Natasha

April 19, 2011

Dear Natasha

Your nan is a very lucky lady to have you caring for her in such a loving and

consistent way. Thank you for visiting her on a daily basis. It must be so

difficult to see your nan so unhappy and it must be so hard for her as well,

being moved to a new location and being so scared about what might be happening.

I think it is important that you become her advocate, especially in the ways

suggested by - to find out what medication she is on and to double

check if this medication is suitable for people with LBD.

The files and links on the website contain lots of information

91237619/

I can really recommend the information written by Dr Bradley Boeve. I have found

his articles to be very helpful.

Many doctors don't fully understand LBD and if you were able to print some of Dr

Boeve's articles and give to the doctors and staff at the home, they may

hopefully appreciate this. My own GP was so appreciative of the information I

gave him that he said to me once " I'm not charging you for today's visit because

I have learnt more from you than you have from me " .

There is another article that was written by a caregiver for the staff of a

nursing home that was written from the point of view of a patient with LBD. I

cannot find it on the website at the moment but I will send it to you via your

email address as I have a copy on my computer.

Hang in there. It is such a tough job you are doing but if you put yourself in

your nan's shoes, I'm sure you will gain strength from knowing that you are

doing a very important job for her. I know that if I were in the same place as

your nan, I would be very grateful that I had such a loving granddaughter.

Elaine, from Sydney Australia

who cared for her husband Jim until he died on 12th February 2011

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