Guest guest Posted June 15, 2000 Report Share Posted June 15, 2000 Lee, Great news about Maeve, I've been wondering about her ever since the conference! Mom to Kennedy 2yr old CHARGEr, 10, 9, and wife to GraemeNew Brunswick, CanadaVisit the "Weir homepage" at: http://www.geocities.com/SunsetStrip/Palms/5716ICQ #1426476 From: Sclee128@... To: CHARGEegroups Sent: Wednesday, June 14, 2000 10:52 PM Subject: MAEVE Hi, I'd like to give you a quick update on Maeve,since we haven't been on in a while.Maeve is 2y/o now, is recovering nicely from having her recent Colon Interposition & Fundo surgery.She still has her GT, but has started taking foods by mouth, with MUCH encouragement!! That's are biggest challenge at present......Maeve's speech is coming along, she has a voc. of about 70 words,she wears her glasses & FM system without a fight.She's almost walking too...although she is using a walker at present the PT & doctors don't think it will be for long.(They should see her in the park!)So over all Maeve is doing WONDERFUL, & we're very proud of her,she's come such a long way!Well I just wanted to kept Maeve in your thoughts.....thanksLee (Maeve's Nurse)P.S. Her Mom would like to know if anyone has heard of or gone to that feeding clinic/hospital in Cleveland? For information about the CHARGE Syndrome Foundation or to become a member please contact marion@... or visit the CHARGE Syndrome Foundation web page at http://www.chargesyndrome.org Quote Link to comment Share on other sites More sharing options...
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