Re: introduction from new member susan - Genetics??

[Guest guest]

Whether it's genetic or not? That question has not been answered. My family is

actively involved in research due to the following:

My father died of complications of LBD in 1996.

His mother suffered for several years with " organic brain syndrome with paranoid

mentation " .

My 61 year old sister has been diagnosed with LBD for the past four years and

exhibiting symptoms for the past 10 years.

My 51 year old brother has recently been diagnosed with Parkinson's Disease.

My 78 year old, paternal first cousin has had Parkinson's Disease for the past 6

years.

We are part of genetic studies at the VA of Puget Sound/University of Washington

Udall Center in Seattle and Emory University in Atlanta. To date, my entire

generation is working with these researchers to see if we may hold some of the

answers. Nothing so far.

From my perspective, we must have some genetic anomaly that makes us

susceptible to environmental factors that work together to cause this family of

diseases (alpha synuclein diseases).

Those of us that have the opportunity to participate in research, I hope you do.

Without us, the research community cannot come up with the answers.

Good luck to you and your family.

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> hello everyone,

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> I joined several days ago but have not felt well so im slow saying hi.

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> im age 68 and have multiple sclerosis. so i get under the weather alot.

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> my sister who is seven years older was recently diagnosed with dementia , lewy

bodies type .

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> she became psychotic several weeks ago after telling me she had been seeing

people in her home at night though fully awake. she seemed undisturbed about

this until about a month ago when she became suddenly fearful and totally out of

it. the police and 911 were called by her and they took her to the hospital. at

that time she had been having memory problems but was ok walking by herself,

driving and no incontinence but only days after her admission she was wheelchair

bound , unable to hardly walk and experiencing incontinence. i can see the

mental stuff coming on this suddenly but physical symptoms coming on this

dramatically over just a few days seems very hard to believe yet the nursing

memory care unit shes now in say its typical of lewy bodies.

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> i would be glad to have any members here address this if they can and also

since my mom died of regular alzheimers in her late 80s how much likely will it

be i get this too?

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> any information is welcome. im sure i will ask more questions as i go along.

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> i wondered if lewy bodies is genetic? i do not know any persons in my family

who had this. sincerely susan

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