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Re: For Wilbur

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Do not feel guilty for wishing for your Mom to die of other complications before

the final stages of LBD. Not a thing wrong with that, in my opinion. I prayed

that my Dad would be taken before the final stages of Alzheimer's and just as he

was entering the final stage, he got pneumonia and that is what he died of. We

had a very frank respiratory therapist in the hospital who told us he was losing

ground and that his father had made him promise that he would not put him on a

respirator if it ever became necessary and he eventually honored his father's

choice. He said that was where my father was headed. We knew my Dad would not

want that. The tech said that we could make him comfortable and let nature take

its course without the respirator. He died about 2 days after that.

With all the medical advancements, we are now faced with decisions that prior

generations never had to deal with. My husband has LBD and is, like your Mom,

getting to the stage that he is confused about toilet issues. Last night, for

instance, he bypassed the potty chair right by his bed and urinated on the

carpet in another area. He doesn't remember where the bathroom is, even though

it is nearby. He asks me all the time where he can pee. I pray for him, as I

did for my Dad, that God will take him before he gets to the worst stages of the

disease. I have shared this with his children and they agree with me. Why

would you NOT wish for the better result for your loved one?

God bless you,

Cassie

To: LBDcaregivers

From: lisaateacher@...

Date: Tue, 6 Dec 2011 03:51:54 +0000

Subject: Re: ? For Judy

Thanks Judy, Janet, , (I hope I didn't forget anyone). Mom is 86. I

feel guilty for saying that I hope she is taken by other sickness/problems

before her LBD gets too, too bad. When I read others say the similar things I

understand completely so I know this is a safe place for me to express those

thoughts, myself. I try comfort her now when she can't think of her words and

seems so sad and frustrated. She has recently started having so much confusion

about how the toilet works, of all things--not sure of the sequence of events.

It is so hard to see this happen. I feel fortunate that this has struck her so

late in life, compared to some of your stories. I am very glad this forum is

here for us to share.

(daughter and caregiver of Lois--86)

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Thank you, Cassie. This is what I mean about this being a " place " where we can

share these thoughts with those who understand. Your message was like a hug.

(daughter and caregiver of Lois-86)

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