caregiver

[Guest guest]

I am the daughter of a 79 year old mother with LBD. She was first diagnosed with

Parkinsons and dementia. We had her re evaluated 2 months ago by a nuero psych.

We had read an article in Oprah magazine that confermed to us that she had LBD.

Right now we are trying to get her meds straightened out. She was on carpadopa

for parkinsons and was just taken off of it and put on donepezil. I am now

seeing more dizziness after 3 weeks of being on it. She has horrible

hallucinations , another part of the disease that I am learning to cope with.

Not sure whether to argue with her or just go along when she tells me people are

standing over her laughing when she falls . It is all so real to her.I try to be

at her assisted living place every other day so that I can keep her mind calm

,it seems when I am around she does the best and the depression is less.I am

burned out at times especially with a full time job ,husband and college son.I

have a brother who lives close by but never goes to see her. I just would love

some support. We are trying to find her a new place to live right now because

the memory care place she is at is private and we are not feeling they fill the

needs for LBD. Please help me understand the disease more.