Guest guest Posted August 20, 2011 Report Share Posted August 20, 2011 Hi group I have become more active on the site most recently as my mom has taken such a rapid decline into lewy land! I would like to bring up something I have been experiencing that I wondered if others in the group could relate to! That is the intense loneliness my brother and I have in dealing with LBD - as u may notice from my signature below I am a trained social worker and thus have experienced working with people caring for I'll Los - ofcourse when it is your own journey - all the skills in the world are deduced to zero However, with other diseases such as cancers and alzheimers there seems to be so much more compassion and understanding from other people most probably since those ailments are more well known! Most of moms friends and neighbors have stopped visiting a long time ago - my friends even have little patience and are dumbfounded by LBD - my parents were both only children so my bro and I have no aunts uncles or cousins ! Even my loving husband seems more comfortable not seeing my mom anymore as her decline is heartbreaking - especially with her unresponsiveness and no recognition of her family any longer! I see my own therapist from time to time - talk with my bro - and my kids - only 1 lives near mom- but as young people are although heartbroken for what their grandma has become they have little tolerance for the " ugly " slide downward we are seeing!! Sorry for rambling on here - but i need a place to vent since only you in this group who have walked in my Shoes are truly understanding of how isolating the caregiving process becomes with LBD- so from time to time forgive me if I just say " life stinks " and where r our supposed " friends " now when we need them so badly? We are jewish and I was thinking of even joining a reform synagogue just to have weekly community prayers - I have not been to one now in almost 20 yrs - Any other ideas aside from joining an in person LBD group? Thanks, Judy Judy R. Strauss LMSW PhD Lead Faculty University of Phoenix Jersey City Campus 100 Town Square Place |Jersey City, NJ 07310 Cell- Email- Jrstr@... Quote Link to comment Share on other sites More sharing options...
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