Re: PD and LBD in families - Judy

[Guest guest]

Hi Judy- Thank you for the wonderful travel wishes. Love your wording " have a

meaningful visit to New Zealand " . Also, how thoughtful to offer your place to

stay in NYC. Really toughed my heart. Sames goes for you if you make it to the

midwest - namely Iowa. Do take care of yourself and I shall check in later a

few times. Big Iowa hugs- Sandie

----- Re: Re: New TV series about LBD!

> > > Date: Fri, 21 Oct 2011 15:26:15 -0400

> > >

> > > Hi helen

> > >

> > > Omg - that's a lot of peeps in your family with a parkinsons or lewy body

diagnosis !! What kind of research are you being observed or tested with and

where ??

> > >

> > > I have heard of pd running in families but with LBD being so " new " a

diagnosis - it's good there are studies in motion !!

> > >

> > > Saw my mom today and she looks really bad again - she is back on the

carbilevedopa - which I think makes her worse but hospice says she needs it for

the shaking - she looks like she is losing some weight ! Still can't believe

this is my mom -

> > >

> > > Judy

> > >

> > > Judy R. Strauss LMSW PhD

> > >

> > > Lead Faculty

> > > University of Phoenix

> > >

> > > Jersey City Campus

> > > 100 Town Square Place

> > > |Jersey City, NJ 07310

> > > Cell-

> > > Email- Jrstr@...

> > >

> > > On Oct 21, 2011, at 12:27 PM, " helen_medsger "

wrote:

> > >

> > > > Judy:

> > > >

> > > > Currently the medical and research communities can't definitely say that

it runs in families, however, there are genetic anomalies that they are looking

at. My sister (61) has a DX of LBD, my father died with LBD, my youngest brother

(52) has a PD DX with mild cognitive impairment and our first cousin has PD

(78).

> > > >

> > > > Our entire generation is in research, so we continue to hope that they

will find something that will help answer the genetics question.

> > > >

> > > >

> > > > > > >

> > > > > > ...

> > > > > > > first reaction - When the episode starts the doctor explains what

the mayor can expect - it made me more sure than ever that mom indeed has LBD !

One of the issues that my mom didn't experience is hallucinations - she had

delusions - that we have no question about - but never saw " hallucinations "

and the doctor in fact mentions delusions and does not highlight hallucinations

-

> > > > > > >

> > > > > > ...

> > > > > > > QUESTION -

> > > > > > >

> > > > > > > Did I miss something or HOW DID THEY GIVE YHE DIAGNOSIS OF LBD TO

THE MAIN CHARACTER???? what tests or examination was done that lead to the

diagnosis ?? Symptoms ??r

> > > > > > >

> > > > > >

> > > > > >

> > > > >

> > > > >

> > > > >

[Guest guest]

Hi sandie

I travel to give papers in my field - so if anything ever comes up in Iowa I

will certainly keep u in mind !

This must be a long trip to new zealand - I hope you have your honey with you !!

Looking forward to hearing back from u about your visit !

Best,

Judy

Judy R. Strauss LMSW PhD

Lead Faculty

University of Phoenix

Jersey City Campus

100 Town Square Place

|Jersey City, NJ 07310

Cell-

Email- Jrstr@...

> Hi Judy- Thank you for the wonderful travel wishes. Love your wording " have a

meaningful visit to New Zealand " . Also, how thoughtful to offer your place to

stay in NYC. Really toughed my heart. Sames goes for you if you make it to the

midwest - namely Iowa. Do take care of yourself and I shall check in later a few

times. Big Iowa hugs- Sandie

>

> ----- Re: Re: New TV series about LBD!

> > > > Date: Fri, 21 Oct 2011 15:26:15 -0400

> > > >

> > > > Hi helen

> > > >

> > > > Omg - that's a lot of peeps in your family with a parkinsons or lewy

body diagnosis !! What kind of research are you being observed or tested with

and where ??

> > > >

> > > > I have heard of pd running in families but with LBD being so " new " a

diagnosis - it's good there are studies in motion !!

> > > >

> > > > Saw my mom today and she looks really bad again - she is back on the

carbilevedopa - which I think makes her worse but hospice says she needs it for

the shaking - she looks like she is losing some weight ! Still can't believe

this is my mom -

> > > >

> > > > Judy

> > > >

> > > > Judy R. Strauss LMSW PhD

> > > >

> > > > Lead Faculty

> > > > University of Phoenix

> > > >

> > > > Jersey City Campus

> > > > 100 Town Square Place

> > > > |Jersey City, NJ 07310

> > > > Cell-

> > > > Email- Jrstr@...

> > > >

> > > > On Oct 21, 2011, at 12:27 PM, " helen_medsger "

wrote:

> > > >

> > > > > Judy:

> > > > >

> > > > > Currently the medical and research communities can't definitely say

that it runs in families, however, there are genetic anomalies that they are

looking at. My sister (61) has a DX of LBD, my father died with LBD, my youngest

brother (52) has a PD DX with mild cognitive impairment and our first cousin has

PD (78).

> > > > >

> > > > > Our entire generation is in research, so we continue to hope that they

will find something that will help answer the genetics question.

> > > > >

> > > > >

> > > > > > > >

> > > > > > > ...

> > > > > > > > first reaction - When the episode starts the doctor explains

what the mayor can expect - it made me more sure than ever that mom indeed has

LBD ! One of the issues that my mom didn't experience is hallucinations - she

had delusions - that we have no question about - but never saw " hallucinations

" and the doctor in fact mentions delusions and does not highlight

hallucinations -

> > > > > > > >

> > > > > > > ...

> > > > > > > > QUESTION -

> > > > > > > >

> > > > > > > > Did I miss something or HOW DID THEY GIVE YHE DIAGNOSIS OF LBD

TO THE MAIN CHARACTER???? what tests or examination was done that lead to the

diagnosis ?? Symptoms ??r

> > > > > > > >

> > > > > > >

> > > > > > >

> > > > > >

> > > > > >

> > > > > >

[Guest guest]

Hi Judy- You will always have a place to stay in Des Moines. :-) Yup, hubby

will be with me. He's looking forward to seeing his family when we are there.

He has 2 brothers and 1 sister and their families that live there. Wonderful

people, very welcoming and warm. We fly to Denver then to LAX. From LAX it's

a 12:40 - 13 hr flight. Not looking forward to that but definitely can hardly

wait to see my in-laws.

Take care! Sandie

----- Re: Re: New TV series about LBD!

> > > > Date: Fri, 21 Oct 2011 15:26:15 -0400

> > > >

> > > > Hi helen

> > > >

> > > > Omg - that's a lot of peeps in your family with a parkinsons or lewy

body diagnosis !! What kind of research are you being observed or tested with

and where ??

> > > >

> > > > I have heard of pd running in families but with LBD being so " new " a

diagnosis - it's good there are studies in motion !!

> > > >

> > > > Saw my mom today and she looks really bad again - she is back on the

carbilevedopa - which I think makes her worse but hospice says she needs it for

the shaking - she looks like she is losing some weight ! Still can't believe

this is my mom -

> > > >

> > > > Judy

> > > >

> > > > Judy R. Strauss LMSW PhD

> > > >

> > > > Lead Faculty

> > > > University of Phoenix

> > > >

> > > > Jersey City Campus

> > > > 100 Town Square Place

> > > > |Jersey City, NJ 07310

> > > > Cell-

> > > > Email- Jrstr@...

> > > >

> > > > On Oct 21, 2011, at 12:27 PM, " helen_medsger "

wrote:

> > > >

> > > > > Judy:

> > > > >

> > > > > Currently the medical and research communities can't definitely say

that it runs in families, however, there are genetic anomalies that they are

looking at. My sister (61) has a DX of LBD, my father died with LBD, my youngest

brother (52) has a PD DX with mild cognitive impairment and our first cousin has

PD (78).

> > > > >

> > > > > Our entire generation is in research, so we continue to hope that they

will find something that will help answer the genetics question.

> > > > >

> > > > >

> > > > > > > >

> > > > > > > ...

> > > > > > > > first reaction - When the episode starts the doctor explains

what the mayor can expect - it made me more sure than ever that mom indeed has

LBD ! One of the issues that my mom didn't experience is hallucinations - she

had delusions - that we have no question about - but never saw " hallucinations

" and the doctor in fact mentions delusions and does not highlight

hallucinations -

> > > > > > > >

> > > > > > > ...

> > > > > > > > QUESTION -

> > > > > > > >

> > > > > > > > Did I miss something or HOW DID THEY GIVE YHE DIAGNOSIS OF LBD

TO THE MAIN CHARACTER???? what tests or examination was done that lead to the

diagnosis ?? Symptoms ??r

> > > > > > > >

> > > > > > >

> > > > > > >

> > > > > >

> > > > > >

> > > > > >