feeding tubes

[Guest guest]

we had planned on bringing daddy home oct 1 2005, we had everyting arranged for

hi to come home  he passed away on 9/25/05 it abuot killed me. daddy had signed

a dnr which is no aritficial ways to keep him alive.  i didnt have to maek the

decision he did.  but eventhough he had maded the decision, teh times he was

still able to eat he barely ate adn was losing weight fast. lbd was making him

lose it a whole lot faster thatn he could put on, adn even before he lost the

ability to eat, he would eat thousands fo calories a day adn still lose weight,

he would eat brunch, soup sandwish, or bacon and eggs. then eat a family size

package of cookies,  a big bag of chips,  tehn have a complete dinner, meat,

potatoes veggies bread, and then at 830 have ice cream and he still lost

weight.  lbd is awful i hated watching daddy disintergrate.  but at teh same

time he mind was gong to, he couldnt communitcate and barely acknowledged anyone

was there. 

i still miss him alot. 

i am so glad you are to keep your mom at home,  daddy had to go to nh after he

borke his hip. he never was able to walk again, as his lbd mind fought the brace

and his hip came out of ossocket, we couldnt redo teh surgery it wasnt worth

redoing surgery i hated him in the nh  but i just oculdnt even with donnies

help taek care of him post surgery l  sighhhhh  plase  enjoy your mom wihile

you can,  i now you are doing the best for her, and i can  tell yo obvoisly

love her very veyr much, she is lucky to have you.  hugs. sharon

Subject: Re: Re: Hi All

To: LBDcaregivers

Date: Tuesday, January 18, 2011, 9:09 PM

 

we do not have advanced directives here and my mom never had a chance to tell

us

about her wishes. she never realized she was sick. she always thought she was

perfectly fine. here in turkey, the relatives of the patient are asked to

decide

about the treatment if the patient is mentally ill. and i think it would be

horrible to watch her stop eating and drinking, lose weight and die in front of

my eyes. i would be happy to be with her a little longer. so i will definitely

let them put in the tubes. but you are right, nursing home is not the place for

a patient in that condition. that's way i think of keeping her at home till the

last moment.   

________________________________

To: LBDcaregivers

Sent: Wed, January 19, 2011 4:09:07 AM

Subject: Re: Hi All

 

We do have this here. It is used if the person has not requested 'no feeding

tubes.' That's why people here have Advanced Directives. All of us need to

decide how much intervention we want just to maintain the physical body when the

natural process of death is occurring. For myself, I have an advanced directive

that says no feeding tubes. I watched my friend's wife die with a feeding tube.

It was placed and she had another two years of life but the years were in a

nursing home and there was little pleasure in her life. She laid there and was

kept alive. She never ate again and she never really had any quality of life. At

the end, she was aspirating her own saliva so they had patches behind her ears

to dry out her mouth so there was no saliva. Eventually she died. I watched her

wither away and I knew I would not want that. Has your mother had a chance to

tell you what her wishes are?

>

> Hi All,

> My mom has also started having problems with swallowing lately.

> And her doctor told me that we have to consider placing PEG

> into her stomach in the very near future to protect her from having

> aspiration pnemonia. I am wondering why it is not used in USA.

> I wish you all strength in this journey.

> Ferhan

>

>

>

> ________________________________

>

> To: LBDcaregivers

> Sent: Tue, January 18, 2011 11:59:13 PM

> Subject: Re: Re: Hi All - Jan

>

>  

> Hi, Jan,

>

> My heart aches for you. When my dad reached the stage where he no longer

> could swallow, gave me the tip about using something cold to help

> Dad swallow his medicine. Seroquel was the only medicine that was helpful to

> Dad by that time and 's tip worked like a charm for him. I would

> get Dad those Frostys from 's, and stick the pill in a tiny bite which

> he would take. The consistency is somewhere between a milk shake and ice

> cream which he seemed to have an easier time with.

>

> My thoughts and prayers are with you and Jim. I know how difficult this

> time is for you. You have been an amazing advocate and caregiver for Jim,

> and you will always draw peace from that.

>

> Sending you big hugs with all my love,

>

> Piper

>

>

>

>

[Guest guest]

Ferhan, please know that we do use them in the U.S. It's a hard decision to

make but one that is personal and depends on the circumstances at the time.

Please know that the tube can be removed if the person begins eating again

(though I realize this may be unlikely). It really depends on how much you

perceive the person is still here with you and if you think it's best for the

person as well as for you. As for using it, know that it's very easy and

doesn't require much care. I can give you more information if you'd like. I

wish you well.

[Guest guest]

My dad had a PEG tube inserted January 2000 and it was removed April 2000. He

gained back all weight he had lost before the tube was inserted and went on to

live another 2 1/2 years. Sandie

Des Moines, IA

dad, Merle, passed away from LBD 9-20-02, age 65

----- feeding tubes

Date: Wed, 19 Jan 2011 14:36:01 -0000

Ferhan, please know that we do use them in the U.S. It's a hard decision to

make but one that is personal and depends on the circumstances at the time.

Please know that the tube can be removed if the person begins eating again

(though I realize this may be unlikely). It really depends on how much you

perceive the person is still here with you and if you think it's best for the

person as well as for you. As for using it, know that it's very easy and

doesn't require much care. I can give you more information if you'd like. I

wish you well.

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