Re: Dad's dying

[Guest guest]

Good luck Barbara, someone on one of the LBD sites was very helpful and

suggested the following booklet which I purchased:

http://www.gonefrommysight.com/goneFromMySight.html

I found it very informative, simple and straightforward. I am sure it will

answer many of your questions as well as prepare you for other behavioral

signals your Dad may be sending.

Hope you find it helpful.

God Bless

 

Jeff 

________________________________

To: LBDcaregivers

Sent: Thursday, July 28, 2011 10:03 AM

Subject: Dad's dying

 

But nobody can give me a timetable (of course). One day his hands are freezing

and his lips are blue and his BP is way down, next day he's warmed up and BP up

and he's semi-lucid. Next day he's talking gibberish all day. Is there some

sort of predictable pattern or is it just individual? Can I get a sense of

timing from the onset of certain symptoms? I feel like I'm grieving already.

[Guest guest]

Barb,

It took 7 or 8 days for my Mom to die, after she was in the dying process. Some

are much shorter, some longer. It is individual.

Hug,

Donna R

Cared for Mom 3 years in my home and the last year at a nh. She passed away

from LBD in 2002.

Dad's dying

But nobody can give me a timetable (of course). One day his hands are freezing

and his lips are blue and his BP is way down, next day he's warmed up and BP up

and he's semi-lucid. Next day he's talking gibberish all day. Is there some

sort of predictable pattern or is it just individual? Can I get a sense of

timing from the onset of certain symptoms? I feel like I'm grieving already.

[Guest guest]

Barbara,

Is your father on hospice? They should be able to give you some general idea.

The viewpoint of " Gone from My Sight " (written by a hospice nurse many years

ago) is that most deaths have the same characteristics. According to its

timeline, these sorts of bodily changes (up and down temp and up and down BP)

indicate that death is within 2-4 months or within 1-3 weeks. It depends on

what other signs you are seeing. (See

http://forum.psp.org/viewtopic.php?t=8800)

" Gone from My Sight " contends that people can control the timing of their death.

Another good book that gives families some guidance on what to do is " Final

Gifts, " also written by two hospice nurses. This book contains some information

about what you might consider saying to your father to make his death

worry-free. Locally, there was a support group member whose LBD husband was

nearing the end but the wife hadn't finalized the brain donation arrangements.

Shortly after she got the paperwork done and made a phone call to tell the

pathologist that everything was ready, her husband died very peacefully. There

are many such stories of family members briefly leaving the room and their dying

loved one takes that opportunity to die.

Best wishes,

Robin

>

> But nobody can give me a timetable (of course). One day his hands are

freezing and his lips are blue and his BP is way down, next day he's warmed up

and BP up and he's semi-lucid. Next day he's talking gibberish all day. Is

there some sort of predictable pattern or is it just individual? Can I get a

sense of timing from the onset of certain symptoms? I feel like I'm grieving

already.

>

[Guest guest]

My dad followed this pattern

http://dying.about.com/od/thedyingprocess/a/process.htm

Here is another view

http://www.hospicepatients.org/hospic60.html

Dad's dying

 

But nobody can give me a timetable (of course). One day his hands are

freezing and his lips are blue and his BP is way down, next day he's

warmed up and BP up and he's semi-lucid. Next day he's talking

gibberish all day. Is there some sort of predictable pattern or is it

just individual? Can I get a sense of timing from the onset of certain

symptoms? I feel like I'm grieving already.

[Guest guest]

Sorry that you are going thru this - I think we start to grieve and get ready -

way ahead of time.

God Bless you

H