Re: Jim is gone : (

[Guest guest]

Dear Jan

I am truly sorry for your loss.I guess heaven needed another angel...You have

been so strong for so very long and you gave so much love and caring for your

dear Jim...He was blessed as I know you were..We are here for you.Take time to

rest and take care of yourself. We are here for you any and all of the time

through the coming days and on.My heart truly hurts for

you...Godspeed....((((())))) Ron

________________________________

To: LBDcaregivers

Sent: Sat, January 22, 2011 4:50:09 PM

Subject: Jim is gone : (

It is with a heavy heart that I tell you Jim died at 8:41AM Pacific Time today.

I was with him through the night. I stayed over for the last 3 nights at the

nursing home. I only went home once to shower and change when Hospice sent a

sitter to stay with Jim while I went home for awhile. He died peacefully, but he

was a fighter to the end. He didn't want to go. He looked like he was from a

concentration camp, he was so bony, no one knew where he was getting the energy

to keep on breathing, but he kept on going. He had a will to live.

Last night we had quality time together. They moved Jim into a private room and

I could talk to him and we did body language to show our love. I winked at him

and he raised his eyebrows up and down, I patted my heart to let him know I

loved him and when I went to put some vasiline on his dry lips, he pursed his

lips and kissed my finger and put his lips togeter and said, The B sound. It

sounded like Bye to me. It broke my heart. It was just like Jim to do something

so touching in a moment of sorrow.

He touched so many residents and staff at the nursing home with his personality

that they did a respectful ceremony for him as he went out the door for the last

time. Usually, the coroner comes and takes the people out on a gurney with a

cover over them and residents are sitting in the hall, but the

admin. staff cleared everyone out of the hall and not one person was sitting in

the hall and the staff went up and down the hall and closed all the doors to the

rooms in the hall that Jim would pass through and when Jim went down the hall

the staff all stood in silence. I never saw them do that before to anyone and

all the people that worked there said the samething.

Sharyn, Jim's daughter, came when I called her to let her know that her dad had

passed. She had planned to come at 10AM before my call. She had been there most

of the day before too. She was a real support and we both were tearful and

helped each other through it. We both had a melt down when Jim passed through

the hall for the last time. Jim waited to go the day after my birthday instead

of on my birthday. The staff at the nursing home gave me a small party and they

all signed a birthday card. I was given a slice of cake with a candle on it, so

my birthday did not go unnoticed.

Sharyn helped me clean out all Jim's belongings out of drawers and closets and

pack them in the car to take home.

I am staying at my mom's tonight, so I don't sit at home alone and reflect and

have a melt down. My whole life for the past decade has been centered around

Jim. I won't know what to do with all my free time.

Thank you all for your kind words, concern and support.

Love and Hugs,

Jan Colello

Husband, Jim dx w/LBD 2003 died January 22, 2011

[Guest guest]

Jan, what a nice tribute to your husband. Beautifully said Ron! Very true, your

circle of support is here. Blessings to you and may the Jan time for self-care

begin!

Hugs,

Sheri A. Farinha

Chief Executive Officer

NorCal Services for Deaf & Hard of Hearing

4708 Roseville Rd, Suite 111

North Highlands, CA 95660

www.norcalcenter.org

Email: SFarinha@...

Pager: xoSheri@...

Telephone:

VP: (916)993-3040 or (916)626-4928

Jim is gone : (

It is with a heavy heart that I tell you Jim died at 8:41AM Pacific Time today.

I was with him through the night. I stayed over for the last 3 nights at the

nursing home. I only went home once to shower and change when Hospice sent a

sitter to stay with Jim while I went home for awhile. He died peacefully, but he

was a fighter to the end. He didn't want to go. He looked like he was from a

concentration camp, he was so bony, no one knew where he was getting the energy

to keep on breathing, but he kept on going. He had a will to live.

Last night we had quality time together. They moved Jim into a private room and

I could talk to him and we did body language to show our love. I winked at him

and he raised his eyebrows up and down, I patted my heart to let him know I

loved him and when I went to put some vasiline on his dry lips, he pursed his

lips and kissed my finger and put his lips togeter and said, The B sound. It

sounded like Bye to me. It broke my heart. It was just like Jim to do something

so touching in a moment of sorrow.

He touched so many residents and staff at the nursing home with his personality

that they did a respectful ceremony for him as he went out the door for the last

time. Usually, the coroner comes and takes the people out on a gurney with a

cover over them and residents are sitting in the hall, but the

admin. staff cleared everyone out of the hall and not one person was sitting in

the hall and the staff went up and down the hall and closed all the doors to the

rooms in the hall that Jim would pass through and when Jim went down the hall

the staff all stood in silence. I never saw them do that before to anyone and

all the people that worked there said the samething.

Sharyn, Jim's daughter, came when I called her to let her know that her dad had

passed. She had planned to come at 10AM before my call. She had been there most

of the day before too. She was a real support and we both were tearful and

helped each other through it. We both had a melt down when Jim passed through

the hall for the last time. Jim waited to go the day after my birthday instead

of on my birthday. The staff at the nursing home gave me a small party and they

all signed a birthday card. I was given a slice of cake with a candle on it, so

my birthday did not go unnoticed.

Sharyn helped me clean out all Jim's belongings out of drawers and closets and

pack them in the car to take home.

I am staying at my mom's tonight, so I don't sit at home alone and reflect and

have a melt down. My whole life for the past decade has been centered around

Jim. I won't know what to do with all my free time.

Thank you all for your kind words, concern and support.

Love and Hugs,

Jan Colello

Husband, Jim dx w/LBD 2003 died January 22, 2011

[Guest guest]

oh Jan I sat here and cried for you as I read this, there is no way to

prepare for such a loss! I'm thankful that your last evening together

was quality time and you will have those memories, and that you and

Sharyn were able to be there for each other.

I am just so very very sorry you are having to go through this...

--

His,

Sherry

daughter/guardian of , dx 4/09 with LBD, living in a nearby NH

> It is with a heavy heart that I tell you Jim died at 8:41AM Pacific Time

today.

> I was with him through the night. I stayed over for the last 3 nights at the

> nursing home. I only went home once to shower and change when Hospice sent a

> sitter to stay with Jim while I went home for awhile. He died peacefully, but

he

> was a fighter to the end. He didn't want to go. He looked like he was from a

> concentration camp, he was so bony, no one knew where he was getting the

energy

> to keep on breathing, but he kept on going. He had a will to live.

> Last night we had quality time together. They moved Jim into a private room

and

> I could talk to him and we did body language to show our love. I winked at him

> and he raised his eyebrows up and down, I patted my heart to let him know I

> loved him and when I went to put some vasiline on his dry lips, he pursed his

> lips and kissed my finger and put his lips togeter and said, The B sound. It

> sounded like Bye to me. It broke my heart. It was just like Jim to do

something

> so touching in a moment of sorrow.

>

> He touched so many residents and staff at the nursing home with his

personality

> that they did a respectful ceremony for him as he went out the door for the

last

> time. Usually, the coroner comes and takes the people out on a gurney with a

> cover over them and residents are sitting in the hall, but the

> admin. staff cleared everyone out of the hall and not one person was sitting

in

> the hall and the staff went up and down the hall and closed all the doors to

the

> rooms in the hall that Jim would pass through and when Jim went down the hall

> the staff all stood in silence. I never saw them do that before to anyone and

> all the people that worked there said the samething.

> Sharyn, Jim's daughter, came when I called her to let her know that her dad

had

> passed. She had planned to come at 10AM before my call. She had been there

most

> of the day before too. She was a real support and we both were tearful and

> helped each other through it. We both had a melt down when Jim passed through

> the hall for the last time. Jim waited to go the day after my birthday instead

> of on my birthday. The staff at the nursing home gave me a small party and

they

> all signed a birthday card. I was given a slice of cake with a candle on it,

so

> my birthday did not go unnoticed.

> Sharyn helped me clean out all Jim's belongings out of drawers and closets and

> pack them in the car to take home.

> I am staying at my mom's tonight, so I don't sit at home alone and reflect and

> have a melt down. My whole life for the past decade has been centered around

> Jim. I won't know what to do with all my free time.

> Thank you all for your kind words, concern and support.

> Love and Hugs,

> Jan Colello

> Husband, Jim dx w/LBD 2003 died January 22, 2011

[Guest guest]

Oh Dearest Jan, I too sit here crying as I read your beautiful tribute to your

lovely Jim, my sincere condolences. How beautiful that you were able to spend

that quality time with him.

It will be hard, but try to rest now. I remember feeling so strange when my dad

passed away because I wasn't running here or running there. It might not sound

very normal, but what helped me a lot was talking to him as if he was still with

me.

Your lovely Jim is now your Guardian Angel so proud of you, Jan! Your courage

is admirable! We are here for you!

Sending you many heartfelt hugs!!!

from NYC

Daughter of Celestino (Tino) Suarez

Misdiagnosed for years. Diagnosed with LBD March 2009, but we now know he's had

it for at least 4-5 years.

God called him home on October 27, 2009. Rest in peace, Daddy.

(January 29, 1930 - October 27, 2009)

>

> It is with a heavy heart that I tell you Jim died at 8:41AM Pacific

Time today.

> I was with him through the night. I stayed over for the last 3 nights at the

> nursing home. I only went home once to shower and change when Hospice sent a

> sitter to stay with Jim while I went home for awhile. He died peacefully, but

he

> was a fighter to the end. He didn't want to go. He looked like he was from a

> concentration camp, he was so bony, no one knew where he was getting the

energy

> to keep on breathing, but he kept on going. He had a will to live.

> Last night we had quality time together. They moved Jim into a private room

and

> I could talk to him and we did body language to show our love. I winked at him

> and he raised his eyebrows up and down, I patted my heart to let him know I

> loved him and when I went to put some vasiline on his dry lips, he pursed his

> lips and kissed my finger and put his lips togeter and said, The B sound. It

> sounded like Bye to me. It broke my heart. It was just like Jim to do

something

> so touching in a moment of sorrow.

>

> He touched so many residents and staff at the nursing home with his

personality

> that they did a respectful ceremony for him as he went out the door for the

last

> time. Usually, the coroner comes and takes the people out on a gurney with a

> cover over them and residents are sitting in the hall, but the

> admin. staff cleared everyone out of the hall and not one person was sitting

in

> the hall and the staff went up and down the hall and closed all the doors to

the

> rooms in the hall that Jim would pass through and when Jim went down the hall

> the staff all stood in silence. I never saw them do that before to anyone and

> all the people that worked there said the samething. 

> Sharyn, Jim's daughter, came when I called her to let her know that her

dad had

> passed. She had planned to come at 10AM before my call. She had been there

most

> of the day before too. She was a real support and we both were tearful and

> helped each other through it. We both had a melt down when Jim passed through

> the hall for the last time. Jim waited to go the day after my birthday instead

> of on my birthday. The staff at the nursing home gave me a small party and

they

> all signed a birthday card. I was given a slice of cake with a candle on it,

so

> my birthday did not go unnoticed.

> Sharyn helped me clean out all Jim's belongings out of drawers and closets and

> pack them in the car to take home.

> I am staying at my mom's tonight, so I don't sit at home alone and reflect and

> have a melt down. My whole life for the past decade has been centered around

> Jim. I won't know what to do with all my free time.

> Thank you all for your kind words, concern and support.

> Love and Hugs,

> Jan Colello

> Husband, Jim dx w/LBD 2003 died January 22, 2011

>

>

>

>

>

[Guest guest]

Jan, You have my deepest sympathy at your loss. I am so glad they were able to

give you a private room away from that mans vulgarities and loud talk. You have

been a pillar of strength for your Jim. Now rest and regroup. Hugs, Nan

> > It is with a heavy heart that I tell you Jim died at 8:41AM Pacific Time

today.

> > I was with him through the night. I stayed over for the last 3 nights at the

> > nursing home. I only went home once to shower and change when Hospice sent a

> > sitter to stay with Jim while I went home for awhile. He died peacefully,

but he

> > was a fighter to the end. He didn't want to go. He looked like he was from a

> > concentration camp, he was so bony, no one knew where he was getting the

energy

> > to keep on breathing, but he kept on going. He had a will to live.

> > Last night we had quality time together. They moved Jim into a private room

and

> > I could talk to him and we did body language to show our love. I winked at

him

> > and he raised his eyebrows up and down, I patted my heart to let him know I

> > loved him and when I went to put some vasiline on his dry lips, he pursed

his

> > lips and kissed my finger and put his lips togeter and said, The B sound. It

> > sounded like Bye to me. It broke my heart. It was just like Jim to do

something

> > so touching in a moment of sorrow.

> >

> > He touched so many residents and staff at the nursing home with his

personality

> > that they did a respectful ceremony for him as he went out the door for the

last

> > time. Usually, the coroner comes and takes the people out on a gurney with a

> > cover over them and residents are sitting in the hall, but the

> > admin. staff cleared everyone out of the hall and not one person was sitting

in

> > the hall and the staff went up and down the hall and closed all the doors to

the

> > rooms in the hall that Jim would pass through and when Jim went down the

hall

> > the staff all stood in silence. I never saw them do that before to anyone

and

> > all the people that worked there said the samething.

> > Sharyn, Jim's daughter, came when I called her to let her know that her dad

had

> > passed. She had planned to come at 10AM before my call. She had been there

most

> > of the day before too. She was a real support and we both were tearful and

> > helped each other through it. We both had a melt down when Jim passed

through

> > the hall for the last time. Jim waited to go the day after my birthday

instead

> > of on my birthday. The staff at the nursing home gave me a small party and

they

> > all signed a birthday card. I was given a slice of cake with a candle on it,

so

> > my birthday did not go unnoticed.

> > Sharyn helped me clean out all Jim's belongings out of drawers and closets

and

> > pack them in the car to take home.

> > I am staying at my mom's tonight, so I don't sit at home alone and reflect

and

> > have a melt down. My whole life for the past decade has been centered around

> > Jim. I won't know what to do with all my free time.

> > Thank you all for your kind words, concern and support.

> > Love and Hugs,

> > Jan Colello

> > Husband, Jim dx w/LBD 2003 died January 22, 2011

>

[Guest guest]

Dear Jan,

I am so sorry for your loss. I've been following your writings about your

recent experiences as I am new to the group, and it was very easy to recognize

the level of love and care you have had for Jim. There is no doubt in my mind

that he knows that too. And now he is free of this terrible illness and waiting

to be together with you again. You'll be in my prayers, as you have been.

Lori

Jim is gone : (

It is with a heavy heart that I tell you Jim died at 8:41AM Pacific Time

today.

I was with him through the night. I stayed over for the last 3 nights at the

nursing home. I only went home once to shower and change when Hospice sent a

sitter to stay with Jim while I went home for awhile. He died peacefully, but

he

was a fighter to the end. He didn't want to go. He looked like he was from a

concentration camp, he was so bony, no one knew where he was getting the

energy

to keep on breathing, but he kept on going. He had a will to live.

Last night we had quality time together. They moved Jim into a private room

and

I could talk to him and we did body language to show our love. I winked at him

and he raised his eyebrows up and down, I patted my heart to let him know I

loved him and when I went to put some vasiline on his dry lips, he pursed his

lips and kissed my finger and put his lips togeter and said, The B sound. It

sounded like Bye to me. It broke my heart. It was just like Jim to do

something

so touching in a moment of sorrow.

He touched so many residents and staff at the nursing home with his

personality

that they did a respectful ceremony for him as he went out the door for the

last

time. Usually, the coroner comes and takes the people out on a gurney with a

cover over them and residents are sitting in the hall, but the

admin. staff cleared everyone out of the hall and not one person was sitting

in

the hall and the staff went up and down the hall and closed all the doors to

the

rooms in the hall that Jim would pass through and when Jim went down the hall

the staff all stood in silence. I never saw them do that before to anyone and

all the people that worked there said the samething.

Sharyn, Jim's daughter, came when I called her to let her know that her dad

had

passed. She had planned to come at 10AM before my call. She had been there

most

of the day before too. She was a real support and we both were tearful and

helped each other through it. We both had a melt down when Jim passed through

the hall for the last time. Jim waited to go the day after my birthday instead

of on my birthday. The staff at the nursing home gave me a small party and

they

all signed a birthday card. I was given a slice of cake with a candle on it,

so

my birthday did not go unnoticed.

Sharyn helped me clean out all Jim's belongings out of drawers and closets and

pack them in the car to take home.

I am staying at my mom's tonight, so I don't sit at home alone and reflect and

have a melt down. My whole life for the past decade has been centered around

Jim. I won't know what to do with all my free time.

Thank you all for your kind words, concern and support.

Love and Hugs,

Jan Colello

Husband, Jim dx w/LBD 2003 died January 22, 2011

[Guest guest]

Jan, I am so sorry for what you are going through, but relieved for Jim to have

moved beyond the confines of PDD. He had the trust and faith in you that must

have made the terrors of the condition more tolerable. Thankfully his dignity

was respected in the end with the private room and special sendoff. That will

touch your heart with a special warmth as good memories come back. Now rest,

grieve with your mom as she understands all too well losing a husband and let

the healing begin. Even as you grieve, melt down, you are healing. I know the

void is like a vacuum for you right now but you are strong enough to not become

enveloped in it. Jim left you with the faith that you have the strength to move

on.

Love

>

> It is with a heavy heart that I tell you Jim died at 8:41AM Pacific

Time today.

> I was with him through the night. I stayed over for the last 3 nights at the

> nursing home. I only went home once to shower and change when Hospice sent a

> sitter to stay with Jim while I went home for awhile. He died peacefully, but

he

> was a fighter to the end. He didn't want to go. He looked like he was from a

> concentration camp, he was so bony, no one knew where he was getting the

energy

> to keep on breathing, but he kept on going. He had a will to live.

> Last night we had quality time together. They moved Jim into a private room

and

> I could talk to him and we did body language to show our love. I winked at him

> and he raised his eyebrows up and down, I patted my heart to let him know I

> loved him and when I went to put some vasiline on his dry lips, he pursed his

> lips and kissed my finger and put his lips togeter and said, The B sound. It

> sounded like Bye to me. It broke my heart. It was just like Jim to do

something

> so touching in a moment of sorrow.

>

> He touched so many residents and staff at the nursing home with his

personality

> that they did a respectful ceremony for him as he went out the door for the

last

> time. Usually, the coroner comes and takes the people out on a gurney with a

> cover over them and residents are sitting in the hall, but the

> admin. staff cleared everyone out of the hall and not one person was sitting

in

> the hall and the staff went up and down the hall and closed all the doors to

the

> rooms in the hall that Jim would pass through and when Jim went down the hall

> the staff all stood in silence. I never saw them do that before to anyone and

> all the people that worked there said the samething. 

> Sharyn, Jim's daughter, came when I called her to let her know that her

dad had

> passed. She had planned to come at 10AM before my call. She had been there

most

> of the day before too. She was a real support and we both were tearful and

> helped each other through it. We both had a melt down when Jim passed through

> the hall for the last time. Jim waited to go the day after my birthday instead

> of on my birthday. The staff at the nursing home gave me a small party and

they

> all signed a birthday card. I was given a slice of cake with a candle on it,

so

> my birthday did not go unnoticed.

> Sharyn helped me clean out all Jim's belongings out of drawers and closets and

> pack them in the car to take home.

> I am staying at my mom's tonight, so I don't sit at home alone and reflect and

> have a melt down. My whole life for the past decade has been centered around

> Jim. I won't know what to do with all my free time.

> Thank you all for your kind words, concern and support.

> Love and Hugs,

> Jan Colello

> Husband, Jim dx w/LBD 2003 died January 22, 2011

>

>

>

>

>

[Guest guest]

I'm so very sorry Jan. I'm glad you were able to have some quality time

together and that his passing was peaceful. He was so lucky to have you in

his life especially with his struggle with this disease because you were

right there with him through the whole thing. It's a true blessing to

have a partner that dedicated and able. My prayers for your healing and

comfort.

Love

Dorothy

From: LBDcaregivers [mailto:LBDcaregivers ]

On Behalf Of Janet Colello

Sent: Saturday, January 22, 2011 1:50 PM

To: LBDcaregivers

Subject: Jim is gone : (

It is with a heavy heart that I tell you Jim died at 8:41AM Pacific Time

today.

I was with him through the night. I stayed over for the last 3 nights at the

nursing home. I only went home once to shower and change when Hospice sent a

sitter to stay with Jim while I went home for awhile. He died peacefully,

but he

was a fighter to the end. He didn't want to go. He looked like he was from a

concentration camp, he was so bony, no one knew where he was getting the

energy

to keep on breathing, but he kept on going. He had a will to live.

Last night we had quality time together. They moved Jim into a private room

and

I could talk to him and we did body language to show our love. I winked at

him

and he raised his eyebrows up and down, I patted my heart to let him know I

loved him and when I went to put some vasiline on his dry lips, he pursed

his

lips and kissed my finger and put his lips togeter and said, The B sound. It

sounded like Bye to me. It broke my heart. It was just like Jim to do

something

so touching in a moment of sorrow.

He touched so many residents and staff at the nursing home with his

personality

that they did a respectful ceremony for him as he went out the door for the

last

time. Usually, the coroner comes and takes the people out on a gurney with a

cover over them and residents are sitting in the hall, but the

admin. staff cleared everyone out of the hall and not one person was sitting

in

the hall and the staff went up and down the hall and closed all the doors to

the

rooms in the hall that Jim would pass through and when Jim went down the

hall

the staff all stood in silence. I never saw them do that before to anyone

and

all the people that worked there said the samething.

Sharyn, Jim's daughter, came when I called her to let her know that her dad

had

passed. She had planned to come at 10AM before my call. She had been there

most

of the day before too. She was a real support and we both were tearful and

helped each other through it. We both had a melt down when Jim passed

through

the hall for the last time. Jim waited to go the day after my birthday

instead

of on my birthday. The staff at the nursing home gave me a small party and

they

all signed a birthday card. I was given a slice of cake with a candle on it,

so

my birthday did not go unnoticed.

Sharyn helped me clean out all Jim's belongings out of drawers and closets

and

pack them in the car to take home.

I am staying at my mom's tonight, so I don't sit at home alone and reflect

and

have a melt down. My whole life for the past decade has been centered around

Jim. I won't know what to do with all my free time.

Thank you all for your kind words, concern and support.

Love and Hugs,

Jan Colello

Husband, Jim dx w/LBD 2003 died January 22, 2011

[Guest guest]

jan, my friend,  you were an angel to jim and your love for each otehr should

go down in hisotry,  your bag fo tricks gave jim more lives than most cats, and

what your bag of tricks didint do, your undying love did. 

may you find peace knowing all that.  and know that he loved you dearly, 

please taek care fo yourself, he would want you to, he would wnat you to take

time to heal yourself and kow that his love is always deep in your heart. 

i am here for you 24/7 just cal me donnie said you better call if you need me. 

hugs. from all fo teh critters and us too hugs. sharon

Subject: Jim is gone : (

To: LBDcaregivers

Date: Saturday, January 22, 2011, 3:50 PM

 

It is with a heavy heart that I tell you Jim died at 8:41AM Pacific

Time today.

I was with him through the night. I stayed over for the last 3 nights at the

nursing home. I only went home once to shower and change when Hospice sent a

sitter to stay with Jim while I went home for awhile. He died peacefully, but

he

was a fighter to the end. He didn't want to go. He looked like he was from a

concentration camp, he was so bony, no one knew where he was getting the energy

to keep on breathing, but he kept on going. He had a will to live.

Last night we had quality time together. They moved Jim into a private room and

I could talk to him and we did body language to show our love. I winked at him

and he raised his eyebrows up and down, I patted my heart to let him know I

loved him and when I went to put some vasiline on his dry lips, he pursed his

lips and kissed my finger and put his lips togeter and said, The B sound. It

sounded like Bye to me. It broke my heart. It was just like Jim to do something

so touching in a moment of sorrow.

He touched so many residents and staff at the nursing home with his personality

that they did a respectful ceremony for him as he went out the door for the last

time. Usually, the coroner comes and takes the people out on a gurney with a

cover over them and residents are sitting in the hall, but the

admin. staff cleared everyone out of the hall and not one person was sitting

in

the hall and the staff went up and down the hall and closed all the doors to

the

rooms in the hall that Jim would pass through and when Jim went down the

hall

the staff all stood in silence. I never saw them do that before to anyone and

all the people that worked there said the samething. 

Sharyn, Jim's daughter, came when I called her to let her know that her

dad had

passed. She had planned to come at 10AM before my call. She had been there most

of the day before too. She was a real support and we both were tearful and

helped each other through it. We both had a melt down when Jim passed through

the hall for the last time. Jim waited to go the day after my birthday instead

of on my birthday. The staff at the nursing home gave me a small party and they

all signed a birthday card. I was given a slice of cake with a candle on it, so

my birthday did not go unnoticed.

Sharyn helped me clean out all Jim's belongings out of drawers and closets and

pack them in the car to take home.

I am staying at my mom's tonight, so I don't sit at home alone and reflect and

have a melt down. My whole life for the past decade has been centered around

Jim. I won't know what to do with all my free time.

Thank you all for your kind words, concern and support.

Love and Hugs,

Jan Colello

Husband, Jim dx w/LBD 2003 died January 22, 2011

[Guest guest]

Hi all,

For those who would like to make a donation to the LBDA in Memory of

Colello a memorial page has been set up.

To donate go to: firstgiving.com/lbda

When on that page on the right side there is a box to make a donation to a

friend's page.

In the box enter Colello.

On the next page, just click the link where his name is listed and that will

take you to the page where you can make a donation in his memory.

Janet, you are in my thoughts and prayers...I feel that you are poster person

for all that you have done for Jim along the way and for your contributions to

make others more aware of this disease.

Love,

Joan

>

> It is with a heavy heart that I tell you Jim died at 8:41AM Pacific

Time today.

> I was with him through the night. I stayed over for the last 3 nights at the

> nursing home. I only went home once to shower and change when Hospice sent a

> sitter to stay with Jim while I went home for awhile. He died peacefully, but

he

> was a fighter to the end. He didn't want to go. He looked like he was from a

> concentration camp, he was so bony, no one knew where he was getting the

energy

> to keep on breathing, but he kept on going. He had a will to live.

> Last night we had quality time together. They moved Jim into a private room

and

> I could talk to him and we did body language to show our love. I winked at him

> and he raised his eyebrows up and down, I patted my heart to let him know I

> loved him and when I went to put some vasiline on his dry lips, he pursed his

> lips and kissed my finger and put his lips togeter and said, The B sound. It

> sounded like Bye to me. It broke my heart. It was just like Jim to do

something

> so touching in a moment of sorrow.

>

> He touched so many residents and staff at the nursing home with his

personality

> that they did a respectful ceremony for him as he went out the door for the

last

> time. Usually, the coroner comes and takes the people out on a gurney with a

> cover over them and residents are sitting in the hall, but the

> admin. staff cleared everyone out of the hall and not one person was sitting

in

> the hall and the staff went up and down the hall and closed all the doors to

the

> rooms in the hall that Jim would pass through and when Jim went down the hall

> the staff all stood in silence. I never saw them do that before to anyone and

> all the people that worked there said the samething. 

> Sharyn, Jim's daughter, came when I called her to let her know that her

dad had

> passed. She had planned to come at 10AM before my call. She had been there

most

> of the day before too. She was a real support and we both were tearful and

> helped each other through it. We both had a melt down when Jim passed through

> the hall for the last time. Jim waited to go the day after my birthday instead

> of on my birthday. The staff at the nursing home gave me a small party and

they

> all signed a birthday card. I was given a slice of cake with a candle on it,

so

> my birthday did not go unnoticed.

> Sharyn helped me clean out all Jim's belongings out of drawers and closets and

> pack them in the car to take home.

> I am staying at my mom's tonight, so I don't sit at home alone and reflect and

> have a melt down. My whole life for the past decade has been centered around

> Jim. I won't know what to do with all my free time.

> Thank you all for your kind words, concern and support.

> Love and Hugs,

> Jan Colello

> Husband, Jim dx w/LBD 2003 died January 22, 2011

>

>

>

>

>

[Guest guest]

Jan I am so sorry for your loss.  I can't imagine and I know that some day I

will have to go through it too.  Feels God's loving arms around you in the next

days as you go through the motions of saying good-bye.

Hugs

sharon from Ohio

Subject: Jim is gone : (

To: LBDcaregivers

Date: Saturday, January 22, 2011, 4:50 PM

 

It is with a heavy heart that I tell you Jim died at 8:41AM Pacific

Time today.

I was with him through the night. I stayed over for the last 3 nights at the

nursing home. I only went home once to shower and change when Hospice sent a

sitter to stay with Jim while I went home for awhile. He died peacefully, but

he

was a fighter to the end. He didn't want to go. He looked like he was from a

concentration camp, he was so bony, no one knew where he was getting the energy

to keep on breathing, but he kept on going. He had a will to live.

Last night we had quality time together. They moved Jim into a private room and

I could talk to him and we did body language to show our love. I winked at him

and he raised his eyebrows up and down, I patted my heart to let him know I

loved him and when I went to put some vasiline on his dry lips, he pursed his

lips and kissed my finger and put his lips togeter and said, The B sound. It

sounded like Bye to me. It broke my heart. It was just like Jim to do something

so touching in a moment of sorrow.

He touched so many residents and staff at the nursing home with his personality

that they did a respectful ceremony for him as he went out the door for the last

time. Usually, the coroner comes and takes the people out on a gurney with a

cover over them and residents are sitting in the hall, but the

admin. staff cleared everyone out of the hall and not one person was sitting

in

the hall and the staff went up and down the hall and closed all the doors to

the

rooms in the hall that Jim would pass through and when Jim went down the

hall

the staff all stood in silence. I never saw them do that before to anyone and

all the people that worked there said the samething. 

Sharyn, Jim's daughter, came when I called her to let her know that her

dad had

passed. She had planned to come at 10AM before my call. She had been there most

of the day before too. She was a real support and we both were tearful and

helped each other through it. We both had a melt down when Jim passed through

the hall for the last time. Jim waited to go the day after my birthday instead

of on my birthday. The staff at the nursing home gave me a small party and they

all signed a birthday card. I was given a slice of cake with a candle on it, so

my birthday did not go unnoticed.

Sharyn helped me clean out all Jim's belongings out of drawers and closets and

pack them in the car to take home.

I am staying at my mom's tonight, so I don't sit at home alone and reflect and

have a melt down. My whole life for the past decade has been centered around

Jim. I won't know what to do with all my free time.

Thank you all for your kind words, concern and support.

Love and Hugs,

Jan Colello

Husband, Jim dx w/LBD 2003 died January 22, 2011

[Guest guest]

Dear Jan,

My deepest sympathy goes out to you. What an incredible relationship you and Jim

have had - through thick and thin. I'm glad that Jim's daughter was there for

you.

Thank you for writing about how the nursing home wished you a happy birthday,

and how they paid their respect for Jim.

I'm glad you are staying at your Mom's for the time being. Take some time for

Jan.

I believe that Jim lives on in your heart and soul. Your last night together

was so poignant. Thank you for sharing this with us.

Sending you lots of love and many hugs from NY,

Helene

>

> It is with a heavy heart that I tell you Jim died at 8:41AM Pacific

Time today.

> I was with him through the night. I stayed over for the last 3 nights at the

> nursing home. I only went home once to shower and change when Hospice sent a

> sitter to stay with Jim while I went home for awhile. He died peacefully, but

he

> was a fighter to the end. He didn't want to go. He looked like he was from a

> concentration camp, he was so bony, no one knew where he was getting the

energy

> to keep on breathing, but he kept on going. He had a will to live.

> Last night we had quality time together. They moved Jim into a private room

and

> I could talk to him and we did body language to show our love. I winked at him

> and he raised his eyebrows up and down, I patted my heart to let him know I

> loved him and when I went to put some vasiline on his dry lips, he pursed his

> lips and kissed my finger and put his lips togeter and said, The B sound. It

> sounded like Bye to me. It broke my heart. It was just like Jim to do

something

> so touching in a moment of sorrow.

>

> He touched so many residents and staff at the nursing home with his

personality

> that they did a respectful ceremony for him as he went out the door for the

last

> time. Usually, the coroner comes and takes the people out on a gurney with a

> cover over them and residents are sitting in the hall, but the

> admin. staff cleared everyone out of the hall and not one person was sitting

in

> the hall and the staff went up and down the hall and closed all the doors to

the

> rooms in the hall that Jim would pass through and when Jim went down the hall

> the staff all stood in silence. I never saw them do that before to anyone and

> all the people that worked there said the samething. 

> Sharyn, Jim's daughter, came when I called her to let her know that her

dad had

> passed. She had planned to come at 10AM before my call. She had been there

most

> of the day before too. She was a real support and we both were tearful and

> helped each other through it. We both had a melt down when Jim passed through

> the hall for the last time. Jim waited to go the day after my birthday instead

> of on my birthday. The staff at the nursing home gave me a small party and

they

> all signed a birthday card. I was given a slice of cake with a candle on it,

so

> my birthday did not go unnoticed.

> Sharyn helped me clean out all Jim's belongings out of drawers and closets and

> pack them in the car to take home.

> I am staying at my mom's tonight, so I don't sit at home alone and reflect and

> have a melt down. My whole life for the past decade has been centered around

> Jim. I won't know what to do with all my free time.

> Thank you all for your kind words, concern and support.

> Love and Hugs,

> Jan Colello

> Husband, Jim dx w/LBD 2003 died January 22, 2011

>

>

>

>

>

[Guest guest]

Dearest Jan - I'm so sorry to hear that Jim is gone. I'm glad you were there

with him to the very end and that you & Sharyn helped each other in the end.

What a tribute that nursing home provided to Jim. Even up to the end he touched

so many lives positively. I'm sure no one will forget him there at the nursing

home. It is going to be awfully strange all this time you'll have on your hands.

Initially it will probably be a good time for you to spend time with your family

- nice long visits so you're not alone. We're here for you whenever you need us.

BIG HUGS to you....

>

> It is with a heavy heart that I tell you Jim died at 8:41AM Pacific

Time today.

> I was with him through the night. I stayed over for the last 3 nights at the

> nursing home. I only went home once to shower and change when Hospice sent a

> sitter to stay with Jim while I went home for awhile. He died peacefully, but

he

> was a fighter to the end. He didn't want to go. He looked like he was from a

> concentration camp, he was so bony, no one knew where he was getting the

energy

> to keep on breathing, but he kept on going. He had a will to live.

> Last night we had quality time together. They moved Jim into a private room

and

> I could talk to him and we did body language to show our love. I winked at him

> and he raised his eyebrows up and down, I patted my heart to let him know I

> loved him and when I went to put some vasiline on his dry lips, he pursed his

> lips and kissed my finger and put his lips togeter and said, The B sound. It

> sounded like Bye to me. It broke my heart. It was just like Jim to do

something

> so touching in a moment of sorrow.

>

> He touched so many residents and staff at the nursing home with his

personality

> that they did a respectful ceremony for him as he went out the door for the

last

> time. Usually, the coroner comes and takes the people out on a gurney with a

> cover over them and residents are sitting in the hall, but the

> admin. staff cleared everyone out of the hall and not one person was sitting

in

> the hall and the staff went up and down the hall and closed all the doors to

the

> rooms in the hall that Jim would pass through and when Jim went down the hall

> the staff all stood in silence. I never saw them do that before to anyone and

> all the people that worked there said the samething. 

> Sharyn, Jim's daughter, came when I called her to let her know that her

dad had

> passed. She had planned to come at 10AM before my call. She had been there

most

> of the day before too. She was a real support and we both were tearful and

> helped each other through it. We both had a melt down when Jim passed through

> the hall for the last time. Jim waited to go the day after my birthday instead

> of on my birthday. The staff at the nursing home gave me a small party and

they

> all signed a birthday card. I was given a slice of cake with a candle on it,

so

> my birthday did not go unnoticed.

> Sharyn helped me clean out all Jim's belongings out of drawers and closets and

> pack them in the car to take home.

> I am staying at my mom's tonight, so I don't sit at home alone and reflect and

> have a melt down. My whole life for the past decade has been centered around

> Jim. I won't know what to do with all my free time.

> Thank you all for your kind words, concern and support.

> Love and Hugs,

> Jan Colello

> Husband, Jim dx w/LBD 2003 died January 22, 2011

>

>

>

>

>

[Guest guest]

Dear Jan,

My thoughts are with you. Finally Jim is at peace and you were there with him

right to the end. Take care of yourself in the next few days and allow yourself

to grieve and cry and melt down as much as you need to.

Doris in Canada

>

> It is with a heavy heart that I tell you Jim died at 8:41AM Pacific

Time today.

> I was with him through the night. I stayed over for the last 3 nights at the

> nursing home. I only went home once to shower and change when Hospice sent a

> sitter to stay with Jim while I went home for awhile. He died peacefully, but

he

> was a fighter to the end. He didn't want to go. He looked like he was from a

> concentration camp, he was so bony, no one knew where he was getting the

energy

> to keep on breathing, but he kept on going. He had a will to live.

> Last night we had quality time together. They moved Jim into a private room

and

> I could talk to him and we did body language to show our love. I winked at him

> and he raised his eyebrows up and down, I patted my heart to let him know I

> loved him and when I went to put some vasiline on his dry lips, he pursed his

> lips and kissed my finger and put his lips togeter and said, The B sound. It

> sounded like Bye to me. It broke my heart. It was just like Jim to do

something

> so touching in a moment of sorrow.

>

> He touched so many residents and staff at the nursing home with his

personality

> that they did a respectful ceremony for him as he went out the door for the

last

> time. Usually, the coroner comes and takes the people out on a gurney with a

> cover over them and residents are sitting in the hall, but the

> admin. staff cleared everyone out of the hall and not one person was sitting

in

> the hall and the staff went up and down the hall and closed all the doors to

the

> rooms in the hall that Jim would pass through and when Jim went down the hall

> the staff all stood in silence. I never saw them do that before to anyone and

> all the people that worked there said the samething. 

> Sharyn, Jim's daughter, came when I called her to let her know that her

dad had

> passed. She had planned to come at 10AM before my call. She had been there

most

> of the day before too. She was a real support and we both were tearful and

> helped each other through it. We both had a melt down when Jim passed through

> the hall for the last time. Jim waited to go the day after my birthday instead

> of on my birthday. The staff at the nursing home gave me a small party and

they

> all signed a birthday card. I was given a slice of cake with a candle on it,

so

> my birthday did not go unnoticed.

> Sharyn helped me clean out all Jim's belongings out of drawers and closets and

> pack them in the car to take home.

> I am staying at my mom's tonight, so I don't sit at home alone and reflect and

> have a melt down. My whole life for the past decade has been centered around

> Jim. I won't know what to do with all my free time.

> Thank you all for your kind words, concern and support.

> Love and Hugs,

> Jan Colello

> Husband, Jim dx w/LBD 2003 died January 22, 2011

>

>

>

>

>

[Guest guest]

Jan,

My thoughts and prayers are with you at this time.

Diane Carbo

http://www.aginghomehealthcare.com

http://www.dementiacaresecrets.com

-- In LBDcaregivers , Janet Colello wrote:

>

> It is with a heavy heart�that I tell you�Jim died at 8:41AM Pacific

Time�today.

> I was with him through the night. I stayed over for the last 3 nights at the

> nursing home. I only went home once to shower and change when Hospice sent a

> sitter to stay with�Jim while I went home for awhile. He died peacefully,

but he

> was a fighter to the end. He didn't want to go. He looked like he was from a

> concentration camp, he was so bony, no one knew where he was getting the

energy

> to keep on breathing, but he kept on going. He had a will to live.

> Last night we had quality time together. They moved Jim into a private room

and

> I could talk to him and we did body language to�show our love. I winked at

him

> and he raised his eyebrows up and down, I patted my heart to let him know I

> loved him and when I went to put some vasiline on his dry lips, he pursed his

> lips and kissed my finger and put his lips togeter and said, The B sound. It

> sounded like Bye to me. It broke my heart. It was just like�Jim to do

something

> so�touching in a moment of sorrow.

>

> He touched so many residents and staff at the nursing home with his

personality

> that they did a respectful ceremony for him as he went out the door for the

last

> time. Usually, the coroner comes and takes the people out on a gurney with a

> cover over them and residents are sitting in the hall, but the

> admin.�staff�cleared everyone out of the hall and not one person was

sitting in

> the hall and the staff went�up and down the hall and closed all the doors to

the

> rooms in the hall that�Jim would pass�through�and when�Jim went down

the hall

> the staff all stood in silence. I never saw them do that before to anyone and

> all the people�that worked there said the samething.�

> Sharyn, Jim's daughter,�came when I called her to let her know that her

dad�had

> passed. She had planned to come at 10AM before my call. She had been there

most

> of the day before too.�She was a real support and we both were tearful and

> helped each other through it. We both had a melt down when�Jim passed

through

> the hall for the last time.�Jim waited to go the day after my birthday

instead

> of on�my birthday. The staff at the nursing home gave me a small party and

they

> all signed a birthday card. I was given a slice of cake with a candle on it,

so

> my birthday did not go unnoticed.

> Sharyn helped me clean out all�Jim's belongings out of drawers and closets

and

> pack them in the car to take home.

> I am staying at my mom's tonight, so I don't sit at home alone�and reflect

and

> have a melt down. My whole life for the past decade has been centered around

> Jim. I won't know what to do with all my free time.

> Thank you all for your kind words, concern and support.

> Love and Hugs,

> Jan Colello

> Husband, Jim dx w/LBD 2003 died January 22, 2011

>

>

>

>

>

[Guest guest]

Dear Jan, I am so sorry to hear about Jim passing. I am glad you had some

special time at the end. It will leave you with some happy memories in sight of

this terrible disease. God be with you and family.

________________________________

To: LBDcaregivers

Sent: Sat, January 22, 2011 3:50:09 PM

Subject: Jim is gone : (

 

It is with a heavy heart that I tell you Jim died at 8:41AM Pacific

Time today.

I was with him through the night. I stayed over for the last 3 nights at the

nursing home. I only went home once to shower and change when Hospice sent a

sitter to stay with Jim while I went home for awhile. He died peacefully, but

he

was a fighter to the end. He didn't want to go. He looked like he was from a

concentration camp, he was so bony, no one knew where he was getting the energy

to keep on breathing, but he kept on going. He had a will to live.

Last night we had quality time together. They moved Jim into a private room and

I could talk to him and we did body language to show our love. I winked at him

and he raised his eyebrows up and down, I patted my heart to let him know I

loved him and when I went to put some vasiline on his dry lips, he pursed his

lips and kissed my finger and put his lips togeter and said, The B sound. It

sounded like Bye to me. It broke my heart. It was just like Jim to do something

so touching in a moment of sorrow.

He touched so many residents and staff at the nursing home with his personality

that they did a respectful ceremony for him as he went out the door for the last

time. Usually, the coroner comes and takes the people out on a gurney with a

cover over them and residents are sitting in the hall, but the

admin. staff cleared everyone out of the hall and not one person was sitting

in

the hall and the staff went up and down the hall and closed all the doors to

the

rooms in the hall that Jim would pass through and when Jim went down the

hall

the staff all stood in silence. I never saw them do that before to anyone and

all the people that worked there said the samething. 

Sharyn, Jim's daughter, came when I called her to let her know that her

dad had

passed. She had planned to come at 10AM before my call. She had been there most

of the day before too. She was a real support and we both were tearful and

helped each other through it. We both had a melt down when Jim passed through

the hall for the last time. Jim waited to go the day after my birthday instead

of on my birthday. The staff at the nursing home gave me a small party and they

all signed a birthday card. I was given a slice of cake with a candle on it, so

my birthday did not go unnoticed.

Sharyn helped me clean out all Jim's belongings out of drawers and closets and

pack them in the car to take home.

I am staying at my mom's tonight, so I don't sit at home alone and reflect and

have a melt down. My whole life for the past decade has been centered around

Jim. I won't know what to do with all my free time.

Thank you all for your kind words, concern and support.

Love and Hugs,

Jan Colello

Husband, Jim dx w/LBD 2003 died January 22, 2011

[Guest guest]

Dear Jan:You have my deepest sympathy for the loss of your husband.  Your

letter was so incredibly touching and loving and I am so glad you were able to

have that special private time with Jim which I know meant everything to both of

you.  Please take good care of yourself and take all the time you need to

grieve and remember him.  It sounds like you were the most wonderful caregiver

in the world.  May God bless you and give you peace and comfort.  Sincerely,

 Patti , dtr of Pat age 94, dx Sept. '09, and living in a care center in

West Central OH.  

Subject: Jim is gone : (

To: LBDcaregivers

Date: Saturday, January 22, 2011, 4:50 PM

 

It is with a heavy heart that I tell you Jim died at 8:41AM Pacific

Time today.

I was with him through the night. I stayed over for the last 3 nights at the

nursing home. I only went home once to shower and change when Hospice sent a

sitter to stay with Jim while I went home for awhile. He died peacefully, but

he

was a fighter to the end. He didn't want to go. He looked like he was from a

concentration camp, he was so bony, no one knew where he was getting the energy

to keep on breathing, but he kept on going. He had a will to live.

Last night we had quality time together. They moved Jim into a private room and

I could talk to him and we did body language to show our love. I winked at him

and he raised his eyebrows up and down, I patted my heart to let him know I

loved him and when I went to put some vasiline on his dry lips, he pursed his

lips and kissed my finger and put his lips togeter and said, The B sound. It

sounded like Bye to me. It broke my heart. It was just like Jim to do something

so touching in a moment of sorrow.

He touched so many residents and staff at the nursing home with his personality

that they did a respectful ceremony for him as he went out the door for the last

time. Usually, the coroner comes and takes the people out on a gurney with a

cover over them and residents are sitting in the hall, but the

admin. staff cleared everyone out of the hall and not one person was sitting

in

the hall and the staff went up and down the hall and closed all the doors to

the

rooms in the hall that Jim would pass through and when Jim went down the

hall

the staff all stood in silence. I never saw them do that before to anyone and

all the people that worked there said the samething. 

Sharyn, Jim's daughter, came when I called her to let her know that her

dad had

passed. She had planned to come at 10AM before my call. She had been there most

of the day before too. She was a real support and we both were tearful and

helped each other through it. We both had a melt down when Jim passed through

the hall for the last time. Jim waited to go the day after my birthday instead

of on my birthday. The staff at the nursing home gave me a small party and they

all signed a birthday card. I was given a slice of cake with a candle on it, so

my birthday did not go unnoticed.

Sharyn helped me clean out all Jim's belongings out of drawers and closets and

pack them in the car to take home.

I am staying at my mom's tonight, so I don't sit at home alone and reflect and

have a melt down. My whole life for the past decade has been centered around

Jim. I won't know what to do with all my free time.

Thank you all for your kind words, concern and support.

Love and Hugs,

Jan Colello

Husband, Jim dx w/LBD 2003 died January 22, 2011

[Guest guest]

Dear Jan,

Your story brought tears to my eyes - as it should. My heart goes out to

you as you now discover.....Courage isn't everything it's cranked up to

be.

With tenderness,

Sue in WV and Harry from afar

>

> It is with a heavy heart that I tell you Jim died at 8:41AM Pacific

Time today.

> I was with him through the night. I stayed over for the last 3 nights

at the

> nursing home. I only went home once to shower and change when Hospice

sent a

> sitter to stay with Jim while I went home for awhile. He died

peacefully, but he

> was a fighter to the end. He didn't want to go. He looked like he was

from a

> concentration camp, he was so bony, no one knew where he was getting

the energy

> to keep on breathing, but he kept on going. He had a will to live.

> Last night we had quality time together. They moved Jim into a private

room and

> I could talk to him and we did body language to show our love. I

winked at him

> and he raised his eyebrows up and down, I patted my heart to let him

know I

> loved him and when I went to put some vasiline on his dry lips, he

pursed his

> lips and kissed my finger and put his lips togeter and said, The B

sound. It

> sounded like Bye to me. It broke my heart. It was just like Jim to do

something

> so touching in a moment of sorrow.

>

> He touched so many residents and staff at the nursing home with his

personality

> that they did a respectful ceremony for him as he went out the door

for the last

> time. Usually, the coroner comes and takes the people out on a gurney

with a

> cover over them and residents are sitting in the hall, but the

> admin. staff cleared everyone out of the hall and not one person was

sitting in

> the hall and the staff went up and down the hall and closed all the

doors to the

> rooms in the hall that Jim would pass through and when Jim went down

the hall

> the staff all stood in silence. I never saw them do that before to

anyone and

> all the people that worked there said the samething.

> Sharyn, Jim's daughter, came when I called her to let her know that

her dad had

> passed. She had planned to come at 10AM before my call. She had been

there most

> of the day before too. She was a real support and we both were tearful

and

> helped each other through it. We both had a melt down when Jim passed

through

> the hall for the last time. Jim waited to go the day after my birthday

instead

> of on my birthday. The staff at the nursing home gave me a small party

and they

> all signed a birthday card. I was given a slice of cake with a candle

on it, so

> my birthday did not go unnoticed.

> Sharyn helped me clean out all Jim's belongings out of drawers and

closets and

> pack them in the car to take home.

> I am staying at my mom's tonight, so I don't sit at home alone and

reflect and

> have a melt down. My whole life for the past decade has been centered

around

> Jim. I won't know what to do with all my free time.

> Thank you all for your kind words, concern and support.

> Love and Hugs,

> Jan Colello

> Husband, Jim dx w/LBD 2003 died January 22, 2011

>

>

>

>

>

[Guest guest]

Dear Jan,

 

I have not been to the LBDcaregivers group for a very long time, but today I

received notice about the passing of your Jim.  Jan, I am so sorry for your

loss.  You stood out among caregivers and gave so much support to so many on

this site that I wanted to personally thank you and send you a huge hug.  My

mother (Marguerite Grant otherwise known as Maggie) was diagnosed with LBD in

2002 and passed in Dec 2006.  We met at the conference in Washington DC after

many posts being exchanged on here and I consider you one of many friends from

the LBD experience.  (Good things do come out of bad).  You have been such an

inspiration back when my mom was alive and NOW.  You personally showed me how

to stand up for and when necessary, fight for what was right for our loved one

as you did for Jim.  You stood by him through many struggles, when others would

have given up.  Like him, you fought the good fight and gave him everything you

could.  He will

know that forever. And you will know in your heart that there was

nothing more that you could have done for him, as we all do, who have

travelled down that road with you.

 

Please be kind to yourself.  You will be extremely sad and also relieved. You

will feel lost as so much of caregiving filled your life, day after day.  It

took me awhile.  I had to work through the anger and resentment of having to

carry the burden of Mom's caregiving alone, the frustration of my sister

suddenly having enough time to be concerned about Mom's estate and the

unfortunate event of my aunt stepping down as executrix to my mom's will, which

created the situation of all three of us having to work together to complete the

task of settling the estate.  The battle of the family cottage and selling of

my mom's home and then my own, after so many years of living there next door

to her, was no easy chore.  But life goes on and I have finally forgiven my

siblings.  I can talk about it without getting upset and I no longer feel the

need to go on and on about the terrible disease that took my mother from me.  I

can finally say I have

recovered and I hope that as you move in that direction that you will once

again find happiness.  Jim will always be there in your heart as will my

mother.

 

Much love to my LBD friend, you are in my thought and prayers,

 

Kathy in Toronto 

 

Subject: Jim is gone : (

To: LBDcaregivers

Date: Saturday, January 22, 2011, 4:50 PM

 

It is with a heavy heart that I tell you Jim died at 8:41AM Pacific

Time today.

I was with him through the night. I stayed over for the last 3 nights at the

nursing home. I only went home once to shower and change when Hospice sent a

sitter to stay with Jim while I went home for awhile. He died peacefully, but

he

was a fighter to the end. He didn't want to go. He looked like he was from a

concentration camp, he was so bony, no one knew where he was getting the energy

to keep on breathing, but he kept on going. He had a will to live.

Last night we had quality time together. They moved Jim into a private room and

I could talk to him and we did body language to show our love. I winked at him

and he raised his eyebrows up and down, I patted my heart to let him know I

loved him and when I went to put some vasiline on his dry lips, he pursed his

lips and kissed my finger and put his lips togeter and said, The B sound. It

sounded like Bye to me. It broke my heart. It was just like Jim to do something

so touching in a moment of sorrow.

He touched so many residents and staff at the nursing home with his personality

that they did a respectful ceremony for him as he went out the door for the last

time. Usually, the coroner comes and takes the people out on a gurney with a

cover over them and residents are sitting in the hall, but the

admin. staff cleared everyone out of the hall and not one person was sitting

in

the hall and the staff went up and down the hall and closed all the doors to

the

rooms in the hall that Jim would pass through and when Jim went down the

hall

the staff all stood in silence. I never saw them do that before to anyone and

all the people that worked there said the samething. 

Sharyn, Jim's daughter, came when I called her to let her know that her

dad had

passed. She had planned to come at 10AM before my call. She had been there most

of the day before too. She was a real support and we both were tearful and

helped each other through it. We both had a melt down when Jim passed through

the hall for the last time. Jim waited to go the day after my birthday instead

of on my birthday. The staff at the nursing home gave me a small party and they

all signed a birthday card. I was given a slice of cake with a candle on it, so

my birthday did not go unnoticed.

Sharyn helped me clean out all Jim's belongings out of drawers and closets and

pack them in the car to take home.

I am staying at my mom's tonight, so I don't sit at home alone and reflect and

have a melt down. My whole life for the past decade has been centered around

Jim. I won't know what to do with all my free time.

Thank you all for your kind words, concern and support.

Love and Hugs,

Jan Colello

Husband, Jim dx w/LBD 2003 died January 22, 2011

[Guest guest]

Dearest Jan, my heart is heavy for you. Tears for you came as I read your

letter. It is so painful, yet somehow by the Grace of God we get through it.

That was love of the highest order for Jim to wait to go until after your

birthday. And, your communicating together was very touching.

Thanks darling lady for sharing your last touching moments with Him.

You are a real trouper, and have more strength than you know. You have proven it

for the last ten years.

You have no idea how many people you have helped with your love and grace in

caring for Jim. You can think of perhaps a thousand on the List that you helped,

just as you helped me for years, and then you have friends, as well as chruch

acquaintences, and staff at the nursing home. So dear hang on to your

outreaching spirit and continue to help others.

I love you more than I can ever express,

Imogene, with many hugs and a big shoulder to cry on.

>

> It is with a heavy heart that I tell you Jim died at 8:41AM Pacific

Time today.

> I was with him through the night. I stayed over for the last 3 nights at the

> nursing home. I only went home once to shower and change when Hospice sent a

> sitter to stay with Jim while I went home for awhile. He died peacefully, but

he

> was a fighter to the end. He didn't want to go. He looked like he was from a

> concentration camp, he was so bony, no one knew where he was getting the

energy

> to keep on breathing, but he kept on going. He had a will to live.

> Last night we had quality time together. They moved Jim into a private room

and

> I could talk to him and we did body language to show our love. I winked at him

> and he raised his eyebrows up and down, I patted my heart to let him know I

> loved him and when I went to put some vasiline on his dry lips, he pursed his

> lips and kissed my finger and put his lips togeter and said, The B sound. It

> sounded like Bye to me. It broke my heart. It was just like Jim to do

something

> so touching in a moment of sorrow.

>

> He touched so many residents and staff at the nursing home with his

personality

> that they did a respectful ceremony for him as he went out the door for the

last

> time. Usually, the coroner comes and takes the people out on a gurney with a

> cover over them and residents are sitting in the hall, but the

> admin. staff cleared everyone out of the hall and not one person was sitting

in

> the hall and the staff went up and down the hall and closed all the doors to

the

> rooms in the hall that Jim would pass through and when Jim went down the hall

> the staff all stood in silence. I never saw them do that before to anyone and

> all the people that worked there said the samething. 

> Sharyn, Jim's daughter, came when I called her to let her know that her

dad had

> passed. She had planned to come at 10AM before my call. She had been there

most

> of the day before too. She was a real support and we both were tearful and

> helped each other through it. We both had a melt down when Jim passed through

> the hall for the last time. Jim waited to go the day after my birthday instead

> of on my birthday. The staff at the nursing home gave me a small party and

they

> all signed a birthday card. I was given a slice of cake with a candle on it,

so

> my birthday did not go unnoticed.

> Sharyn helped me clean out all Jim's belongings out of drawers and closets and

> pack them in the car to take home.

> I am staying at my mom's tonight, so I don't sit at home alone and reflect and

> have a melt down. My whole life for the past decade has been centered around

> Jim. I won't know what to do with all my free time.

> Thank you all for your kind words, concern and support.

> Love and Hugs,

> Jan Colello

> Husband, Jim dx w/LBD 2003 died January 22, 2011

>

>

>

>

>

[Guest guest]

I was so glad to hear that Jim waited until your birthday was over to leave you.

It wouldn't have been a great birthday for the next years. As it is, your

birthday will stand out in your mind.

I am so sorry when we got the news. You and Jim have been with us forever. I can

still hear him wishing us hello when we had the 5 year gathering.

It is going to be strange for you as you grieve, I am sure. We are here if you

need us or anyone as you can tell by the many massages you got on this list.

You not only cared for Jim, but many other caregivers here got good info in

their caregiving, from you.

Take care of yourself. I am glad his daughter shared those last moments with

you and Jim.

Hugs,

Donna R

Cared for Mom 3 years in my home and the last year at a nh. She passed away

from LBD in 2002.

Jim is gone : (

It is with a heavy heart�that I tell you�Jim died at 8:41AM Pacific

Time�today.

I was with him through the night. I stayed over for the last 3 nights at the

nursing home. I only went home once to shower and change when Hospice sent a

sitter to stay with�Jim while I went home for awhile. He died peacefully, but

he

was a fighter to the end. He didn't want to go. He looked like he was from a

concentration camp, he was so bony, no one knew where he was getting the energy

to keep on breathing, but he kept on going. He had a will to live.

Last night we had quality time together. They moved Jim into a private room and

I could talk to him and we did body language to�show our love. I winked at him

and he raised his eyebrows up and down, I patted my heart to let him know I

loved him and when I went to put some vasiline on his dry lips, he pursed his

lips and kissed my finger and put his lips togeter and said, The B sound. It

sounded like Bye to me. It broke my heart. It was just like�Jim to do

something

so�touching in a moment of sorrow.

He touched so many residents and staff at the nursing home with his personality

that they did a respectful ceremony for him as he went out the door for the last

time. Usually, the coroner comes and takes the people out on a gurney with a

cover over them and residents are sitting in the hall, but the

admin.�staff�cleared everyone out of the hall and not one person was sitting

in

the hall and the staff went�up and down the hall and closed all the doors to

the

rooms in the hall that�Jim would pass�through�and when�Jim went down the

hall

the staff all stood in silence. I never saw them do that before to anyone and

all the people�that worked there said the samething.�

Sharyn, Jim's daughter,�came when I called her to let her know that her

dad�had

passed. She had planned to come at 10AM before my call. She had been there most

of the day before too.�She was a real support and we both were tearful and

helped each other through it. We both had a melt down when�Jim passed through

the hall for the last time.�Jim waited to go the day after my birthday instead

of on�my birthday. The staff at the nursing home gave me a small party and

they

all signed a birthday card. I was given a slice of cake with a candle on it, so

my birthday did not go unnoticed.

Sharyn helped me clean out all�Jim's belongings out of drawers and closets and

pack them in the car to take home.

I am staying at my mom's tonight, so I don't sit at home alone�and reflect and

have a melt down. My whole life for the past decade has been centered around

Jim. I won't know what to do with all my free time.

Thank you all for your kind words, concern and support.

Love and Hugs,

Jan Colello

Husband, Jim dx w/LBD 2003 died January 22, 2011