Guest guest Posted November 9, 2011 Report Share Posted November 9, 2011 I am happy to hear that, Judy. Losing a mother is such a huge passage in our lives. I am fortunate to still have a reasonably healthy mom who is now 88 (her sister is 90). Both of them still have all their mental faculties. I have tried to prepare myself for the day I will lose her, but I don't think there really is a way to fully prepare for that eventuality. My prayers are with you. Cassie To: LBDcaregivers From: jrstraussb@... Date: Wed, 9 Nov 2011 14:47:51 -0500 Subject: Re: Re: Cassie thank you Dear Cassie- Your last post to the group said: " As Christians, we believe this life is preparation for our eternal home and, while that doesn't preclude the grieving process of losing a loved one, it does make it easier for us to bear. " w\ I have been feeling very down about my mom's decline. That statement gives me some strength today. Thank you! Judy Judy R. Strauss LMSW PhD Lead Faculty /University of Phoenix Jersey City Campus 100 Town Square Place |Jersey City, NJ 07310 Cell- Email- Jrstr@... Re: length of this LBD disease To: LBDcaregivers Date: Tuesday, November 8, 2011, 11:17 AM I ahve been caring for my wife , (84 yrs old) for 8 and a half years for her LBD, is imobile and is now starting to have trouble eating. Has cost me $1000 a week for years for caregiving plus meds , etc. House is in reverse mortgage, etc. Her vitals are good but who knows what the future holds. This disease has its own agenda. after 57 yrs of marriage cant give up. > > Anyone ,how long does this disease run its course? is it different for a 59 year old vs. a 79 year old? i have read 2-7, 3-8, 5-8, 2-20 ( not helpful). asked the primary the other day. he doesn't seem to have a clue. financially, it makes a difference because too soon in a NH and you are out 70-$100,000/year. can you spell B-A-N-K-R-U-P-T ? if you know for sure 2 more years, you can plan better for either home care, 24-7, some combo of home care or a facility. and a dr. has to approve hospice so it matters what he thinks, etc. does Medicare pay for home care? all i know is i am wearing out after 2 + years ( with care aide for 8 hrs /week). I may be a wreck in two more years of this. thanks, gary > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2011 Report Share Posted November 9, 2011 Cassie Thanks for your kind words! I don't think one ever gets over losing their mom! And To add salt to the wound to loose a mother through such a horrific living death - LBD ! My dear loving now mom has to be fed blended soft foods can no longer chew -cannot speak is immobile and is in diapers ! She is virtually helpless -sometimes I think it is worse watching her than being Her as most Of the time she is completely oblivious and out of it ! And each day seems to get harder ! Some days I don't think I cab make it through the day ... This group and the wisdom shared by friends such as you is life line ! Best, Judy Judy R. Strauss LMSW PhD Lead Faculty University of Phoenix Jersey City Campus 100 Town Square Place |Jersey City, NJ 07310 Cell- Email- Jrstr@... > I am happy to hear that, Judy. Losing a mother is such a huge passage in our lives. I am fortunate to still have a reasonably healthy mom who is now 88 (her sister is 90). Both of them still have all their mental faculties. I have tried to prepare myself for the day I will lose her, but I don't think there really is a way to fully prepare for that eventuality. My prayers are with you. > > Cassie > > To: LBDcaregivers > From: jrstraussb@... > Date: Wed, 9 Nov 2011 14:47:51 -0500 > Subject: Re: Re: Cassie thank you > > Dear Cassie- > > Your last post to the group said: > > " As Christians, we believe this life is preparation for our eternal home and, while that doesn't preclude the grieving process of losing a loved one, it does make it easier for us to bear. " w\ > > I have been feeling very down about my mom's decline. That statement gives me some strength today. > > Thank you! > > Judy > > Judy R. Strauss LMSW PhD > > Lead Faculty /University of Phoenix > > Jersey City Campus > > 100 Town Square Place > > |Jersey City, NJ 07310 > > Cell- > > Email- Jrstr@... > > Re: length of this LBD disease > > To: LBDcaregivers > > Date: Tuesday, November 8, 2011, 11:17 AM > > I ahve been caring for my wife , (84 yrs old) for 8 and a half years for her LBD, is imobile and is now starting to have trouble eating. Has cost me $1000 a week for years for caregiving plus meds , etc. House is in reverse mortgage, etc. Her vitals are good but who knows what the future holds. This disease has its own agenda. after 57 yrs of marriage cant give up. > > > > > > > > Anyone ,how long does this disease run its course? is it different for a 59 year old vs. a 79 year old? i have read 2-7, 3-8, 5-8, 2-20 ( not helpful). asked the primary the other day. he doesn't seem to have a clue. financially, it makes a difference because too soon in a NH and you are out 70-$100,000/year. can you spell B-A-N-K-R-U-P-T ? if you know for sure 2 more years, you can plan better for either home care, 24-7, some combo of home care or a facility. and a dr. has to approve hospice so it matters what he thinks, etc. does Medicare pay for home care? all i know is i am wearing out after 2 + years ( with care aide for 8 hrs /week). I may be a wreck in two more years of this. thanks, gary > > > > > Quote Link to comment Share on other sites More sharing options...
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