New and looking for answers

[Guest guest]

Hi,

I'm new here and am looking for some guidance. My husband hasn't been diagnosed

or even seen regarding this matter as of yet. Here's some history...he's very

young at least in terms of dementia, he's only 35. His grandfather had

alzheimers. He is under a neurologist's care for what they term restless leg

but I think is a small fiber neuropathy...he has burning in his feet/legs but no

voluntary movements and moving them doesn't relieve any sensations. His toes

used to move involuntarily and he used to twitch in his sleep but gabapentin is

helping that. He was on Lyrica for a short time but he had horrible nightmares

if killing himself so they switched him. He's had constipation problems from

childhood but coffee and magnesium seem to keep him regular. They've diagnosed

him with Irritable Bowel Syndrome....dairy seems to be a trigger.

Here's my concern. When he was in his 20's he had two instances of

hallucinations...he doesn't think they were hallucinations. He believes it was a

real instance but that it was a spirit (not an actual living person). He could

describe the man in detail and said the man shook his leg (it was at night but

he was awake...hadn't gone to sleep yet....he found out afterwards that the

person he described sounded like the previous owner before my husband was even

born). The other instance was when he saw a bottle cap fly off the counter and

noone else was around. Those were the two he's told me about from yrs ago. In

the last year he's told me about a few more that happened now where he can

describe the people. He's also always seen things for many years since his

20's....like a feeling someone there, seeing a motion out if the corner of his

eye etc. He swears someone us there at work...the lights go off and on, etc. He

truly believes in ghosts, spirits and paranormal activity. Anyway, in the last

year he was sleeping and swears he woke up and saw an image of a little boy

(mind u this was at my parents house where my father swears there's a boy ghost

based on old articles). He also saw at our house a guy in a trench coat on the

side if our house when mowing the lawn...again only happened once. He also saw

a while ago a man in khakis and polo shirt hauling a** as my husband puts it

through his bldg at work. He thought at first it was his dad (they own the

business together) but realized it wasnt....I believe he may have initially

tried to say something to him but not sure. When he realized it wasn't his dad

he assumed it was another spirit. About a month or so ago he saw this person

again (same exact thing) and then again just about a week or so ago. This was

the first exp of an image recurring. A few months ago he saw a little boy at

work (doesnt know if ssme boy from before as faces arent Always cleaTheseus says

the boy (spirit to him) was messing with him like paranormal activity....things

were moved and he was the only one there and knows he didn't move them. He said

he thinks his grandfathers spirit is there cause the lights go off and when he

says gramps turn the lights on they go back on....again hd believes paranormal

activity. These episodes are sporadic and more often it's just a feeling of

someone there or shadows or motions he sees out of the corner of his eye. I was

getting concerned, especially of the one that rebutted 3 times and looked up

hallucinations and found all info on LBD. He never hears voices and he said the

" spirits " never try to contact/speak to him. I'm scared this is the start of the

dementia. He does have some autonomic issues....constipation, irritable bowel

syndrome, burning feet/legs that I think are misdiagnosed, sometimes his

fingers/toes are cold and I don't know why (not all the time), his ears get

really red after a shower, his feet would twitch when sleeping, his body shook

really bad once and his hand another time last year while sleeping. He had a

sleep study and all was fine but he had Lyrica in him at the time (and in his

system for about a week) so that could have skewed it and his twitches/shaking

weren't all the time. Dr said his brain MRI looked good last year and his EEG

had very mild bursts of beta that he wasn't concerned about....they were

testing him because of the burning and twitching at night. Does this sound

like the very start of LBD, even at 35?

Thank you in advance for your help.