Re: Med Alert? a very good idea!!!

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In a message dated 3/13/00 9:00:35 AM Central Standard Time, naugle1@...

writes:

<< How do you fit:

craniotomy - extreme caution with head and neck - NO SPINALS

Bleeder : DDAVP responder (vWd, and platlet dysfunction)

heart patient: MVP, Aortic leakage, ASD, Pulmonary Artery Stenosis

GERD

at risk for Malignant Hyperthermia - NO DIGASEOUS ANESTHESIA

on the back of one of those itty bitty alert emblems? Or do I never leave

the same square mile that she is in??? Any Suggestions would be

appreciated... >>

LOL, I know just how you fell when I went to order 's medical alert

bracelet as you will see by my signature line. I thought we will NEVER

condense this to fit ....

The person working with 's order was very helpful but at a loss as to

what was most important or how to word it so she called her supervisor in (a

nurse) to assist with the wording. They were excellent in helping with the

wording, put enough for any Emergency Personnel to know what not to do to

begin with, and then put instructions to call in for extensive information.

They even thought to include a simple thing like

" NO COROTID PULSE " for when was on ECMO his corotid artery on the

right side was damaged and unable to be reconnected and by taking a left

corotid pulse it could diminish the blood flow to the brain enough to cause

major problems. NOONE had ever thought to tell me that.

These people are really with it, at least the ones that worked with

me on 's bracelet! And anyone with any type of extensive problems as

we have should be wearing one....

Love, Hugs and Prayers, Haydee (Nana to , 8 years old w/Spina

Bifida, ACM II, Hydrocephalus w/VP Shunt,

Syringomyelia w/Syrinx @ c1-c2, G-Tube Fed (totally NPO), Swallowing

Coordination Disorder, Neurogenic Bladder, ARDS

(Lung failure) 3/30/97, 33 days on ECMO (total Lung bypass), 60 days on Life

Support, Humidified Oxygen Dependent, Radical

Trachestomy w/total Loss of Vocal Cord Use, Paralyzed from the Waist Down, 18

surgeries, Heat Intolerant Asthma, Severe Latex Allergy,

Allergies to many Medications, Adhesives, and tons of other stuff, With Such

a Wonderful Love of Life and one crazzzzy Nana living right outside Baton

Rouge, Louisiana, Posterior Fossa Decompression, Opening of the Dura, (No

Graft), and c1-c2 Laminectmy, March 2, 1999...so far so good and getting

better and stronger everyday!!!)

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