Guest guest Posted September 17, 2011 Report Share Posted September 17, 2011 Hi Marcia I meant to ask how the hospice team went about removing the patch ? That is going to be the next step with our mom and the neurologist is leaving this to the hospice doc! My understanding is that they start by giving the patch every other day to start ?! Judy R. Strauss LMSW PhD Lead Faculty University of Phoenix Jersey City Campus 100 Town Square Place |Jersey City, NJ 07310 Cell- Email- Jrstr@... > Hi Marcia > > Thank you for return post on my questions about the removal of the Meds! It's curious that you r going through the same thing with your husband ! > > My mom also continues to eat although not as much as before ! As little as 6 mos ago she was still a rather good eater - although assometimes needed to be fed ! Now she eats less and more soft foods or soups !! I don't see an issue with swallowing yet! > > As far as the removal of the Meds seeing that she looks more alert now and after a long review with the neurologist I wonder if some of > The Meds actually made her worse ?? > I guess we will never know the answer to that but this message certainly should be an alert to others in the group to be careful about all Meds with Los with lewy !! > > The hospice nurse actually called me today - on Saturday - surprising to further acknowledge the positive affect thus far from the removal of the Meds - and now it's just a matter of watching what comes next - or to stay tuned ! > > I can't say Enuf about advanced directives and we are fortunate that our mother's written in 2008 when she knew what she was up against are very clear and make these decisions easier for us !! > The clear team and family wish following moms directives especially now as mom is on home hospice is that the only meds to continue are the ones to keep mom comfortable ! I > > I am curious about what the excellon patch is doing for her ?'! > Unlike many in this group we actually think moms deep decline about 2 yrs ago was followed by the beginning of the patch !! > > Marcia - thanks again for your comments - does the hospice team have a prognosis of how mich time your husband might have left ?? > > Judy R. Strauss LMSW PhD > > Lead Faculty > University of Phoenix > > Jersey City Campus > 100 Town Square Place > |Jersey City, NJ 07310 > Cell- > Email- Jrstr@... > > > > > > Hi Judy, > > > > My husband seems to be in a similar condition as your mom. We have > > removed a number of medications, but the only one, specifically for his > > condition, was the exelon patch. Amazingly he seemed to improve cognitively, and, > > this was noticed by the whole family. Unfortunately, this improvement > > lasted only a few days, and, of course, we can't be sure if the improvement was > > due to the removal of the patch, or, LEWY, itself. He is now on a > > continual downward slope, also in the care of home Hospice. Although he has lost > > all ability to care for himself in any manner, his weight has remained > > stable, still loving to eat...although having to be fed....a cruel, unrelenting > > disease, indeed. > > Marcia C. > > > > Quote Link to comment Share on other sites More sharing options...
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