Guest guest Posted December 5, 2011 Report Share Posted December 5, 2011 Sending out prayers, Jan, that your January goes peacefully. Will be thinking of you and Jim and all the good you did for him while he was sick. Hope you get some signs that he is thinking of you. Hugs, Donna R Different day, different diagnosis > > > > > > We took Dad (dx Parkinson's in 2010, then LBD early 2011) to Sydney > > > today to see a new neurologist today. This is her: > > > http://www.mq.edu.au/about_us/faculties_and_departments/faculty_of_human\ > > > _sciences/asam/our_staff/dr_carolyn_f_orr/. For the record, she seems to > > > be an incredible mind and was so thoughtful regarding Dad's condition > > > and feelings. I had forewarned her that his last neuro made some > > > negative comments that had impacted greatly on Dad's depression. > > > > > > We hadn't been happy that since refusing to give Dad any more Seroquel > > > after two days of hell, a couple of months ago, his previous neuro now > > > had him on no meds for LBD at all aside from a tiny dose of Sinemet. We > > > were hoping Dr Orr (the new neuro) may be able to offer some clarity and > > > possibly a better quality of life as Dad's mood had taken a serious turn > > > for the worse. > > > > > > To cut a long story (and 1.5 hour consultation) short, Dr Orr said that > > > Dad does not have LBD. She has instead diagnosed him with PDD > > > (Parkinson's Disease Dementia). She said the tell-tale sign was the fact > > > that Dad had an onset of Parkinson's-related symptoms years before any > > > cognitive decline - something she said just doesn't happen with LBD as > > > it's usually the other way around (ie. cognitive decline, with later > > > Parkinsonian symptoms). I was always suspicious of Dad's diagnosis of > > > LBD as everyone always mentioned hallucinations which Dad didn't really > > > have. > > > > > > I recall someone on here recently saying that a diagnosis of PDD was > > > almost always later confirmed as LBD. But from what I have now > > > researched, as well as what we were told today, it seems highly unlikely > > > that Dad does have LBD. > > > > > > I'm wondering if anyone has had any similar experiences? This is the > > > third diagnosis in less than 2 years. We absolutely trust the woman we > > > saw today and everything she's told us makes sense but the comments of > > > someone on here recently keep replaying in my mind. > > > > > > Thanks, Tania. > > > > > > ------------------------------------ > > > > > > Welcome to LBDcaregivers. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2011 Report Share Posted December 5, 2011 Thank you Donna. I have felt Jim's presence many times. It's nice to hear from you. Hugs back at ya! Jan Sending out prayers, Jan, that your January goes peacefully. Will be thinking of you and Jim and all the good you did for him while he was sick. Hope you get some signs that he is thinking of you. Hugs, Donna R Different day, different diagnosis > > > > > > We took Dad (dx Parkinson's in 2010, then LBD early 2011) to Sydney > > > today to see a new neurologist today. This is her: > > > http://www.mq.edu.au/about_us/faculties_and_departments/faculty_of_human\ > > > _sciences/asam/our_staff/dr_carolyn_f_orr/. For the record, she seems to > > > be an incredible mind and was so thoughtful regarding Dad's condition > > > and feelings. I had forewarned her that his last neuro made some > > > negative comments that had impacted greatly on Dad's depression. > > > > > > We hadn't been happy that since refusing to give Dad any more Seroquel > > > after two days of hell, a couple of months ago, his previous neuro now > > > had him on no meds for LBD at all aside from a tiny dose of Sinemet. We > > > were hoping Dr Orr (the new neuro) may be able to offer some clarity and > > > possibly a better quality of life as Dad's mood had taken a serious turn > > > for the worse. > > > > > > To cut a long story (and 1.5 hour consultation) short, Dr Orr said that > > > Dad does not have LBD. She has instead diagnosed him with PDD > > > (Parkinson's Disease Dementia). She said the tell-tale sign was the fact > > > that Dad had an onset of Parkinson's-related symptoms years before any > > > cognitive decline - something she said just doesn't happen with LBD as > > > it's usually the other way around (ie. cognitive decline, with later > > > Parkinsonian symptoms). I was always suspicious of Dad's diagnosis of > > > LBD as everyone always mentioned hallucinations which Dad didn't really > > > have. > > > > > > I recall someone on here recently saying that a diagnosis of PDD was > > > almost always later confirmed as LBD. But from what I have now > > > researched, as well as what we were told today, it seems highly unlikely > > > that Dad does have LBD. > > > > > > I'm wondering if anyone has had any similar experiences? This is the > > > third diagnosis in less than 2 years. We absolutely trust the woman we > > > saw today and everything she's told us makes sense but the comments of > > > someone on here recently keep replaying in my mind. > > > > > > Thanks, Tania. > > > > > > ------------------------------------ > > > > > > Welcome to LBDcaregivers. > > > > > > Quote Link to comment Share on other sites More sharing options...
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