Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 elaine, Â what a sad but touching letter, we are walking in that rain, the cleansing rain with you hugs. sharon Subject: Re: My experience with LBD To: LBDcaregivers Date: Friday, January 28, 2011, 2:59 PM Â , thank you for your loving comments. You have had some difficult moments caring for your mother ... and how hard it must be for your mother to experience such frightening hallucinations and dreams, not to mention so many fractures. I often try to put myself in the shoes of those who suffer with LBD and I find it heartbreaking, especially when they are still aware of what they are going through. Thankfully my dear Jim is peaceful as he walks the last stage of his journey. Last night I spent a lot of time emailing family and friends to let them know what is happening. It was a sobering time as the reality sank in that Jim is dying. Although I have prepared myself as much as possible for this time, now that it is here I find it somewhat surreal. I feel as though life is playing in slow motion at the moment. After days and months of being full-time carer, when you are run off your feet at times and always being on red alert in case he is going to the bathroom or getting out of bed and about to fall over .... I am now sitting with him reading or doing crosswords or sudokus to keep my brain alert, listening to the cds I have brought in from home for him as soothing background music or just sitting there reminiscing. It's peaceful in so many ways yet so sad. My first husband died suddenly so that experience was dominated by shock and numbness. Now I am cherishing the opportunities to walk this journey with Jim. Yes it is summer here in Australia and we are experiencing quite a different one this year. Last year fires dominated, but this year it is floods which are breaking the droughts. Here in Sydney we have been spared these dramatic extremes of nature this summer. However, my sister in Perth and my son in northern Queensland are both preparing for cyclones to strike land where they live. Thankfully after a very warm and humid week, Sydney is cool this morning with a light rain. It will be lovely to walk through this rain before entering the artificial atmosphere of the hospital! Elaine (61) from Sydney Australia Caring for husband Jim (82) who was offically diagnosed LBD Oct 2009, but symptoms began at least 5 years before. Quote Link to comment Share on other sites More sharing options...
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