Re: ((( ))) Jan - you are so wise....

[Guest guest]

, your words are so true below:

Someone recently mentioned " show time " and that is also so true - they can " pull

it together " for outsiders for a long time. Dad could up until the end. HOW IS

THAT POSSIBLE?? My Dad pulled an actual, physical " straighten up and act right "

when he really wanted to put that show on....amazing.

OMG! , " Show Time " used to be so frustrating to me. Jim's family would

never believe me that Jim was confused, they never saw it or heard it. I began

to believe it was me going nuts. LOL

I am so thankful for this support group, it was here that I saw I was not alone

in this craziness and that I wasn't losing my mind. I was so relieved to read

that so many others were going through the same experiences and I wasn't losing

my mind. It is amazing how LBDers can do that and people don't understand it

that haven't been through it. Even Jim's Caregiver didn't believe me, because

Jim was always together for him in the early stages. It was a different story

when he was with me. The caregiver let Jim clean closets and drawers and when I

was looking for stuff, Jim couldn't remember where he put stuff and the

Caregiver didn't watch him, so he didn't know either. Pink Slips to Cars were

missing and all kinds of documents. Jim would tear things up and throw them

away. The caregiver Trusted Jim enough to let him be on his own despite my going

crazy everytime he let Jim be on his own. Jim was good at pulling " Show Time. "

________________________________

 

" He would have normalcy at times. I never knew what I would have from hour to

hour, day to day, month to month. Sometimes normalcy lasted for days and other

times just moments before confusion kicked in and that would last for who knows

how long. In the early years, he would be confused and then the phone would ring

and it's his brother and on the phone he would speak completely normal as if

there was no confusion only a few minutes before. It's a very frustrating

disease. You never know where you are in the scheme of things. "

One of the things that Dad's Dr. told us near the end was " you can see a

different person every hour of every day " and that was so true of my Dad. He

died on November 4, 2010, a Thursday, and just that Monday the 1st he had gone

to the lawyer, been 100% competent, joked with him, and signed some papers. That

day ended up being the last day he was awake. It is soooo much a roller coaster.

Someone recently mentioned " show time " and that is also so true - they can " pull

it together " for outsiders for a long time. Dad could up until the end. HOW IS

THAT POSSIBLE?? My Dad pulled an actual, physical " straighten up and act right "

when he really wanted to put that show on....amazing.

Blessings to all who are going through this journey and those who have been on

it.