Guest guest Posted April 6, 2011 Report Share Posted April 6, 2011 Just wanted to let everyone how my sister, is doing. Not so good. She can't walk anymore, maybe a couple of steps with a person on each side. She says she is in constant pain with her neck, back, legs. About once or twice a week she will eat a half way decent meal, the other days very little. She sleeps a lot. When she is awake she is constantly calling out for someone, usually all the members of our family. She still knows us and at times can carry on a very short conversation. We do have hospice and they are wonderful. They are going to try to get some volunteers to come sit with her during the day, since we all work. She has a lot of problems with constipation, usually has to have an enema once a week. She's averaging a UTI about once a month. She's been on antibiotics for over a week for a UTI, but sometimes she'll feel the need to go to the bathroom and when we get her there she can't go, get her back to bed or her chair and she wants to go again. When we take her to the bathroom, and it takes two people, she usually goes semi-unconscious on us. She gets a blank stare, can't talk and sometimes heavy breathing almost a snoring sound. They have told us this is a drop in oxygen levels or blood pressure. When we lay her down, she comes back around. The past week it seems it is taking a little longer for her to come around. She says she wants to go to heaven. As a family, we don't want her to suffer anymore. I know everyone is different, but does anyone know where we are in this awful disease? Thanks Quote Link to comment Share on other sites More sharing options...
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