather at the time (temperatures of 35 degrees celsius = 95 degrees fahrenheit and more)he became quickly dehydrated. > He was on a saline drip for two weeks but was only eating teaspoonfuls of food. > For a while I thought I was going to be able to bring him home and nurse him there. Arrangements were made to hire a hospital bed with an air mattress and for extra household help to be available as it required two people to turn him. > However his condition deteriorated before that could happen. Once the drip was removed and they began to administer morphine , I decided that he needed to stay in hospital. > I lived at the hospital 24/7 for the last five days, helping to reposition him - something he found very painful and would cause him to panic - and just spending as much time as I could with him. After five days without food and drink, he fell into a coma. It was so hard to see him waste away and when he died it was such a relief. > The funeral is this Friday (18th). > I have donated his brain to Neuroscience Research Australia. > I could not have cared for Jim without the love, support and encouragement of my family, my friends and my faith. > I also appreciate the support of this group, as well as the wealth of information I gained from the group. > Thank you to you all. > I look forward to being a more active part of the group once I have caught up on much needed sleep! > Elaine (61) from Sydney Australia > Carer for husband Jim (82) who was offically diagnosed LBD Oct 2009, but symptoms began at least 5 years before. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 Elaine, I am so sorry for your loss. Please know you'll be in my thoughts and prayers. Lori Sad News from Sydney, Australia Dear Friends I bring you the sad news that my Jim died last Saturday night in the Royal North Shore Hospital in Sydney. Jim had been in hospital three weeks, originally going in because he was refusing to eat and drink. With very warm weather at the time (temperatures of 35 degrees celsius = 95 degrees fahrenheit and more)he became quickly dehydrated. He was on a saline drip for two weeks but was only eating teaspoonfuls of food. For a while I thought I was going to be able to bring him home and nurse him there. Arrangements were made to hire a hospital bed with an air mattress and for extra household help to be available as it required two people to turn him. However his condition deteriorated before that could happen. Once the drip was removed and they began to administer morphine , I decided that he needed to stay in hospital. I lived at the hospital 24/7 for the last five days, helping to reposition him - something he found very painful and would cause him to panic - and just spending as much time as I could with him. After five days without food and drink, he fell into a coma. It was so hard to see him waste away and when he died it was such a relief. The funeral is this Friday (18th). I have donated his brain to Neuroscience Research Australia. I could not have cared for Jim without the love, support and encouragement of my family, my friends and my faith. I also appreciate the support of this group, as well as the wealth of information I gained from the group. Thank you to you all. I look forward to being a more active part of the group once I have caught up on much needed sleep! Elaine (61) from Sydney Australia Carer for husband Jim (82) who was offically diagnosed LBD Oct 2009, but symptoms began at least 5 years before. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 Dear Elaine, My sincere condolences go out to you. What an awful ride you have been on. Will look forward to your posts. Sending hugs from New York, Helene (Mom almost 77, 11 years with LBD) > > Dear Friends > I bring you the sad news that my Jim died last Saturday night in the Royal North Shore Hospital in Sydney. > Jim had been in hospital three weeks, originally going in because he was refusing to eat and drink. With very warm weather at the time (temperatures of 35 degrees celsius = 95 degrees fahrenheit and more)he became quickly dehydrated. > He was on a saline drip for two weeks but was only eating teaspoonfuls of food. > For a while I thought I was going to be able to bring him home and nurse him there. Arrangements were made to hire a hospital bed with an air mattress and for extra household help to be available as it required two people to turn him. > However his condition deteriorated before that could happen. Once the drip was removed and they began to administer morphine , I decided that he needed to stay in hospital. > I lived at the hospital 24/7 for the last five days, helping to reposition him - something he found very painful and would cause him to panic - and just spending as much time as I could with him. After five days without food and drink, he fell into a coma. It was so hard to see him waste away and when he died it was such a relief. > The funeral is this Friday (18th). > I have donated his brain to Neuroscience Research Australia. > I could not have cared for Jim without the love, support and encouragement of my family, my friends and my faith. > I also appreciate the support of this group, as well as the wealth of information I gained from the group. > Thank you to you all. > I look forward to being a more active part of the group once I have caught up on much needed sleep! > Elaine (61) from Sydney Australia > Carer for husband Jim (82) who was offically diagnosed LBD Oct 2009, but symptoms began at least 5 years before. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 Elaine, I am very sorry to read of Jim's passing, sorry for the void you will feel but relieved that his suffering is behind. He was a lucky man to have you and your love in his life. Rest now Jim. Strength to you Elaine. > > Dear Friends > I bring you the sad news that my Jim died last Saturday night in the Royal North Shore Hospital in Sydney. > Jim had been in hospital three weeks, originally going in because he was refusing to eat and drink. With very warm weather at the time (temperatures of 35 degrees celsius = 95 degrees fahrenheit and more)he became quickly dehydrated. > He was on a saline drip for two weeks but was only eating teaspoonfuls of food. > For a while I thought I was going to be able to bring him home and nurse him there. Arrangements were made to hire a hospital bed with an air mattress and for extra household help to be available as it required two people to turn him. > However his condition deteriorated before that could happen. Once the drip was removed and they began to administer morphine , I decided that he needed to stay in hospital. > I lived at the hospital 24/7 for the last five days, helping to reposition him - something he found very painful and would cause him to panic - and just spending as much time as I could with him. After five days without food and drink, he fell into a coma. It was so hard to see him waste away and when he died it was such a relief. > The funeral is this Friday (18th). > I have donated his brain to Neuroscience Research Australia. > I could not have cared for Jim without the love, support and encouragement of my family, my friends and my faith. > I also appreciate the support of this group, as well as the wealth of information I gained from the group. > Thank you to you all. > I look forward to being a more active part of the group once I have caught up on much needed sleep! > Elaine (61) from Sydney Australia > Carer for husband Jim (82) who was offically diagnosed LBD Oct 2009, but symptoms began at least 5 years before. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 Dear Elaine, My heart goes out to you, my Jim died on January 22 of this year. While it is a relief to know he is at peace at last from this dreaded disease and no longer suffering, life goes on for me. You will be busy with funeral arrangements and many other things that need to be taken care of and more time to focus on you. Please continue on taking care of yourself, because the grief and pain will hit you from time to time from the void without your Jim. It is as important now to take care of yourself as when you were a caregiver. You were living on adrenaline as a caregiver and now it will crash and you will be susceptible to germs and sickness, so keep your energy level up and good positive thoughts and move forward, it's so important. Elaine, I remember we had many similar things in common with our Jims; including our age differences. It is still new for me too feeling the void without my Jim. I am keeping you and your family in my thoughts and prayers at this difficult time, I am so sorry to hear of your loss. Contact me if you feel the need to chat with someone that has just gone through this loss. Take Care, Jan Colello age( 63) San Francisco Bay Area, California Caregiver for Jim (84) diagnosed w/LBD Oct. 2003, symptoms of confusion began in 1996. Deceased January 22, 2011. ________________________________ To: LBDcaregivers Sent: Wed, February 16, 2011 3:18:05 AM Subject: Sad News from Sydney, Australia  Dear Friends I bring you the sad news that my Jim died last Saturday night in the Royal North Shore Hospital in Sydney. Jim had been in hospital three weeks, originally going in because he was refusing to eat and drink. With very warm weather at the time (temperatures of 35 degrees celsius = 95 degrees fahrenheit and more)he became quickly dehydrated. He was on a saline drip for two weeks but was only eating teaspoonfuls of food. For a while I thought I was going to be able to bring him home and nurse him there. Arrangements were made to hire a hospital bed with an air mattress and for extra household help to be available as it required two people to turn him. However his condition deteriorated before that could happen. Once the drip was removed and they began to administer morphine , I decided that he needed to stay in hospital. I lived at the hospital 24/7 for the last five days, helping to reposition him - something he found very painful and would cause him to panic - and just spending as much time as I could with him. After five days without food and drink, he fell into a coma. It was so hard to see him waste away and when he died it was such a relief. The funeral is this Friday (18th). I have donated his brain to Neuroscience Research Australia. I could not have cared for Jim without the love, support and encouragement of my family, my friends and my faith. I also appreciate the support of this group, as well as the wealth of information I gained from the group. Thank you to you all. I look forward to being a more active part of the group once I have caught up on much needed sleep! Elaine (61) from Sydney Australia Carer for husband Jim (82) who was offically diagnosed LBD Oct 2009, but symptoms began at least 5 years before. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 Dear Elaine,  You have my sincere sympathy on your loss. May you find rest and peace and comfort in the coming weeks & month.  Patti , Dayton OH, dtr of Pat w/LBD Subject: Sad News from Sydney, Australia To: LBDcaregivers Date: Wednesday, February 16, 2011, 6:18 AM  Dear Friends I bring you the sad news that my Jim died last Saturday night in the Royal North Shore Hospital in Sydney. Jim had been in hospital three weeks, originally going in because he was refusing to eat and drink. With very warm weather at the time (temperatures of 35 degrees celsius = 95 degrees fahrenheit and more)he became quickly dehydrated. He was on a saline drip for two weeks but was only eating teaspoonfuls of food. For a while I thought I was going to be able to bring him home and nurse him there. Arrangements were made to hire a hospital bed with an air mattress and for extra household help to be available as it required two people to turn him. However his condition deteriorated before that could happen. Once the drip was removed and they began to administer morphine , I decided that he needed to stay in hospital. I lived at the hospital 24/7 for the last five days, helping to reposition him - something he found very painful and would cause him to panic - and just spending as much time as I could with him. After five days without food and drink, he fell into a coma. It was so hard to see him waste away and when he died it was such a relief. The funeral is this Friday (18th). I have donated his brain to Neuroscience Research Australia. I could not have cared for Jim without the love, support and encouragement of my family, my friends and my faith. I also appreciate the support of this group, as well as the wealth of information I gained from the group. Thank you to you all. I look forward to being a more active part of the group once I have caught up on much needed sleep! Elaine (61) from Sydney Australia Carer for husband Jim (82) who was offically diagnosed LBD Oct 2009, but symptoms began at least 5 years before. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 Oh, dear Elaine, I am so sorry for your loss. This is a bittersweet event because you no longer have his physical presence with you, but you also know that he is no longer locked into this dreadful disease. When you posted that Jim was not eating or drinking, it rung a bell with me because that is how the dying process begins. You were a wonderful caregiver, and I pray that you will have some peace in knowing that Jim is free of this disease. However, I do know that you have a void in your heart and your life. Please feel free to continue posting. God bless you and your dear Jim, Hugs, Joan > > Dear Friends > I bring you the sad news that my Jim died last Saturday night in the Royal North Shore Hospital in Sydney. > Jim had been in hospital three weeks, originally going in because he was refusing to eat and drink. With very warm weather at the time (temperatures of 35 degrees celsius = 95 degrees fahrenheit and more)he became quickly dehydrated. > He was on a saline drip for two weeks but was only eating teaspoonfuls of food. > For a while I thought I was going to be able to bring him home and nurse him there. Arrangements were made to hire a hospital bed with an air mattress and for extra household help to be available as it required two people to turn him. > However his condition deteriorated before that could happen. Once the drip was removed and they began to administer morphine , I decided that he needed to stay in hospital. > I lived at the hospital 24/7 for the last five days, helping to reposition him - something he found very painful and would cause him to panic - and just spending as much time as I could with him. After five days without food and drink, he fell into a coma. It was so hard to see him waste away and when he died it was such a relief. > The funeral is this Friday (18th). > I have donated his brain to Neuroscience Research Australia. > I could not have cared for Jim without the love, support and encouragement of my family, my friends and my faith. > I also appreciate the support of this group, as well as the wealth of information I gained from the group. > Thank you to you all. > I look forward to being a more active part of the group once I have caught up on much needed sleep! > Elaine (61) from Sydney Australia > Carer for husband Jim (82) who was offically diagnosed LBD Oct 2009, but symptoms began at least 5 years before. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 Elaine, Sending my condolences to you and your family. You will have a hole in your heart and lots of space as the caregiving stops. You must take care of yourself now as several others have said. It is prime time for you to get ill if you don't. You will miss him dearly. He is in so much of a better place and that isn't going to be a big help as you grieve. Lots of Hugs, Donna R Cared for Mom 3 years in my home and the last year at a nh. She passed away from LBD in 2002. Sad News from Sydney, Australia Dear Friends I bring you the sad news that my Jim died last Saturday night in the Royal North Shore Hospital in Sydney. Jim had been in hospital three weeks, originally going in because he was refusing to eat and drink. With very warm weather at the time (temperatures of 35 degrees celsius = 95 degrees fahrenheit and more)he became quickly dehydrated. He was on a saline drip for two weeks but was only eating teaspoonfuls of food. For a while I thought I was going to be able to bring him home and nurse him there. Arrangements were made to hire a hospital bed with an air mattress and for extra household help to be available as it required two people to turn him. However his condition deteriorated before that could happen. Once the drip was removed and they began to administer morphine , I decided that he needed to stay in hospital. I lived at the hospital 24/7 for the last five days, helping to reposition him - something he found very painful and would cause him to panic - and just spending as much time as I could with him. After five days without food and drink, he fell into a coma. It was so hard to see him waste away and when he died it was such a relief. The funeral is this Friday (18th). I have donated his brain to Neuroscience Research Australia. I could not have cared for Jim without the love, support and encouragement of my family, my friends and my faith. I also appreciate the support of this group, as well as the wealth of information I gained from the group. Thank you to you all. I look forward to being a more active part of the group once I have caught up on much needed sleep! Elaine (61) from Sydney Australia Carer for husband Jim (82) who was offically diagnosed LBD Oct 2009, but symptoms began at least 5 years before. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 Elaine, my thoughts and prayers are with you. Dorothy From: LBDcaregivers [mailto:LBDcaregivers ] On Behalf Of elaine.elliott49 Sent: Wednesday, February 16, 2011 3:18 AM To: LBDcaregivers Subject: Sad News from Sydney, Australia Dear Friends I bring you the sad news that my Jim died last Saturday night in the Royal North Shore Hospital in Sydney. Jim had been in hospital three weeks, originally going in because he was refusing to eat and drink. With very warm weather at the time (temperatures of 35 degrees celsius = 95 degrees fahrenheit and more)he became quickly dehydrated. He was on a saline drip for two weeks but was only eating teaspoonfuls of food. For a while I thought I was going to be able to bring him home and nurse him there. Arrangements were made to hire a hospital bed with an air mattress and for extra household help to be available as it required two people to turn him. However his condition deteriorated before that could happen. Once the drip was removed and they began to administer morphine , I decided that he needed to stay in hospital. I lived at the hospital 24/7 for the last five days, helping to reposition him - something he found very painful and would cause him to panic - and just spending as much time as I could with him. After five days without food and drink, he fell into a coma. It was so hard to see him waste away and when he died it was such a relief. The funeral is this Friday (18th). I have donated his brain to Neuroscience Research Australia. I could not have cared for Jim without the love, support and encouragement of my family, my friends and my faith. I also appreciate the support of this group, as well as the wealth of information I gained from the group. Thank you to you all. I look forward to being a more active part of the group once I have caught up on much needed sleep! Elaine (61) from Sydney Australia Carer for husband Jim (82) who was offically diagnosed LBD Oct 2009, but symptoms began at least 5 years before. __________ Information from ESET Smart Security, version of virus signature database 5881 (20110216) __________ The message was checked by ESET Smart Security. http://www.eset.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2011 Report Share Posted February 18, 2011 Oh Elaine I'm so sorry for your loss. Please accept my deepest condolences. We're here for you whenever you're ready. Thank you for participating in brain donation. It's Jim's last gift to the rest of us. > > Dear Friends > I bring you the sad news that my Jim died last Saturday night in the Royal North Shore Hospital in Sydney. > Jim had been in hospital three weeks, originally going in because he was refusing to eat and drink. With very warm weather at the time (temperatures of 35 degrees celsius = 95 degrees fahrenheit and more)he became quickly dehydrated. > He was on a saline drip for two weeks but was only eating teaspoonfuls of food. > For a while I thought I was going to be able to bring him home and nurse him there. Arrangements were made to hire a hospital bed with an air mattress and for extra household help to be available as it required two people to turn him. > However his condition deteriorated before that could happen. Once the drip was removed and they began to administer morphine , I decided that he needed to stay in hospital. > I lived at the hospital 24/7 for the last five days, helping to reposition him - something he found very painful and would cause him to panic - and just spending as much time as I could with him. After five days without food and drink, he fell into a coma. It was so hard to see him waste away and when he died it was such a relief. > The funeral is this Friday (18th). > I have donated his brain to Neuroscience Research Australia. > I could not have cared for Jim without the love, support and encouragement of my family, my friends and my faith. > I also appreciate the support of this group, as well as the wealth of information I gained from the group. > Thank you to you all. > I look forward to being a more active part of the group once I have caught up on much needed sleep! > Elaine (61) from Sydney Australia > Carer for husband Jim (82) who was offically diagnosed LBD Oct 2009, but symptoms began at least 5 years before. > Quote Link to comment Share on other sites More sharing options...
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