Re: Re Sharon:: Hi All

[Guest guest]

Hi Sharon,

That guy is annoying, but Jim only has a matter of a few days left, and I don't

want to move him. He is sleeping comfortably. I think when Hospice hears that

guy they will have something done with him. I had some quality time with Jim

last night when they brought that guy to the diningroom and I requested that

they leave him in the hall after and then bring him in for bed. It worked out. I

don't think they want to wheel Jim's bed into another room with him on it,

because all the residents know us well and they will all notice and be talking

about him and some will get anxiety that they are next. It's best they don't see

him.

________________________________

To: LBDcaregivers

Sent: Tue, January 18, 2011 7:07:47 AM

Subject: Re: Re: Hi All

 

jan,

if they wont move the jerk, will they move jim instead??? they hsould out of

respect, and also since you have been there for several yaers now. 

praying for you, looked of r you last nite on ym,  but was so tired i couldnt

wait up.    take careof yourself my firend, that is an odrer.   hugs.

sharon

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Subject: Re: Re: Hi All

To: LBDcaregivers

Date: Tuesday, January 18, 2011, 8:14 AM

 

Isnt there something like an Ombudsman or someone who you can complain to to get

this man moved to another room? That adds so much to the stress level for you

and for Jim. I can't begin to imagine having to listen to that in the best of

times. I'm so sorry.

Kathy

Re: Hi All

>

> Jan: I have been where you are and feel that I know what you are going

> through. My oldest daughter told me the other day that she thought Dad knew

> that he was ready to go and just quit eating. I felt it was just the course

> of the LBD and it was his time to go. Either way, I am sure Ray wouldn't

> have wanted to continue any longer in the shape he was in. Comfort yourself

> with the knowledge that you have done every thing you could to care for him,

> show your love for him in every way you could and advocated for him

> everytime the opportunity arose. We lived our vows to the end. We also

> realize that he will be in a better place and when we meet them again, they

> will no longer be sick! As you have had the strength to suffer along with

> him every step of the way, you will find the strength to find your way

> through the end time. It has been two years this spring and the tears came

> back as I read your post because the things you are seeing, are the things I

> saw as he faded away. Now, I think often of the things he said and did. I

> smile often as I tell a story or remember a good time we had. You may find

> as I did, that I did a lot of my grieving long before he died. Once I

> realized there were no miracle drugs, or treatments or cures --that he was

> on steep slope fading away, I cried and grieved him 6 months before he died.

> I did not know that is what was going on, but afterward, I realized and

> really handled everything very well. Jan, please know that you and Jim are

> in my prayers and thoughts as you continue down this difficult road. God

> Bless you both!! Love, Leona

>

> Leona: Caregiver for husband Ray, age 68, diagnosed 2/04 with Parkinson's

> Disease. Changed doctors, diagnosed 6/06 with LBD. Almost continual downhill

> slide no matter what drugs we try. 5/2/08 Ray was placed in Sunrise Nursing

> Home in Oswego, NY, 1 hour from home. So far, so good! Hardest thing I have

> ever done in my life, however. 3/19/09 transferred to Samaritan Keep NH in

> Watertown, NY closer to home. He passed peacefully at 5:18 am on April 14,

> 2009. I am handling it OK.

>

> ''Love is not finding someone to live with; it's finding someone you don't

want

>

>

> to live without "

>

>