Re: Imogene, Joan and Raquel

[Guest guest]

Hi ,

It is good to hear from you.

The hard part of this disease is that it takes some time to be diagnosed

correctly, and due to that, my Mom was given meds that she reacted negatively

to. She went into the hospital as one person and came out with very marked

decline. I never put her in a skilled nursing facility, and I did my best to

take care of her until I went out of the room about 5 minutes and when I came

back she had passed away. I know that she had bad meds, but that was because

the doctor that was treating her in the hospital was not aware of LBD, and by

the time that I knew these meds were bad, they had already wreaked havoc.

I am not angry at anyone including me, because the knowledge of LBD was not

widespread...but I try in all my contacts with people to talk about LBD. A

couple weeks ago I gave the website info to a man and he called me a couple

hours later telling me that he is pretty sure that a person he knows has

LBD...we might have saved one from getting the wrong treatment.

I used to feel bad that I didn't know, and because I may have put some stress in

her life, but when I learned about LBD, I knew that I did the best that I could

with the absence of knowing about LBD. YOu know, there are always the 'wish I

did this' 'wish I didn't do that' and it is useless because we cannot go back

and have to realize with what we had to work with, we did the very best that we

could, and our parents, spouses, siblings do know that is what we did and are

eternally grateful for our love and caring.

>

> Hello Ladies! I too keep everyone in this group in my thoughts and prayers

though I may go MIA every once in a while. I owe a lot to this group and will

be forever grateful. You guys kept me sane and showed me more love than my own

family. Not to mention all the knowledge I learned from all you wonderful

people!

>

> Things have been a little better, though I still and will ALWAYS miss my

daddy. There are days that are better than others although sometimes I go

through a tear-fest. I am at peace that I fought for him and did everything I

could possibly do to help him, just as you all courageous people have done or

are still doing. My daddy is no longer in any pain and is the whole, handsome,

strong person that he once was and I take comfort in that.

>

> I just wanted to say hello to you ladies and everyone in this group. I love

you all.

>

> Hugs and many blessings,

>

>

>

> from NYC

>

> Daughter of Celestino (Tino) Suarez

> Misdiagnosed for years. Diagnosed with LBD March 2009, but we now know he's

had

> it for at least 4-5 years.

>

> God called him home on October 27, 2009. Rest in peace, Daddy.

> (January 29, 1930 - October 27, 2009)

>

[Guest guest]

Hi ,

You are a doll yourself, and you can be at peace knowing you did all you

could. You were there for me and with me through my journey, and dear I

thank you so much.

I did all I could for my Don, but in the end we have to handle what we

know is going to happen. It is a rough journey no matter how you cut it.

We fought ignorance in ourselves, and in everyone else. We are all

thankful for this List. I, too, learned a great deal. Thank goodness for

and Donna. And yes, we learned from each other. Thank you all for being

here. If we couldn't help, we gave support. You all were my life line.

It appalled me at the lack of knowledge, yet the arrogance of nursing home

personnel. I had more than I could handle with that. Don was given

medication without my knowledge. The things not to give him.

But, we can't fix things that are broken. We can only try to undo some of

the mistakes, to try to postpone the inevitable. Sometimes we don't

succeed. But, we know we tried with all our hearts.

My heart goes out to all of you that have endured this journey and are

still here helping. And, my heart goes out to all of you going through the

journey.

, you have been a peach. I do hope you'll remain to help those who

are suffering with their loved ones now. You are needed as are all of us. I

have been MIA a lot, too. But, as you know, it has been hard this first

year, (well, nine months) to help anyone but myself. I hope to improve in that.

Love a lot, and do be happy,

Imogene

In a message dated 1/25/2011 3:03:57 P.M. Central Standard Time,

dsd1@... writes:

Hello Ladies! I too keep everyone in this group in my thoughts and

prayers though I may go MIA every once in a while. I owe a lot to this group

and

will be forever grateful. You guys kept me sane and showed me more love

than my own family. Not to mention all the knowledge I learned from all

you wonderful people!

Things have been a little better, though I still and will ALWAYS miss my

daddy. There are days that are better than others although sometimes I go

through a tear-fest. I am at peace that I fought for him and did

everything I could possibly do to help him, just as you all courageous people

have

done or are still doing. My daddy is no longer in any pain and is the

whole, handsome, strong person that he once was and I take comfort in that.

I just wanted to say hello to you ladies and everyone in this group. I

love you all.

Hugs and many blessings,