Guest guest Posted October 25, 2011 Report Share Posted October 25, 2011 I have not heard of this but looking up those two diagnosis with Medicaid reveals two pages of ICD-9 (Medicaid) billing codes http://www.cms.gov/medicare-coverage-database/staticpages/icd9-code-range.as px?DocType=LCD <http://www.cms.gov/medicare-coverage-database/staticpages/icd9-code-range.a spx?DocType=LCD & DocID=28544 & ver=143 & Group=1 & RangeStart=290.0 & RangeEnd=290.9> & DocID=28544 & ver=143 & Group=1 & RangeStart=290.0 & RangeEnd=290.9 http://www.cms.gov/medicare-coverage-database/staticpages/icd9-code-range.as px?DocType=LCD <http://www.cms.gov/medicare-coverage-database/staticpages/icd9-code-range.a spx?DocType=LCD & DocID=28531 & ver=18 & Group=1 & RangeStart=332.0 & RangeEnd=332.1> & DocID=28531 & ver=18 & Group=1 & RangeStart=332.0 & RangeEnd=332.1 I suspect this has to do with having the correct diagnosis for Medicaid billing, but it would not hurt to ask to be sure. When we applied for my mil the diagnosis her doctor wrote was " dementia with parkinson's " - not exactly accurate I thought too but it turned out fine. The main thing was how capable was she to care for herself/how much help does she need. She cannot do anything by herself, not even drink water. The social worker came and saw and that took just a few minutes. Hope things go smoothly for you and your mom Dorothy From: LBDcaregivers [mailto:LBDcaregivers ] On Behalf Of Judy Strauss Sent: Monday, October 24, 2011 10:26 PM To: lbdcaregivers Subject: medicaid diagnosis Hello all Pray for me I am headed to the agency who will put in the application for my mom's medicaid 'in home' care in NYC tomorrow. The doc from hospice filled out the m11Q today and as her diagnosis writes she has Senile dementia Paralysis agitans Do they not know about LBD??? has anyone else experienced this?? thanks, Judy Judy R. Strauss LMSW PhD Lead Faculty /University of Phoenix Jersey City Campus 100 Town Square Place |Jersey City, NJ 07310 Cell- Email- Jrstr@... <mailto:Jrstr%40email.Phoenix.edu> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2011 Report Share Posted October 25, 2011 Hey Dorothy Thank u for sharing - have to see hospice does not impress me here in NYC - the social worker also filled in the funeral home as a gravesight funeral in long island In fact mom is to have a funeral right here in manhattan ! They also said het appetite is " very good " Which is laughable - Unless your into blended Mush !! Lol and her appetite is nowhere near even good - she is still however eating - swallowing ! Anyway - your thoughts on why the app is filled out the way it is rings true Dorothy in regard to the DX and that it repeatedly says mom is helpless and needs total care !! Judy Judy R. Strauss LMSW PhD Lead Faculty University of Phoenix Jersey City Campus 100 Town Square Place |Jersey City, NJ 07310 Cell- Email- Jrstr@... > I have not heard of this but looking up those two diagnosis with Medicaid > reveals two pages of ICD-9 (Medicaid) billing codes > > http://www.cms.gov/medicare-coverage-database/staticpages/icd9-code-range.as > px?DocType=LCD > <http://www.cms.gov/medicare-coverage-database/staticpages/icd9-code-range.a > spx?DocType=LCD & DocID=28544 & ver=143 & Group=1 & RangeStart=290.0 & RangeEnd=290.9> > & DocID=28544 & ver=143 & Group=1 & RangeStart=290.0 & RangeEnd=290.9 > > http://www.cms.gov/medicare-coverage-database/staticpages/icd9-code-range.as > px?DocType=LCD > <http://www.cms.gov/medicare-coverage-database/staticpages/icd9-code-range.a > spx?DocType=LCD & DocID=28531 & ver=18 & Group=1 & RangeStart=332.0 & RangeEnd=332.1> > & DocID=28531 & ver=18 & Group=1 & RangeStart=332.0 & RangeEnd=332.1 > > I suspect this has to do with having the correct diagnosis for Medicaid > billing, but it would not hurt to ask to be sure. > > When we applied for my mil the diagnosis her doctor wrote was " dementia with > parkinson's " - not exactly accurate I thought too but it turned out fine. > The main thing was how capable was she to care for herself/how much help > does she need. She cannot do anything by herself, not even drink water. > The social worker came and saw and that took just a few minutes. > > Hope things go smoothly for you and your mom > > Dorothy > > From: LBDcaregivers [mailto:LBDcaregivers ] > On Behalf Of Judy Strauss > Sent: Monday, October 24, 2011 10:26 PM > To: lbdcaregivers > Subject: medicaid diagnosis > > Hello all > > Pray for me > > I am headed to the agency who will put in the application for my mom's > medicaid 'in home' care in NYC tomorrow. > The doc from hospice filled out the m11Q today and as her diagnosis writes > she has > > Senile dementia > Paralysis agitans > > Do they not know about LBD??? > > has anyone else experienced this?? > > thanks, > > Judy > > Judy R. Strauss LMSW PhD > > Lead Faculty /University of Phoenix > > Jersey City Campus > 100 Town Square Place > |Jersey City, NJ 07310 > Cell- > Email- Jrstr@... <mailto:Jrstr%40email.Phoenix.edu> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2011 Report Share Posted October 25, 2011 Hi Judy, Hope things went well today. One way I would look at the appetite issue – if they say very good now and 2-3 months later they say “poor†they can use that to measure some decline and keep her in service. I have come to look at things this way – strategize to keep the care going! Seems amazing, I know but if that’s what it takes to keep help coming in. Hang in there J Dorothy From: LBDcaregivers [mailto:LBDcaregivers ] On Behalf Of Judy Sent: Tuesday, October 25, 2011 5:01 AM To: LBDcaregivers Subject: Re: medicaid diagnosis Hey Dorothy Thank u for sharing - have to see hospice does not impress me here in NYC - the social worker also filled in the funeral home as a gravesight funeral in long island In fact mom is to have a funeral right here in manhattan ! They also said het appetite is " very good " Which is laughable - Unless your into blended Mush !! Lol and her appetite is nowhere near even good - she is still however eating - swallowing ! Anyway - your thoughts on why the app is filled out the way it is rings true Dorothy in regard to the DX and that it repeatedly says mom is helpless and needs total care !! Judy Judy R. Strauss LMSW PhD Lead Faculty University of Phoenix Jersey City Campus 100 Town Square Place |Jersey City, NJ 07310 Cell- Email- Jrstr@... <mailto:Jrstr%40email.Phoenix.edu> On Oct 25, 2011, at 2:50 AM, " dsinouye " <fullcircle@... <mailto:fullcircle%40sonic.net> > wrote: > I have not heard of this but looking up those two diagnosis with Medicaid > reveals two pages of ICD-9 (Medicaid) billing codes > > http://www.cms.gov/medicare-coverage-database/staticpages/icd9-code-range.as > px?DocType=LCD > <http://www.cms.gov/medicare-coverage-database/staticpages/icd9-code-range.a > spx?DocType=LCD & DocID=28544 & ver=143 & Group=1 & RangeStart=290.0 & RangeEnd=290.9> > & DocID=28544 & ver=143 & Group=1 & RangeStart=290.0 & RangeEnd=290.9 > > http://www.cms.gov/medicare-coverage-database/staticpages/icd9-code-range.as > px?DocType=LCD > <http://www.cms.gov/medicare-coverage-database/staticpages/icd9-code-range.a > spx?DocType=LCD & DocID=28531 & ver=18 & Group=1 & RangeStart=332.0 & RangeEnd=332.1> > & DocID=28531 & ver=18 & Group=1 & RangeStart=332.0 & RangeEnd=332.1 > > I suspect this has to do with having the correct diagnosis for Medicaid > billing, but it would not hurt to ask to be sure. > > When we applied for my mil the diagnosis her doctor wrote was " dementia with > parkinson's " - not exactly accurate I thought too but it turned out fine. > The main thing was how capable was she to care for herself/how much help > does she need. She cannot do anything by herself, not even drink water. > The social worker came and saw and that took just a few minutes. > > Hope things go smoothly for you and your mom > > Dorothy > > From: LBDcaregivers <mailto:LBDcaregivers%40yahoogroups.com> [mailto:LBDcaregivers <mailto:LBDcaregivers%40yahoogroups.com> ] > On Behalf Of Judy Strauss > Sent: Monday, October 24, 2011 10:26 PM > To: lbdcaregivers <mailto:lbdcaregivers%40yahoogroups.com> > Subject: medicaid diagnosis > > Hello all > > Pray for me > > I am headed to the agency who will put in the application for my mom's > medicaid 'in home' care in NYC tomorrow. > The doc from hospice filled out the m11Q today and as her diagnosis writes > she has > > Senile dementia > Paralysis agitans > > Do they not know about LBD??? > > has anyone else experienced this?? > > thanks, > > Judy > > Judy R. Strauss LMSW PhD > > Lead Faculty /University of Phoenix > > Jersey City Campus > 100 Town Square Place > |Jersey City, NJ 07310 > Cell- > Email- Jrstr@... <mailto:Jrstr%40email.Phoenix.edu> <mailto:Jrstr%40email.Phoenix.edu> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2011 Report Share Posted October 25, 2011 Great advice !! Judy R. Strauss LMSW PhD Lead Faculty University of Phoenix Jersey City Campus 100 Town Square Place |Jersey City, NJ 07310 Cell- Email- Jrstr@... > Hi Judy, > > Hope things went well today. > > One way I would look at the appetite issue – if they say very good now and 2-3 months later they say “poor†they can use that to measure some decline and keep her in service. I have come to look at things this way – strategize to keep the care going! Seems amazing, I know but if that’s what it takes to keep help coming in. > > Hang in there J > > Dorothy > > From: LBDcaregivers [mailto:LBDcaregivers ] On Behalf Of Judy > Sent: Tuesday, October 25, 2011 5:01 AM > To: LBDcaregivers > Subject: Re: medicaid diagnosis > > Hey Dorothy > > Thank u for sharing - have to see hospice does not impress me here in NYC - the social worker also filled in the funeral home as a gravesight funeral in long island > > In fact mom is to have a funeral right here in manhattan ! > > They also said het appetite is " very good " > Which is laughable - Unless your into blended > Mush !! Lol and her appetite is nowhere near even good - she is still however eating - swallowing ! > > Anyway - your thoughts on why the app is filled out the way it is rings true Dorothy in regard to the DX and that it repeatedly says mom is helpless and needs total care !! > > Judy > > Judy R. Strauss LMSW PhD > > Lead Faculty > University of Phoenix > > Jersey City Campus > 100 Town Square Place > |Jersey City, NJ 07310 > Cell- > Email- Jrstr@... <mailto:Jrstr%40email.Phoenix.edu> > > On Oct 25, 2011, at 2:50 AM, " dsinouye " <fullcircle@... <mailto:fullcircle%40sonic.net> > wrote: > > > I have not heard of this but looking up those two diagnosis with Medicaid > > reveals two pages of ICD-9 (Medicaid) billing codes > > > > http://www.cms.gov/medicare-coverage-database/staticpages/icd9-code-range.as > > px?DocType=LCD > > <http://www.cms.gov/medicare-coverage-database/staticpages/icd9-code-range.a > > spx?DocType=LCD & DocID=28544 & ver=143 & Group=1 & RangeStart=290.0 & RangeEnd=290.9> > > & DocID=28544 & ver=143 & Group=1 & RangeStart=290.0 & RangeEnd=290.9 > > > > http://www.cms.gov/medicare-coverage-database/staticpages/icd9-code-range.as > > px?DocType=LCD > > <http://www.cms.gov/medicare-coverage-database/staticpages/icd9-code-range.a > > spx?DocType=LCD & DocID=28531 & ver=18 & Group=1 & RangeStart=332.0 & RangeEnd=332.1> > > & DocID=28531 & ver=18 & Group=1 & RangeStart=332.0 & RangeEnd=332.1 > > > > I suspect this has to do with having the correct diagnosis for Medicaid > > billing, but it would not hurt to ask to be sure. > > > > When we applied for my mil the diagnosis her doctor wrote was " dementia with > > parkinson's " - not exactly accurate I thought too but it turned out fine. > > The main thing was how capable was she to care for herself/how much help > > does she need. She cannot do anything by herself, not even drink water. > > The social worker came and saw and that took just a few minutes. > > > > Hope things go smoothly for you and your mom > > > > Dorothy > > > > From: LBDcaregivers <mailto:LBDcaregivers%40yahoogroups.com> [mailto:LBDcaregivers <mailto:LBDcaregivers%40yahoogroups.com> ] > > On Behalf Of Judy Strauss > > Sent: Monday, October 24, 2011 10:26 PM > > To: lbdcaregivers <mailto:lbdcaregivers%40yahoogroups.com> > > Subject: medicaid diagnosis > > > > Hello all > > > > Pray for me > > > > I am headed to the agency who will put in the application for my mom's > > medicaid 'in home' care in NYC tomorrow. > > The doc from hospice filled out the m11Q today and as her diagnosis writes > > she has > > > > Senile dementia > > Paralysis agitans > > > > Do they not know about LBD??? > > > > has anyone else experienced this?? > > > > thanks, > > > > Judy > > > > Judy R. Strauss LMSW PhD > > > > Lead Faculty /University of Phoenix > > > > Jersey City Campus > > 100 Town Square Place > > |Jersey City, NJ 07310 > > Cell- > > Email- Jrstr@... <mailto:Jrstr%40email.Phoenix.edu> <mailto:Jrstr%40email.Phoenix.edu> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2011 Report Share Posted October 26, 2011 Hi Dorothy It can also be made into brownies. > It’s might be a loaded question and if so I apologize. I live in CA where medical marijuana is legal though I have no idea how to access it for my mil or if it’s something that anyone has ever tried. This last week my mil has had two occasions of pain that the pain medicines I have on hand were almost not enough for. The episode last night especially was unsettling and I almost took her to ER. She came into this mess allergic to fentynal and she is very sensitive to other opiates. She tolerates vicodine (hydrocodone) but at small doses it makes her extremely nauseas even with zofran and also I think maybe a little agitated. At enough medicine to manage her pain last night she was so sick to her stomach with a headache – another side effect from the vicodine. I am told the next one to try is morphine and as I sat with her trying to sooth her while the medicine was (hopefully) working, I wondered what if that doesn’t work? What then? I have heard of two other patients with Parkinson’s and dementia that morphine did not work for – it made them very sleepy but they still had pain when they were awake. Only sleeping was a way to be free of pain. Last night her body was shaking with the parkinsons and the pain was unbearable. It took two hours to finally have enough vicodine and mirapex to allow her to doze lightly but the pain was still breaking through time to time. The medicines have made today miserable for her and have diminished her usual great appetite considerably. She is constipated already (despite double miralax) and sick to her stomach despite the zofran. > > So I’m wondering if anyone has ever thought of or looked into or asked their neurologist about or maybe even tried medical marijuana? Certainly smoking it is out – however I understand it can be taken orally too – made into cookies or a syrup and given that way? What I’m imagining is if I could obtain a form of it in a syrup and then try a tiny amount at a time and see if it helped. > > Thanks for the input > > Dorothy > > Quote Link to comment Share on other sites More sharing options...
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