I HOPE THIS HELPS

[Guest guest]

HI I AM A NEW COMER TO YOUR GROUP AND READ ALL THE MESSAGES FROM EVERYONE THIS MORNING

WHAT A GREAT SUPPORT GROUP. I JUST RECENTLY HAD THE SURGERY ON MARCH 6, 2000 SO STILL INN

THE RECOVERY STAGE. I SAW A COUPLE OF POSTING OF PEOPLE WHO WERE DIAGNOSED WITH LUPUS

AS I WAS APROX 5 YEARS AGO WHEN THEY COULDN'T FIND A REASON FOR THE FATIGUE THAT I WAS HAVING

AND THE PAIN IN MY EXTREMITIES. MY BLOOD TEST CAME BACK POSITIVE FOR SWELLING WHICH I THINK IS

IF I REMEMBER RIGHT THE ANA TEST. LONG STORY SHORT I WAS ON STEROIDS FOR THE PAIN AND LUPUS MEDICINE WHICH MADE ME SICK. I CHANGED ARTHRITIS DOCTORS AND FOUND OUT NO DIDN'T HAVE LUPUS JUST ARTHRITIS THAT WAS TRIGGERING THAT TEST. LONG STORY SHORT LAST JUNE I WENT TO THE DENTIST

SPEND TWO HOURS WITH MY MOUTH OPEN AND FOR TWO WEEKS WAS DIZZY AND FINALLY WENT TO THE HOSPITAL VIA SQUAD WITH A BLOOD PRESSURE OF 180 MINE IS NORMALLY 100 HAD RIGHT SIDED NUMBS THAT

NEVER WENT AWAY SO I HAD A SMART DOCTOR WHO ORDERED A MRI OF MY CAROTIDS AND BRAIN AND FOUND THE CHIARI 1 MALFORMATION THEN WENT ON TO A CSPINE MRI AND FOUND THAT IS WAS OVER MY

CERVICAL JUNCTION. I WAS SCARED I WORK IN A HOSPITAL IN RADIOLOGY AND SO I GOT MORE ANSWERS

THAN THE NORMAL PATIENT. WENT TO A NEUROLOGIST AND HE SENT ME TO A NERO SURGEON WHO I KNOW

FROM THE HOSPITAL. LONG STORY SHORT HE SAID I WAS A GOOD CANDIDATE FOR THE SURGERY. SO I HAD IT

DONE. I WENT WITH MY GUT AND HAD IT DONE AND THANK THE GOOD LORD I DID BECAUSE THE PICTURES DIDN'TSHOW THE SURVERITY OF THE CHIARI AND THE PRESSURE THAT WAS THERE. MY SURGEON CAME IN

THREE DAYS POST OP AND SAID YOU WERE VERY LUCKY I AM GLADYOU HAD IT DONE IT WAS SERIOUS IN THERE.

WELL HERE I AM FEELING VERY BLESSED TO HAVE A WONDERFUL SURGEON HE IS A VERY CARING DOCTOR I JUST FEEL VERY BLESSED THAT I HAD PEOPLE TO LISTEN TO ME AND HELP. GOD BLESS YOU ALL ON YOUR JOURNEYS I KNOW ITS HARD. IF YOU HAVE ANY QUESTIONS PLEASE WRITE I PRAY FOR YOU ALL ITS A LONG ROAD I KNOW.

GOD BLESS

BARB KOCEL