excessive sleep

[Guest guest]

Olga,

My Mom couldn't take most meds.  It just put her out.  So if I did give her

meds it was a smaller amount than the MD gave her.  She just couldn't take

them.  But what you are talking about doesn't sound like constipation.  We

have people who are sleeping and their caregiving say it looks like a seizure. 

And they stay out.  If you know how to go to the bottom of the messages and get

to the Yahoo site, we have a lot of files with  lots of info.

Hugs,

Donna R

 

 

excessive sleep

 

What is precisely meant by this?

My husband was fairly reasonable. Than after one of his wanders he got a

UTI (urinary infection), which put in 2 hospitals for 4 weeks (with a

week's break in between). He just couldn't wake up and couldn't walk.

Then a week out of the hospital, he wandered off for about 4 hours and came

home on his own, and started to get drowsy, until finally he couldn't walk

again or he couldn't be woken up to walk. I got some antibiotics for him,

which seemed to help for about 3 days, but then he started getting

unwakable again. So, I sent him to the hospital again. The hospital seem a

bit annoyed. They say all it was is constipation. I of course panic a bit

because our rented flat has stairs and the bathroom is in between 2 floors.

Does this sound like LBD or is it something else (perhaps in conjunction

with LBD)? I mean there's excessive sleep (as in being overtired, whether

for a reason or not) and then there's this unwakable, debilitating sleep.

Is this LBD or something else?

Also, during his UTI episode, they finally started him on Rivastigmine.

Could it be causing all the trouble?

Any thoughts are greatly appreciated.

Thanks,

Olga

[Guest guest]

Hello everyone,

Thank you to Janet and Donna for their replies.

I am satisfied my husband has LBD: years of disturbed/active sleep,

hallucinations of people and animals, Capgras, reduplicative paramnesia,

cognitive impairment vs. memory loss, possible onset of Parkisonism just

now. And we have the official diagnosis from the National Neurological

Hospital.

I'm much younger than him and we live in London, where things might be a

bit easier in certain respects.

Before I married him I cared for a friend who had Alzheimer's (in my

estimation). And, my god, what a comparatively easy ride that was. But I do

have a first-hand experience with a different dementia.

What I'd like to know, if anyone has encountered this... Is it known for

LBD to cause unwakable sleep, say, for 6 days? So I can't wake him up and

persuade him to walk anywhere? I took him to the hospital very late on

Tuesday and every time I'd visit he'd be sleeping through the entire visit;

talks in his sleep and eats in his sleep. Wouldn't leave the bed. Today,

Sunday, was the first day he was awake. Chattering away nonsense but awake,

which is all that matters to me right now.

Another thing I would like to know, if anyone has observed this, could

Rivastigmine (1.5 mg twice a day; pills not patches) cause big problems?

And if so, what kind of problems?

I have the diagnosis and I'm apprehensive of unmanageable practical

problems. But it's difficult making decisions without understanding what's

LBD and what's not.

Again, any thoughts are greatly appreciated,

Many thanks,

Olga

[Guest guest]

Hi Olga,

With the progression of LBD many of our los spend much time with eyes closed,

not necessarily asleep but pretty much unresponsive. I wonder if that is where

your husband is now. I well remember spoon feeding my mom with her eyes closed

through the whole meal. She lived in a nh an hour from me but I would visit at

least once a week if not more and one time I went a full month without seeing

her eyes open. One visit when I took her, eyes closed, looking to be asleep, to

a church service the chaplin asked how many remembered walking through the

wildflowers in the spring. Surprisingly mom's hand went up. The chaplin and I

locked eyes, both very astonished. That's when I knew she was often in the

moment without my realizing it. Just a thought.

>

> Hello everyone,

> Thank you to Janet and Donna for their replies.

>

> I am satisfied my husband has LBD: years of disturbed/active sleep,

> hallucinations of people and animals, Capgras, reduplicative paramnesia,

> cognitive impairment vs. memory loss, possible onset of Parkisonism just

> now. And we have the official diagnosis from the National Neurological

> Hospital.

>

> I'm much younger than him and we live in London, where things might be a

> bit easier in certain respects.

>

> Before I married him I cared for a friend who had Alzheimer's (in my

> estimation). And, my god, what a comparatively easy ride that was. But I do

> have a first-hand experience with a different dementia.

>

> What I'd like to know, if anyone has encountered this... Is it known for

> LBD to cause unwakable sleep, say, for 6 days? So I can't wake him up and

> persuade him to walk anywhere? I took him to the hospital very late on

> Tuesday and every time I'd visit he'd be sleeping through the entire visit;

> talks in his sleep and eats in his sleep. Wouldn't leave the bed. Today,

> Sunday, was the first day he was awake. Chattering away nonsense but awake,

> which is all that matters to me right now.

>

> Another thing I would like to know, if anyone has observed this, could

> Rivastigmine (1.5 mg twice a day; pills not patches) cause big problems?

> And if so, what kind of problems?

>

> I have the diagnosis and I'm apprehensive of unmanageable practical

> problems. But it's difficult making decisions without understanding what's

> LBD and what's not.

>

> Again, any thoughts are greatly appreciated,

> Many thanks,

> Olga

>

>

>