drugs for LBD you don't want used

[Guest guest]

My moms Dr has put the drugs she has had a negative reaction on her allergic

list. We have not had a problem with any of these being given to her once they

were put on the list.

The healthcare workers usually don't take the time to challenge each item on

the list, and ask for the reaction to see if they can use it anyway. They

simply use something that isn't listed as an allergenic. The chances of

liability for using things already listed as allergies are just too high for

them to risk the legal action.

Why not make use of this for your LBD folks and expand their list of allergies

to include the drugs listed on this website as being dangerous to them?

[Guest guest]

This is an excellent suggestion I had not thought about. Thank you. I'll make

sure my husband's " allergic " drugs include these.

C

  

________________________________

To: LBDcaregivers

Sent: Wednesday, December 21, 2011 12:52 PM

Subject: drugs for LBD you don't want used

 

My moms Dr has put the drugs she has had a negative reaction on her allergic

list. We have not had a problem with any of these being given to her once they

were put on the list.

The healthcare workers usually don't take the time to challenge each item on the

list, and ask for the reaction to see if they can use it anyway. They simply

use something that isn't listed as an allergenic. The chances of liability for

using things already listed as allergies are just too high for them to risk the

legal action.

Why not make use of this for your LBD folks and expand their list of allergies

to include the drugs listed on this website as being dangerous to them?

[Guest guest]

When I did this a few years ago, I went over the listing with a pharmacist

knowledgeable about LBD and meds to be avoided. We were careful not to include

meds that are used at end of life for comfort. Then, it's just a matter of

remaining diligent.

My mother, who will be 90 on Christmas Eve, lives in an ALF with a special

category for advanced residents; their philosophy is for aging in place unless

skilled nursing is involved. I have placed an envelope in Mom's binder that

contains detailed instructions for emergency personnel (at this point, though, a

trip to the hospital would not be done) with specific details regarding

medications. I have also kept one in the glove compartment of my car so that I

could have it quickly available at all times. My mother was briefly given both

Haldol and Ativan while hospitalized for a week in 2007, prior to the diagnosis

of LBD. Within two months, she lost the ability to walk. Several months later,

she could no longer support her weight. Within less than a year, she required

total care. She was only slightly over a year into a diagnosis of Mild

Cognitive Impairment when this hospitalization was ordered due to a UTI and

dehydration. I discovered this group some time after this and credit it for

teaching me what the medical staff personnel do not know. It is in this way

that we can be the best advocate for our loved ones.

Best wishes,

Lynn in Florida

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>

> This is an excellent suggestion I had not thought about. Thank you. I'll make

sure my husband's " allergic " drugs include these.

>

> C

>