Guest guest Posted January 26, 2011 Report Share Posted January 26, 2011 My sister, 74 years of age, was diagnosed w/parkinson's severals ago and put on meds for parkinson. A couple of years ago she started seeing people in her house, seeing black lace around things especially curtains. She was never afraid of these people but couldn't understand why they were in her house. In November early one morning she left her home barefooted and walked down the road about 1/2 mile before someone got to her. She was in the hospital for approximately three weeks and was diagnosed with LBD. They have taken her off all parkinson's meds because of the possibility of increasing the hallucinations. She is now living in a very nice assisted living facility. They have tried Seroquil, Risperdal, Ativan,Paxil and everything works against her. They are now going to try Abilify. I see her going down every day. She was a very independent woman who lived by herself for close to 20 years. Now she is terrified to be alone, very parnoid. She thinks they are making movies about her, bugging her room, monitoring her phone calls, etc. She was able to get up and down from the chair and coach by herself, but these last few days she has to have assistance. Her feet seem to " freeze " when she tries to walk. We ask her to move her feet, but she says she can't. It is so troubling to see her go through this and not know what to do and knowing the doctors know little as to what to do. The doctors thinks she is probably mid-sage. I go see her most days twice a day and we have sitters during the night. Every day there is something new going on. Today she was complaining of legs and neck pain. She has just about quit eating. We have to sit and encourage her to eat what she does. She has lost 18 pounds in about three months. Can anyone help us know where were are with this awlful disease or any medication that seems to work. I know everyone is different. We want to keep her out of the nursing home as long as possible, but I'm not sure how long she will be able to stay at the assisted living. Any help would be greatly appreciated. Thanks Quote Link to comment Share on other sites More sharing options...
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