Re: when the mess go

[Guest guest]

Hi friends

Just wanted to touch base and get some Input if anyone can advise !

My mom has been in hospice home care now for almost 3 mos amd

After consulting with the hospice team and all docs who have been part of moms

medical team to wean her off all Meds over the last month except for the excelon

patch 4.6 mg a day

I saw het today after she has been only on the patch and although she doesn't

speak, and is barely mobile , incontinent and doesn't recognize her loved ones

or anyone I actually think she seems more with it !

Has anyone actually seen improvement in their Los after removal of

The medicines ?!

Judy R. Strauss LMSW PhD

Lead Faculty

University of Phoenix

Jersey City Campus

100 Town Square Place

|Jersey City, NJ 07310

Cell-

Email- Jrstr@...

> Scientists studying alpha-synuclein, the protein involved in Lewy body

dementia and Parkinson's disease, have found that in its natural, healthy state

the protein has a radically different structure than previously thought. This

new insight is significant for understanding both how the protein functions

normally and how it becomes altered in disease like LBD and Parkinson's.

>

> article:

> http://www.eurekalert.org/pub_releases/2011-08/hms-nct081211.php

>

> video:

> http://www.eurekalert.org/multimedia/pub/34988.php?from=191718

>

>

[Guest guest]

Hi Judy,

My husband seems to be in a similar condition as your mom. We have

removed a number of medications, but the only one, specifically for his

condition, was the exelon patch. Amazingly he seemed to improve cognitively,

and,

this was noticed by the whole family. Unfortunately, this improvement

lasted only a few days, and, of course, we can't be sure if the improvement was

due to the removal of the patch, or, LEWY, itself. He is now on a

continual downward slope, also in the care of home Hospice. Although he has

lost

all ability to care for himself in any manner, his weight has remained

stable, still loving to eat...although having to be fed....a cruel, unrelenting

disease, indeed.

Marcia C.

[Guest guest]

Hi Judy,

My mum is in a NH and has been having her up and down periods. When she had her

last down period about three months ago, my brother and I decided with her Dr to

take her off all medications except for stalevo (for the shakes in her hand) and

we have been amazed at how well she has coped with it. We have been lucky in

that she still knows the family and old friends (she had her 80th last weekend

and we invited two of her oldest friends, neighbours and family and she knew

everyone. The funny thing is she remember all them but can't remember her great

grand childrens names.) She keeps wanting to go to the shops to get panadol, it

seems to us she thinks this will cure all her ails.

This is a very horrible ride to be on with our LO, you always seem to be at odds

with yourself. Half of you wanting to end for both your LO and for your self,

the other half not wanting to loose your LO.

If it wasn't for reading these posts there are times I think I would go crazy.

cheers

Cheryl

>

> > Scientists studying alpha-synuclein, the protein involved in Lewy body

dementia and Parkinson's disease, have found that in its natural, healthy state

the protein has a radically different structure than previously thought. This

new insight is significant for understanding both how the protein functions

normally and how it becomes altered in disease like LBD and Parkinson's.

> >

> > article:

> > http://www.eurekalert.org/pub_releases/2011-08/hms-nct081211.php

> >

> > video:

> > http://www.eurekalert.org/multimedia/pub/34988.php?from=191718

> >

> >

>

>

>