Re: Re: Judy/ Carbi-levedopa ?

August 13, 2011

Hi nan

Thanks for your post - I have to say that I feel badly about your husband but on

the other hand I agree that seeing a loves one living in lewy land can be

torture not only for the loved one but also the family - in this case mostly my

bro and I!

My brother and I actually say even when things are at their worse that we pray

for no falls or fractures - since from past experience that is even worse !!

Thanks for the support!

Judy R. Strauss LMSW PhD

Lead Faculty

University of Phoenix

Jersey City Campus

100 Town Square Place

|Jersey City, NJ 07310

Cell-

Email- Jrstr@...

> According to my husband's neuro team, because he was in pretty good health

even with serious LBD present, that he could live for years unless he developed

an infection or some event took place. A couple of months later he fell, broke

his hip, had surgery, had a massive heart attack and died. I had been preparing

myself for several more years. It was, at the end, too fast and utterly

unexpected. We wish for the end, but we wish for the end of Lewy...not the end

of our loved one. The picture of him as a strong, vibrant man is beginning to

reemerge in my thoughs. For a while, all I would see was the ravaged, gaunt

skeleton of the man he was at the end. The pictures from better times are

comforting. Nan

>

> > > >

> > > > > , choking does happen to many people at the later stages of

the disease unfortunately. Does it happen only when being fed? Many times,

choking can happen at the very late stages as the muscles in the tongue and

throat are not working properly due to the Parkinsonism. Saliva can pool

somewhat in the throat while sleeping as the person doesn't swallow as often

during sleep. However, I believe you are speaking about it happening during a

meal. My suggestion is to feed as slowly as possible and wait till each small

spoonful is swallowed before putting more into the mouth. Have the spoon touch

the tonque and wait till the person closes their mouth to take it and swallow

each time, instead of just pushing the food in. I hope this helps, Norma

> > > > >

> > > >

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