Re: questions about meds, agression, etc.

[Guest guest]

Hi ,

Some of our LO’s have bad reactions to this type of med. How about taking him

off this med and trying a low dose of seroquel instead?

From: rayner.erin

Sent: Thursday, June 23, 2011 7:26 AM

To: LBDcaregivers

Subject: questions about meds, agression, etc.

Hi all-

Some background: My dad was dignosed with LBD reciently, but has had it for

about 5-7 yrs in our opinion and is prob in the last stages. He can only walk

assisted on both sides as his parkinsonisms are very prononced. He only whispers

and nothing really makes sence. This biggest problem is his confussion and

agitation that leads to agression. In the last three weeks he had been in two

dementia special care units and in the hospital twice. He was put in hospital

the first time after he riped a hand rail off and started banging the wall (he

still can be very strong when he wants) His Clomazapan was increased and then he

could not walk and sent to hospital, where he had to be restrained. They

stabolized his meds and we moved him to another dementia unit, with in 12 hours

he had hit an attendent in the face. I should say that he has NEVER hit someone

before, a very passive man. After that he was Baker acted, 72 hour invol hold in

a behavior unit. He is currently still there on day 5. He seems to be doing

better. His meds have been stabolized again and he has had no aggressive

outburst. His current meds are 1 celex in am, .5 mg clomazapam with breakfast,

lunch and dinner and 1 mg before bed around 8 pm and 1 trazadone before bed as

well. Also on 10 ml lactalose to help with constipayion.. I know Clomazapam is a

benzo, but seems to be the only sleep med he can tolerate. He also has

depression, diganosed 20 yrs ago, and REM sleep disorder diagnosed a yr ago.

What are others experience with aggression, is it a phase that will pass? It is

soo unlike him. But making it impossible to have a consistant living experience.

What are your experiences with the meds he is on?

Any suggestions of where to look to find a place for him to live that can povide

the meds on time and able to handle the agression? He can not live at home as my

mother in law has health issues as well and I have a 2 and 3 yr old and would

not be able to care for him. The agression makes it very had as well, as we are

scared for his and others wellbeing.

Anything you can help with would be great.

[Guest guest]

Thanks for your reply,  We tried seroquel a few months ago and he reacted

poorly.  I was not here to see the reaction,  but my stepmother said he was

unresponsive for a few days, and took 30 days to get back to baseline.

To: LBDcaregivers

Sent: Thursday, 23 June 2011, 11:33

Subject: Re: questions about meds, agression, etc.

 

Hi ,

Some of our LO’s have bad reactions to this type of med. How about taking him

off this med and trying a low dose of seroquel instead?

From: rayner.erin

Sent: Thursday, June 23, 2011 7:26 AM

To: LBDcaregivers

Subject: questions about meds, agression, etc.

Hi all-

Some background: My dad was dignosed with LBD reciently, but has had it for

about 5-7 yrs in our opinion and is prob in the last stages. He can only walk

assisted on both sides as his parkinsonisms are very prononced. He only whispers

and nothing really makes sence. This biggest problem is his confussion and

agitation that leads to agression. In the last three weeks he had been in two

dementia special care units and in the hospital twice. He was put in hospital

the first time after he riped a hand rail off and started banging the wall (he

still can be very strong when he wants) His Clomazapan was increased and then he

could not walk and sent to hospital, where he had to be restrained. They

stabolized his meds and we moved him to another dementia unit, with in 12 hours

he had hit an attendent in the face. I should say that he has NEVER hit someone

before, a very passive man. After that he was Baker acted, 72 hour invol hold in

a behavior unit. He is

currently still there on day 5. He seems to be doing better. His meds have been

stabolized again and he has had no aggressive outburst. His current meds are 1

celex in am, .5 mg clomazapam with breakfast, lunch and dinner and 1 mg before

bed around 8 pm and 1 trazadone before bed as well. Also on 10 ml lactalose to

help with constipayion.. I know Clomazapam is a benzo, but seems to be the only

sleep med he can tolerate. He also has depression, diganosed 20 yrs ago, and REM

sleep disorder diagnosed a yr ago.

What are others experience with aggression, is it a phase that will pass? It is

soo unlike him. But making it impossible to have a consistant living experience.

What are your experiences with the meds he is on?

Any suggestions of where to look to find a place for him to live that can povide

the meds on time and able to handle the agression? He can not live at home as my

mother in law has health issues as well and I have a 2 and 3 yr old and would

not be able to care for him. The agression makes it very had as well, as we are

scared for his and others wellbeing.

Anything you can help with would be great.

[Guest guest]

Do you know how much they gave him at the time?

From: Rayner

Sent: Thursday, June 23, 2011 5:37 PM

To: LBDcaregivers

Subject: Re: questions about meds, agression, etc.

Thanks for your reply, We tried seroquel a few months ago and he reacted

poorly. I was not here to see the reaction, but my stepmother said he was

unresponsive for a few days, and took 30 days to get back to baseline.

From: gaat <mailto:gaat%40rogers.com>

To: mailto:LBDcaregivers%40yahoogroups.com

Sent: Thursday, 23 June 2011, 11:33

Subject: Re: questions about meds, agression, etc.

Hi ,

Some of our LO’s have bad reactions to this type of med. How about taking him

off this med and trying a low dose of seroquel instead?

From: rayner.erin

Sent: Thursday, June 23, 2011 7:26 AM

To: mailto:LBDcaregivers%40yahoogroups.com

Subject: questions about meds, agression, etc.

Hi all-

Some background: My dad was dignosed with LBD reciently, but has had it for

about 5-7 yrs in our opinion and is prob in the last stages. He can only walk

assisted on both sides as his parkinsonisms are very prononced. He only whispers

and nothing really makes sence. This biggest problem is his confussion and

agitation that leads to agression. In the last three weeks he had been in two

dementia special care units and in the hospital twice. He was put in hospital

the first time after he riped a hand rail off and started banging the wall (he

still can be very strong when he wants) His Clomazapan was increased and then he

could not walk and sent to hospital, where he had to be restrained. They

stabolized his meds and we moved him to another dementia unit, with in 12 hours

he had hit an attendent in the face. I should say that he has NEVER hit someone

before, a very passive man. After that he was Baker acted, 72 hour invol hold in

a behavior unit. He is

currently still there on day 5. He seems to be doing better. His meds have been

stabolized again and he has had no aggressive outburst. His current meds are 1

celex in am, .5 mg clomazapam with breakfast, lunch and dinner and 1 mg before

bed around 8 pm and 1 trazadone before bed as well. Also on 10 ml lactalose to

help with constipayion.. I know Clomazapam is a benzo, but seems to be the only

sleep med he can tolerate. He also has depression, diganosed 20 yrs ago, and REM

sleep disorder diagnosed a yr ago.

What are others experience with aggression, is it a phase that will pass? It is

soo unlike him. But making it impossible to have a consistant living experience.

What are your experiences with the meds he is on?

Any suggestions of where to look to find a place for him to live that can povide

the meds on time and able to handle the agression? He can not live at home as my

mother in law has health issues as well and I have a 2 and 3 yr old and would

not be able to care for him. The agression makes it very had as well, as we are

scared for his and others wellbeing.

Anything you can help with would be great.

[Guest guest]

Gaat-

I do not know the dose,  I will check with my stepmother tomorrow when I visit

Dad. Thanks again for your relpy.

To: LBDcaregivers

Sent: Thursday, 23 June 2011, 18:39

Subject: Re: questions about meds, agression, etc.

 

Do you know how much they gave him at the time?

From: Rayner

Sent: Thursday, June 23, 2011 5:37 PM

To: LBDcaregivers

Subject: Re: questions about meds, agression, etc.

Thanks for your reply, We tried seroquel a few months ago and he reacted poorly.

I was not here to see the reaction, but my stepmother said he was unresponsive

for a few days, and took 30 days to get back to baseline.

From: gaat <mailto:gaat%40rogers.com>

To: mailto:LBDcaregivers%40yahoogroups.com

Sent: Thursday, 23 June 2011, 11:33

Subject: Re: questions about meds, agression, etc.

Hi ,

Some of our LO’s have bad reactions to this type of med. How about taking him

off this med and trying a low dose of seroquel instead?

From: rayner.erin

Sent: Thursday, June 23, 2011 7:26 AM

To: mailto:LBDcaregivers%40yahoogroups.com

Subject: questions about meds, agression, etc.

Hi all-

Some background: My dad was dignosed with LBD reciently, but has had it for

about 5-7 yrs in our opinion and is prob in the last stages. He can only walk

assisted on both sides as his parkinsonisms are very prononced. He only whispers

and nothing really makes sence. This biggest problem is his confussion and

agitation that leads to agression. In the last three weeks he had been in two

dementia special care units and in the hospital twice. He was put in hospital

the first time after he riped a hand rail off and started banging the wall (he

still can be very strong when he wants) His Clomazapan was increased and then he

could not walk and sent to hospital, where he had to be restrained. They

stabolized his meds and we moved him to another dementia unit, with in 12 hours

he had hit an attendent in the face. I should say that he has NEVER hit someone

before, a very passive man. After that he was Baker acted, 72 hour invol hold in

a behavior unit. He is

currently still there on day 5. He seems to be doing better. His meds have been

stabolized again and he has had no aggressive outburst. His current meds are 1

celex in am, .5 mg clomazapam with breakfast, lunch and dinner and 1 mg before

bed around 8 pm and 1 trazadone before bed as well. Also on 10 ml lactalose to

help with constipayion.. I know Clomazapam is a benzo, but seems to be the only

sleep med he can tolerate. He also has depression, diganosed 20 yrs ago, and REM

sleep disorder diagnosed a yr ago.

What are others experience with aggression, is it a phase that will pass? It is

soo unlike him. But making it impossible to have a consistant living experience.

What are your experiences with the meds he is on?

Any suggestions of where to look to find a place for him to live that can povide

the meds on time and able to handle the agression? He can not live at home as my

mother in law has health issues as well and I have a 2 and 3 yr old and would

not be able to care for him. The agression makes it very had as well, as we are

scared for his and others wellbeing.

Anything you can help with would be great.