Guest guest Posted April 19, 2011 Report Share Posted April 19, 2011 Hi I just wanted to say thank you for the welcome message with links to all the information. My mum (72) has recently been diagnosed with LBD and I am finding it frustrating that I haven't been given much information at all by the doctors. The links are therefore really useful. Mum is in the early stages so is still relatively independent. However, she does have regular hallucinations and can get frustrated and agressive. She lives in quite a large house an hour and a half away from me so we have started looking at moving her closer to where I live (as her only child) so I can pop in to see her every day and when she's distressed. I am worried, however, that the move will disorientate her. On the other hand this is better than her being distressed alone. The psychiatrist put her on donepezil tablets but they made no difference apart from upsetting her tummy. We are now waiting to hear what they propose as the 'way forward'. I took her to her GP at the end of December (against her wishes) to try to get some help for her. However, we are now in April and we're no further forward. Has anyone else had experience of NHS support in the UK? Should I have low expectations and contact a private agency? Quote Link to comment Share on other sites More sharing options...
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