Guest guest Posted July 1, 2011 Report Share Posted July 1, 2011 Is there a way to keep Ambulance EMT's and Emergency room workers from giving Morphine and other narcotics to patients with LBD and Parkinsons ? - I am so frustrated right now I feel like tying a big sign on my wonderful father. He was fine a month ago, but fell and was given morphine in ambulance - so then he hallucinated and lost ablility to stand and walk for 4 days, then moved to Rehab for the long journey back to the baseline that was BEFORE June 12. My mother takes care of him 24/7, my sister goes there everyday, and I am able to go a few times a week. When h e gets out of Rehab he will have homecare for 6 weeks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2011 Report Share Posted July 1, 2011 , You have to find an MD that will work with you on the meds. They need to understand how dangerous most meds are for our people. But the thing your Mom, if she goes with him, needs to tell them is that he is allergic to those and any meds you don't want him to get. I do know how frustrating the hospital can get. There is not enough info out there. You can also go to the LBDA.Org site, and get info packets to take with you when you go to places that don't listen. If you go to the bottom of this message you can go on the Yahoo web site, where it says " Visit your group. " and there is lots of info in the files for you to copy and take with you. We are still getting the medical field educated. I am sorry you are doing what we all did 12 years ago, only we didn't even have and diagnosis. Hugs, Donna R Cared for Mom 3 years in my home and the last year at a nh. She passed away from LBD in 2002. Re: Narcotics Is there a way to keep Ambulance EMT's and Emergency room workers from giving Morphine and other narcotics to patients with LBD and Parkinsons ? - I am so frustrated right now I feel like tying a big sign on my wonderful father. He was fine a month ago, but fell and was given morphine in ambulance - so then he hallucinated and lost ablility to stand and walk for 4 days, then moved to Rehab for the long journey back to the baseline that was BEFORE June 12. My mother takes care of him 24/7, my sister goes there everyday, and I am able to go a few times a week. When h e gets out of Rehab he will have homecare for 6 weeks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2011 Report Share Posted July 1, 2011 I did exactly that - had a lanyard around my mother's neck that she had Lewy Body Dementia... many people here have had medical ID bracelets made that state their LO is " allergic " to Haldol (and any other med that didn't work for them) > > > Is there a way to keep Ambulance EMT's and Emergency room workers from giving Morphine and other narcotics to patients with LBD and Parkinsons ? - I am so frustrated right now I feel like tying a big sign on my wonderful father. He was fine a month ago, but fell and was given morphine in ambulance - so then he hallucinated and lost ablility to stand and walk for 4 days, then moved to Rehab for the long journey back to the baseline that was BEFORE June 12. > > > My mother takes care of him 24/7, my sister goes there everyday, and I am able to go a few times a week. When h e gets out of Rehab he will have homecare for 6 weeks. > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2011 Report Share Posted July 2, 2011 I would agree with . Put it on a bracelet, and post it on the wall in his room and door that he is allergic to these meds. That is a sure fire way that he does not receive them. Diane Carbo RN www.dementiacaresecrets.com www.aginghomehealthcare.com > > , > > You have to find an MD that will work with you on the meds. They need to understand how dangerous most meds are for our people. > > But the thing your Mom, if she goes with him, needs to tell them is that he is allergic to those and any meds you don't want him to get. > > I do know how frustrating the hospital can get. There is not enough info out there. You can also go to the LBDA.Org site, and get info packets to take with you when you go to places that don't listen. > > If you go to the bottom of this message you can go on the Yahoo web site, where it says " Visit your group. " and there is lots of info in the files for you to copy and take with you. We are still getting the medical field educated. > > I am sorry you are doing what we all did 12 years ago, only we didn't even have and diagnosis. > > Hugs, > > Donna R > > Cared for Mom 3 years in my home and the last year at a nh. She passed away from LBD in 2002. > > > Re: Narcotics > > > Is there a way to keep Ambulance EMT's and Emergency room workers from giving Morphine and other narcotics to patients with LBD and Parkinsons ? - I am so frustrated right now I feel like tying a big sign on my wonderful father. He was fine a month ago, but fell and was given morphine in ambulance - so then he hallucinated and lost ablility to stand and walk for 4 days, then moved to Rehab for the long journey back to the baseline that was BEFORE June 12. > > > My mother takes care of him 24/7, my sister goes there everyday, and I am able to go a few times a week. When h e gets out of Rehab he will have homecare for 6 weeks. > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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