Guest guest Posted September 18, 2011 Report Share Posted September 18, 2011 Marcia Wow!!! I think we are really on parallel paths and I would be honored to speak with you if only to compare notes. Please feel free to try me at the # below anytime! Judy R. Strauss LMSW PhD Lead Faculty University of Phoenix Jersey City Campus 100 Town Square Place |Jersey City, NJ 07310 Cell- Email- Jrstr@... > Hi again Judy, > > My husband has already outlived the initial prognosis by one or two years. > Now, along with everything else he is choking, coughing, and forgetting > how to swallow. My aide and I have developed a method of helping the > swallowing situation, but the choking or coughing happens at no particular > forecast time, and is hard to relieve. I was told that I could begin withdrawing > any medication as I see fit. I studied the exelon characteristics online, > and realized that this drug is meant for early to middle sufferers of LBD. > I decided to omit it, and, as previously reported...he seemed to benefit > from the withdrawal. I just stopped it " cold. " Now, although he is back > with his previous losses, he seems no worse without the exelon patch. I have > continued his namenda, zoloft, and gabapentin, because this combination > seems to help him sleep through the night, and is calming during the day. > Because he cannot speak anymore it is difficult to know if he recognizes anyone > at any time. Sometimes he will smile with the same look he once had...a > minute of joy!! These moments are now few and far between. We do seem to > be on a similar path. Hang in there... > Marcia C. > > Quote Link to comment Share on other sites More sharing options...
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