Re: Re: [VDP] Lichen Sclerosis

[Guest guest]

Yahoo has one of these groups for people that have lichen sclerosis (LS) that is very similar to this one. They are a wonderful group of people that will help you in any way that they can. They share their experiences and it made me feel much less alone. LS is somewhat rare and it's hard to find doctors that have heard about it much less friends that can sympathize.

As it turns out, I don't have LS, but I thought I did for a while. I went to the doctor about a yeast infection, but had to see the nurse instead (or wait several weeks and I was about to get married). When I went in, she said I didn't have an infection, but I had LS. She told me NOTHING about it and said that I should look it up on the Internet. Nice, huh? So I did. I read over a hundred case studies (the link to these studies is below) and joined the LS group.

Then I went back for a biopsy to confirm (which I strongly suggest that you do, if you haven't already). This time I saw the doctor. She took one look and knew I didn't have it. I had none of the symptoms, not even itching. All I have is pain during intercourse and discharge. No fusing, no white patches, no nothing. I was nearly put on medication for a condition that I don't even have!

You can also find info on LS at webmd.com and at the link below. I hope this helps! I wish you the best of luck.

http://members.tripod.com/~shanmd/histories.html

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Hey guys,

Now that I have some free time at the computer and I just recently found out I have early stage Lichen Sclerosis, I realize I havent saved any information on it (because I thought I didnt have it). I figure I should get all educated on the subject now. Anyone have any good links or articals? Just looking for any information I should know on the subject. I have already found a handful of articals on my own. Just thought I would check with you guys because sometimes someone else hear finds something my search engine didint come accross.

Bunny

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[Guest guest]

Thank you so much for the links and for the info on the support group.

My doctor actually found the LS when she had tests run on the tissues removed from my surgery (vulvar vestibulectomy). She also found Fibromas all over my glands and lots of scar tissue.

I dont even listen to what my OB-Gyn, or Primary Physician have to say about my condition, after dealing with them and several doctors like them it is clear they do not know what they are talking about. At least my Primary had the humility to let me know she was stumped and could do nothing more for me. I whent through several years of thinking it was one thing and then another. I am hopeful that this is the doctor who will cure me or at least make things functional again.

Bunny

----Original Message Follows---- From: " Nigro"

Reply-To: VulvarDisorders To: VulvarDisorders Subject: Re: Re: [VDP] Lichen Sclerosis Date: Mon, 04 Jun 2001 15:51:26 -0400

<< message3.txt >> Get your FREE download of MSN Explorer at http://explorer.msn.com

Yahoo has one of these groups for people that have lichen sclerosis (LS) that is very similar to this one. They are a wonderful group of people that will help you in any way that they can. They share their experiences and it made me feel much less alone. LS is somewhat rare and it's hard to find doctors that have heard about it much less friends that can sympathize.

As it turns out, I don't have LS, but I thought I did for a while. I went to the doctor about a yeast infection, but had to see the nurse instead (or wait several weeks and I was about to get married). When I went in, she said I didn't have an infection, but I had LS. She told me NOTHING about it and said that I should look it up on the Internet. Nice, huh? So I did. I read over a hundred case studies (the link to these studies is below) and joined the LS group.

Then I went back for a biopsy to confirm (which I strongly suggest that you do, if you haven't already). This time I saw the doctor. She took one look and knew I didn't have it. I had none of the symptoms, not even itching. All I have is pain during intercourse and discharge. No fusing, no white patches, no nothing. I was nearly put on medication for a condition that I don't even have!

You can also find info on LS at webmd.com and at the link below. I hope this helps! I wish you the best of luck.

http://members.tripod.com/~shanmd/histories.html

Get your FREE download of MSN Explorer at http://explorer.msn.com

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