Re: When is the onset of the disease

[Guest guest]

Judy,

I personally felt the meter was running with the onset of symptoms. In our

case, my wife was dealing with one, then both parents with dementia,

while trying to maintain her job. I attributed many of her symptoms initially

to fatigue and possible depression. Then for about 2 years as symptoms were more

obvious she refused to see her PCP. Finally, my daughter and I used some tough

love and dragged her into her docs office.  He made the DX  of LBD immediately

on the basis of her posture, gait, and a quick neuro exam in office with drawing

the face of a clock etc. We were fortunate he was the same doc that treated both

of her parents. In retrospect, I suspect her Dad had Lewy and Mom vascular.

 Just my guess. Then his DX was confirmed by neuro after MRI's and EEG's. DX

was Oct 2007.  In retrospect some symptoms were detected as early as 2000.

But these were the type that could easily be confused with those most people

would make under tremendous

personal strain.

 

Jeff 

________________________________

To: " LBDcaregivers " <LBDcaregivers >

Sent: Saturday, August 13, 2011 10:56 PM

Subject: When is the onset of the disease

 

Hello friends

I wanted to ask all or any of you when do you count the onset is LBD ? Do you

count it from the time of diagnosis or for those like my mom from the onset of

Parkinsonism like symptoms?

I know it's a simple question but as more family members and hospice staff

getting involved with moms care this question continues to come up - and I would

like to have an educated guess!

Thanks,

Judy R. Strauss LMSW PhD

Lead Faculty

University of Phoenix

Jersey City Campus

100 Town Square Place

|Jersey City, NJ 07310

Cell-

Email- Jrstr@...

[Guest guest]

Hi jeff

It's like a gift whenever I get a message from one of u Posing the question

of the onset of the disease has made me jog my memory and I suppose it's the ame

for many of you! Sometimes this exercise is painful And hind sight is 20/20 -

nevertheless my hope is that with the message board being available to the many

others who are battling this disease and future warriors it is well worth this

discussion !

As u might notice below I am a trained social worker and am trying now to

develop a practice geared to adult caregivers to spouses and children of los

with terminal illnesses and mostly caring for Los with ad and dementia- in doing

so Im seriously considering using skype or other visual web programs to allow me

access to people all over the globe.

I was wondering if this group might consider extending out support group to a

weekly skype meeting as well??

Any thoughts??

Judy R. Strauss LMSW PhD

Lead Faculty

University of Phoenix

Jersey City Campus

100 Town Square Place

|Jersey City, NJ 07310

Cell-

Email- Jrstr@...

> Judy,

>

> I personally felt the meter was running with the onset of symptoms. In our

case, my wife was dealing with one, then both parents with dementia, while

trying to maintain her job. I attributed many of her symptoms initially to

fatigue and possible depression. Then for about 2 years as symptoms were more

obvious she refused to see her PCP. Finally, my daughter and I used some tough

love and dragged her into her docs office. He made the DX of LBD immediately

on the basis of her posture, gait, and a quick neuro exam in office with drawing

the face of a clock etc. We were fortunate he was the same doc that treated both

of her parents. In retrospect, I suspect her Dad had Lewy and Mom vascular.

Just my guess. Then his DX was confirmed by neuro after MRI's and EEG's. DX was

Oct 2007. In retrospect some symptoms were detected as early as 2000. But these

were the type that could easily be confused with those most people would make

under tremendous

> personal strain.

>

> Jeff

>

> ________________________________

>

> To: " LBDcaregivers " <LBDcaregivers >

> Sent: Saturday, August 13, 2011 10:56 PM

> Subject: When is the onset of the disease

>

>

> Hello friends

>

> I wanted to ask all or any of you when do you count the onset is LBD ? Do you

count it from the time of diagnosis or for those like my mom from the onset of

Parkinsonism like symptoms?

> I know it's a simple question but as more family members and hospice staff

getting involved with moms care this question continues to come up - and I would

like to have an educated guess!

>

> Thanks,

>

> Judy R. Strauss LMSW PhD

>

> Lead Faculty

> University of Phoenix

>

> Jersey City Campus

> 100 Town Square Place

> |Jersey City, NJ 07310

> Cell-

> Email- Jrstr@...

>

>