re paralysis/surgery

[Guest guest]

Dawn

This is how I think:

Paralysis can happen if your chiari is progressive, but that is true for a very

small percentage of chiarians. Believe me, you will know when your chiari

becomes progressive. You will experience an increase in symptoms, like

swallowing problems, vision problems, possible sleep apnea, develop a syrinx,

pain and weakness in your limbs and more. It must go a very long way before you

get paralised. I honestly do not think you should worry about that.

The surgery is a very big intervention and has it's own complications, so you do

not want it if you can control your symptoms with meds.

I do think your chiari should be checked regularly, though. If you get more

symptoms or a syrinx you should consider surgery.

My daughter and I both have chiari. My herniation was 14mm. My symptoms were

very progressive after I fell on my head. I had no choice but to get surgery.

My daughter's herniation is borderline. She suffers severe migraines. She often

ended up in the ER. Now she is on meds to prevent the headaches. She sometimes

still suffer, but it is mostly under control.

We decided against surgery at this time, but if she develops other problems we

will definitely go for the surgery.

After my surgery she strongly decided against it. She saw what I went through

and it scared her off.

I recommend you read up about chiari so you will know all the symptoms and

complications. Knowledge is your best weapon to make an informed decision about

surgery.

It is not an easy decision, I know. Whatever you decide, you are still going to

wonder about the other choice you had.

I hope thi9s helps you a little.

Santa

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