Re: Re: Urgent plea for help- help is here

[Guest guest]

Hi linda

I was relieved to see your email in regard to things stabilizing with your dad!

I also am pleased to see you r recognizing the news to take care of YOURSELF

now!

I find that things happen with LBD and our Los where we need to use all our

energy to take care of what NEEDS to get done !!

But, after the dust has settled the caregivers must take a break from the

nightmare and concentrate on resting !!

Thinking of you!

Judy

Judy R. Strauss LMSW PhD

Lead Faculty

University of Phoenix

Jersey City Campus

100 Town Square Place

|Jersey City, NJ 07310

Cell-

Email- Jrstr@...

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> Power is back on and there are many paid and unpaid helpers now at the house.

I called the Social Worker to tell me the schedule (every time I asked Mom - she

said I'll tell you sometime) and the Soc. Worker gave me schedule and also that

there were unpaid workers Volunteers available ! but they just sit and talk and

can't do anything medical or hygiene. So my sister arranged for Aides and CNA's

to cover day and night - RN is coming everyday to insert catheter, etc. He is

not-communicating and having vivid hallucinations and I have a broken heart

right now. When I get home, I literally pass-out on couch and then bed because

it drains me so completely to see him like that.

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> But all is well with the helpers and this agency provides everything and if

they can't fill a shift, they give us number to the next agency to do it -

yesterday there was an overlap of 2 aides from 2 different companies - and they

never met before and they were working together to change all his wet clothes

and bedding and then do the laundry - amazing women !

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> Thanks for all your suggestions - if I get a minute I will look into the

support groups you suggested, but I don't have a minute right now. Also, the

stress has aggravated my illness and I have to rest a bit and designate time not

to have any action regarding this issue - like a little break time.

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> But we have a ton of support and everything is in place that is needed.

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