Re: My Sister - Update - Brain Donation

[Guest guest]

Dear

I can only endorse what Robin says and encourage all of you to consider

donating brain tissue for analysis and research.

I have found it very encouraging, since Jim died, to know that his brain

tissue is helping researchers to understand the cause of this insidious

disease and also to assist research in the development of a solution and

treatment.

It was also comforting to discover that the clinical diagnosis of LBD was

confirmed after the brain analysis.

I don't know what the situation is in the US, but here in Sydney I did not

need Jim's permission to donate his brain. I was glad about this because I

would have found it difficult to discuss this with him. I was encouraged to

discuss it with family and my son was also very happy about the idea.

I have been treated with compassion and understanding by everyone working in

the Brain Donor Programme.

Warmest wishes

Elaine

Elaine (61) from Sydney Australia

Carer for husband Jim (82) who died peacefully in hospital on 12th February

2011.

Brain analysis, as a result of brain donation, confirmed the diagnosis of

LBD

Posted by: " rriddle_travel "

<mailto:rriddle@...?Subject=%20Re%3A%20My%20Sister%20-%20Upda

te> rriddle@... <http://profiles.yahoo.com/rriddle_travel>

rriddle_travel

Wed Jun 29, 2011 1:52 pm (PDT)

,

I think it is likely that your sister's body is shutting down and is in the

middle of a very natural dying process.

I don't believe that any knowledge of LBD is necessary for hospice to do its

job in making sure that your sister's passing is painfree and peaceful, and

that the family is supported.

You may benefit from this youtube video I posted about here:

<http://forum.psp.org/viewtopic.php?p=47297>

http://forum.psp.org/viewtopic.php?p=47297#

It addresses head-on the issue of " starving to death. "

If you intend to donate your sister's brain such that the diagnosis can be

confirmed and the tissue can be used for medical research, I encourage you

to make those arrangements now. Less than 35% of the time does a clinical

LBD diagnosis get confirmed upon brain autopsy; less than 25% of the time if

it's LBD mixed with AD. I volunteer my services to help families make these

arrangements. They should be made as much in advance as possible.

Best wishes,

Robin