Guest guest Posted December 21, 2011 Report Share Posted December 21, 2011 Thanks for nearly five years of support. I don't say much but read faithfully. My dear Mother went to join my dad and brothers and Jesus at the age of 89, on December 9th. She is free ove the Lewy demon at last. Becky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2011 Report Share Posted December 21, 2011 Becky, Condolences to you and your family at this Holiday time. I do hope you can still enjoy the Holiday. Celebrate her life this  year. Hugs, Donna R Mom  Thanks for nearly five years of support. I don't say much but read faithfully. My dear Mother went to join my dad and brothers and Jesus at the age of 89, on December 9th. She is free ove the Lewy demon at last. Becky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2011 Report Share Posted December 21, 2011 Becky, my most sincere condolences. Big heartfelt hugs, from NYC Daughter of Celestino (Tino) Suarez Misdiagnosed for years. Diagnosed with LBD March 2009, but we now know he's had it for at least 4-5 years. God called him home on October 27, 2009. Rest in peace, Daddy. (January 29, 1930 - October 27, 2009) > > Thanks for nearly five years of support. I don't say much but read faithfully. My dear Mother went to join my dad and brothers and Jesus at the age of 89, on December 9th. She is free ove the Lewy demon at last. > Becky > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2011 Report Share Posted December 21, 2011 Dear Becky, My sincere condolences on the loss of your Mother. Regards, Helene in NY > > Thanks for nearly five years of support. I don't say much but read faithfully. My dear Mother went to join my dad and brothers and Jesus at the age of 89, on December 9th. She is free ove the Lewy demon at last. > Becky > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2012 Report Share Posted January 8, 2012 Freda, Glad to hear you are back on track. And glad your Mom is feeling better! Keep up the good work. This can happen more than once. hugs, Donna R mom  Hi Everyone, since my mom has been home now exactly 2 weeks she is not having any hullucinations. She gets up every morning and dresses herself. She is eating and drinking. She is on 2 excedrins when needed and seraquil at night. When we ask her how she is feeling she says that she feels dumb. At night is her worst time, she hurts all over but not bad. She gets up several times to go to the bathroom. Mom still can't be left alone but she is back to her old self , yesterday she got dressed and sat on the porch. Hospice still comes out 2 times a week and she refuses to talk to them. She says that they followed her from the hospital and that they were mean and gave her bad meds. This is a far cry from her being sent home to die. Her memory is very clear and she wants to go places now. This has been a miracle. I just wish that people could find your site sooner to become educated on LBD before the quacks at the hospitals kill them. I know that we are probably at a lull in her disease but her quality of life for now is wonderful. Now we have the choice to decide on her care. I'm not in denial but thankful that we have more time to make a plan for her disease. Thank you everyone. Freda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2012 Report Share Posted January 8, 2012 So good to hear this news! Are you able to persue a good LBD savvy neurologist and is brother a believer yet? We used 2 extra strength Tylenol every 6 hours for my mother in laws pain at the advice of her neuro and that worked good for a couple years. I always told my mother in law she was not dumb or stupid (she said she felt dumb or stupid many times in the last 6 months) but rather the illness is causing these things. It was a little relief for her that she suddenly hadn't turned into a dummy. Just wishing you and your mother and family all the best - Dorothy from cell phone > Hi Everyone, since my mom has been home now exactly 2 weeks she is not having any hullucinations. She gets up every morning and dresses herself. She is eating and drinking. She is on 2 excedrins when needed and seraquil at night. When we ask her how she is feeling she says that she feels dumb. At night is her worst time, she hurts all over but not bad. She gets up several times to go to the bathroom. Mom still can't be left alone but she is back to her old self , yesterday she got dressed and sat on the porch. Hospice still comes out 2 times a week and she refuses to talk to them. She says that they followed her from the hospital and that they were mean and gave her bad meds. This is a far cry from her being sent home to die. Her memory is very clear and she wants to go places now. This has been a miracle. I just wish that people could find your site sooner to become educated on LBD before the quacks at the hospitals kill them. I know that we are probably at ! a lull in her disease but her quality of life for now is wonderful. Now we have the choice to decide on her care. I'm not in denial but thankful that we have more time to make a plan for her disease. Thank you everyone. Freda > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2012 Report Share Posted January 8, 2012 Mom will be seeing a group of research drs from IU as a out patient. Dr Farlow was ranked top 20 nerologist in country and he is working with Dr. Mathews from Mayo clinic My brother still is not convinced. ________________________________ To: " LBDcaregivers " <LBDcaregivers > Sent: Sunday, January 8, 2012 10:39 AM Subject: Re: mom  So good to hear this news! Are you able to persue a good LBD savvy neurologist and is brother a believer yet? We used 2 extra strength Tylenol every 6 hours for my mother in laws pain at the advice of her neuro and that worked good for a couple years. I always told my mother in law she was not dumb or stupid (she said she felt dumb or stupid many times in the last 6 months) but rather the illness is causing these things. It was a little relief for her that she suddenly hadn't turned into a dummy. Just wishing you and your mother and family all the best - Dorothy from cell phone > Hi Everyone, since my mom has been home now exactly 2 weeks she is not having any hullucinations. She gets up every morning and dresses herself. She is eating and drinking. She is on 2 excedrins when needed and seraquil at night. When we ask her how she is feeling she says that she feels dumb. At night is her worst time, she hurts all over but not bad. She gets up several times to go to the bathroom. Mom still can't be left alone but she is back to her old self , yesterday she got dressed and sat on the porch. Hospice still comes out 2 times a week and she refuses to talk to them. She says that they followed her from the hospital and that they were mean and gave her bad meds. This is a far cry from her being sent home to die. Her memory is very clear and she wants to go places now. This has been a miracle. I just wish that people could find your site sooner to become educated on LBD before the quacks at the hospitals kill them. I know that we are probably at ! a lull in her disease but her quality of life for now is wonderful. Now we have the choice to decide on her care. I'm not in denial but thankful that we have more time to make a plan for her disease. Thank you everyone. Freda > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2012 Report Share Posted January 8, 2012 thank you, I know that we are at the beginning of a long journey. ________________________________ To: LBDcaregivers Sent: Sunday, January 8, 2012 10:13 AM Subject: Re: mom  Freda, Glad to hear you are back on track. And glad your Mom is feeling better! Keep up the good work. This can happen more than once. hugs, Donna R mom  Hi Everyone, since my mom has been home now exactly 2 weeks she is not having any hullucinations. She gets up every morning and dresses herself. She is eating and drinking. She is on 2 excedrins when needed and seraquil at night. When we ask her how she is feeling she says that she feels dumb. At night is her worst time, she hurts all over but not bad. She gets up several times to go to the bathroom. Mom still can't be left alone but she is back to her old self , yesterday she got dressed and sat on the porch. Hospice still comes out 2 times a week and she refuses to talk to them. She says that they followed her from the hospital and that they were mean and gave her bad meds. This is a far cry from her being sent home to die. Her memory is very clear and she wants to go places now. This has been a miracle. I just wish that people could find your site sooner to become educated on LBD before the quacks at the hospitals kill them. I know that we are probably at a lull in her disease but her quality of life for now is wonderful. Now we have the choice to decide on her care. I'm not in denial but thankful that we have more time to make a plan for her disease. Thank you everyone. Freda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2012 Report Share Posted January 8, 2012 Freda, Wow. How terrific that you've got so much of your mom back. I wouldn't care if she said the hospice team were circus clowns if I could have my mom doing the things your mom can do now. You must be so relieved. I hope things continue on the same track for a long time to come. Kathy Kate Knapp > ** > > > So good to hear this news! Are you able to persue a good LBD savvy > neurologist and is brother a believer yet? We used 2 extra strength Tylenol > every 6 hours for my mother in laws pain at the advice of her neuro and > that worked good for a couple years. I always told my mother in law she was > not dumb or stupid (she said she felt dumb or stupid many times in the last > 6 months) but rather the illness is causing these things. It was a little > relief for her that she suddenly hadn't turned into a dummy. > > Just wishing you and your mother and family all the best > > - Dorothy > from cell phone > > > > > Hi Everyone, since my mom has been home now exactly 2 weeks she is not > having any hullucinations. She gets up every morning and dresses herself. > She is eating and drinking. She is on 2 excedrins when needed and seraquil > at night. When we ask her how she is feeling she says that she feels dumb. > At night is her worst time, she hurts all over but not bad. She gets up > several times to go to the bathroom. Mom still can't be left alone but she > is back to her old self , yesterday she got dressed and sat on the porch. > Hospice still comes out 2 times a week and she refuses to talk to them. She > says that they followed her from the hospital and that they were mean and > gave her bad meds. This is a far cry from her being sent home to die. Her > memory is very clear and she wants to go places now. This has been a > miracle. I just wish that people could find your site sooner to become > educated on LBD before the quacks at the hospitals kill them. I know that > we are probably at ! a lull in her disease but her quality of life for now > is wonderful. Now we have the choice to decide on her care. I'm not in > denial but thankful that we have more time to make a plan for her disease. > Thank you everyone. Freda > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.