hope for the best, but plan on the worst

August 20, 2011

didn't have a very good day today- worn out with the frustration of the reality

of LBD. spent lot of day putting together the medical alert info. sheet for the

E.R. on the refrigerator.i enlarged the wallet size to 8 1/2 x 11 to fit those

plastic sheet holders. it shows my wife's illness, drugs NOT to give and drugs

OK to give. they have the info on this web site somewhere. it shows her current

meds and current drs. my goal is to keep her out of the #$%>!! hospital- they

will mess up your LO because you know more than they do. my wife (59 years

young) couldn't walk worth anything today and was off by 2' where ever i had to

take her- sofa, toilet , bed. i was even getting upset because kids were

outside playing and laughing like kids are suppose to do on sat. my wife is

crying now as i write this . seems like i can't have 10 minutes to myself.

anyway, its' been only 2 years since she had delusions and i see this just

downhill. some people out there have LOs 80 or so and hope they make it to 100.

i don't get that. this is a torture for everybody. i can't imagine going 30 more

years of this. we don't have what i call a happy fun marriage. she knows she

is " not the same " . i pray we don't suffer much longer- it is progressive,

degenerative, and irreversable. LBD is " the worst " also, my wife does have

choking and hiccups- probably LBD. i worry the most about falls. thanks for

listening. gary

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