Guest guest Posted August 16, 2011 Report Share Posted August 16, 2011 Hi I just noticed your post and wanted to sat I'm sorry I did not see it Earlier. - you r in the right place for info and support ! I remained a reader and stood by for years here on the group - most Recently as my mom has gotten worse I have been asking more questions and the help/guidance is immeasurable ! This has also allowed me to be active when I read about others who are weary caregivers an witnesses to family members going through this dreadful disease! I for one can come to Grips with loosing my mother - but the long good bye is dreadful to bear! It sounds like all your decisions with your mom have been wise ones! Although finding out the diagnosis is a Shock - knowing it and getting a good doctor to Guide you through the right steps will help and reduce much of your moms issues and your anxiety! Anyway, just a word to say u r not alone and I hope your moms issues will subside more in the asl home - although it is good that you go so often to visit her u really must avoid the burn out - this disease doesn't always go so quickly - try to find other people in the. Home to soothe and spend time with her - so u can re- energize - keep well!! Judy R. Strauss LMSW PhD Lead Faculty University of Phoenix Jersey City Campus 100 Town Square Place |Jersey City, NJ 07310 Cell- Email- Jrstr@... > , > > One of the rules are we must go into their world because they can't come into ours. > > My mother took very few drugs because she reacted to them. And when I did, I just took her off them. Some just are going to make things worse and you might have to fight with a few MD's and be willing to live without drugs. > > Hugs, > > Donna R > > Cared for Mom 3 years in my home and the last year at a nh. She passed away from LBD in 2002. > > caregiver > > I am the daughter of a 79 year old mother with LBD. She was first diagnosed with > Parkinsons and dementia. We had her re evaluated 2 months ago by a nuero psych. > We had read an article in Oprah magazine that confermed to us that she had LBD. > Right now we are trying to get her meds straightened out. She was on carpadopa > for parkinsons and was just taken off of it and put on donepezil. I am now > seeing more dizziness after 3 weeks of being on it. She has horrible > hallucinations , another part of the disease that I am learning to cope with. > Not sure whether to argue with her or just go along when she tells me people are > standing over her laughing when she falls . It is all so real to her.I try to be > at her assisted living place every other day so that I can keep her mind calm > ,it seems when I am around she does the best and the depression is less.I am > burned out at times especially with a full time job ,husband and college son.I > have a brother who lives close by but never goes to see her. I just would love > some support. We are trying to find her a new place to live right now because > the memory care place she is at is private and we are not feeling they fill the > needs for LBD. Please help me understand the disease more. > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.