Re: Stages of Lewy Body Dementia

[Guest guest]

go into the files section:

http://health.groups.yahoo.com/group/LBDcaregivers/files/

and into the folder marked:

LBD Phases

List of Phases put together by the LBD Caring Spouses Group

>

> Can anyone tell me the stages of what to expect? My wife was diag in 2004 with

Parkinsons and then in 2008 with LBD. are there any signs of the stages?

>

> Thank You

>

[Guest guest]

There are a lot of different scales that can be used. My suggestion would

be to Google LBD stages and see what you get. My first exposure was to

what is called the " scale " which has been around for quite some

time. It has six levels, with 6 as fully cognitive and 1 as the extreme

at the lower end. There are others, though. The members of the LBDA forum

put together another scale, with 1 as full cognition and 7 as the low end.

And there are others.

The best book I read for helping understand different stages was

Caregivers: Drowning in a Sea of Cognitive Challenges [Paperback] Delaune

Pollard<http://www.amazon.com/s/ref=ntt_athr_dp_sr_1?_encoding=UTF8 & sort=relevan\

cerank & search-alias=books & ie=UTF8 & field-author=Delaune%20Pollard>(Author,

Illustrator),

<http://www.amazon.com/s/ref=ntt_athr_dp_sr_2?_encoding=UTF8 & sort=relevanc\

erank & search-alias=books & ie=UTF8 & field-author=%20>(Editor)

There is a section in the middle of the book that equates different stages,

and levels in those stages (based on the scale), to the ages of

children. It has helped me understand Mom's cognitive losses. (The rest

of the book is worth reading, too.)

It's important to recognize that few people, if any, are entirely within

one level, or even stage. You will see characteristics of the stages on

either side of the one you believe your LO is at. I would say take every

scale with a grain of salt and make your own best judgement.

At the LBDA forum, there has been a lot of discussion about stages and

their value. I like to approximate a stage and know the others because it

helps me be ready for what may or may not come. Others think it is an

exercise in frustration. But if you're like me and like to be prepared,

even over-prepared, check out the LBDA forum but also just search the web.

And even if something doesn't claim to address LBD, if it addresses

dementia, you've got something to work with.

Good luck and best wishes.

Kathy

> **

>

>

> Can anyone tell me the stages of what to expect? My wife was diag in 2004

> with Parkinsons and then in 2008 with LBD. are there any signs of the

> stages?

>

> Thank You

>

>

>

--

Kate Knapp, OIT

University of Minnesota

" We ask ourselves, 'Who am I to be brilliant, gorgeous, talented and

fabulous?' Actually, who are you not to be? Playing small does not serve

the world. "

- Mandela

[Guest guest]

My apologies to Caring Spouses. I'd forgotten that you were the group that

put the LBDA offered stages together.

> There are a lot of different scales that can be used. My suggestion would

> be to Google LBD stages and see what you get. My first exposure was to

> what is called the " scale " which has been around for quite some

> time. It has six levels, with 6 as fully cognitive and 1 as the extreme

> at the lower end. There are others, though. The members of the LBDA forum

> put together another scale, with 1 as full cognition and 7 as the low end.

> And there are others.

>

> The best book I read for helping understand different stages was

> Caregivers: Drowning in a Sea of Cognitive Challenges [Paperback] Delaune

>

Pollard<http://www.amazon.com/s/ref=ntt_athr_dp_sr_1?_encoding=UTF8 & sort=relevan\

cerank & search-alias=books & ie=UTF8 & field-author=Delaune%20Pollard>(Author,

Illustrator),

>

<http://www.amazon.com/s/ref=ntt_athr_dp_sr_2?_encoding=UTF8 & sort=relevanc\

erank & search-alias=books & ie=UTF8 & field-author=%20>(Editor)

>

> There is a section in the middle of the book that equates different

> stages, and levels in those stages (based on the scale), to the ages

> of children. It has helped me understand Mom's cognitive losses. (The

> rest of the book is worth reading, too.)

>

> It's important to recognize that few people, if any, are entirely within

> one level, or even stage. You will see characteristics of the stages on

> either side of the one you believe your LO is at. I would say take every

> scale with a grain of salt and make your own best judgement.

>

> At the LBDA forum, there has been a lot of discussion about stages and

> their value. I like to approximate a stage and know the others because it

> helps me be ready for what may or may not come. Others think it is an

> exercise in frustration. But if you're like me and like to be prepared,

> even over-prepared, check out the LBDA forum but also just search the web.

> And even if something doesn't claim to address LBD, if it addresses

> dementia, you've got something to work with.

>

> Good luck and best wishes.

>

> Kathy

>

>

> On Tue, Dec 13, 2011 at 7:47 PM, mariesmac62 wrote:

>

>> **

>>

>>

>> Can anyone tell me the stages of what to expect? My wife was diag in 2004

>> with Parkinsons and then in 2008 with LBD. are there any signs of the

>> stages?

>>

>> Thank You

>>

>>

>>

>

>

>

> --

> Kate Knapp, OIT

> University of Minnesota

>

>

> " We ask ourselves, 'Who am I to be brilliant, gorgeous, talented and

> fabulous?' Actually, who are you not to be? Playing small does not serve

> the world. "

> - Mandela

>

>

--

Kate Knapp, OIT

University of Minnesota

" We ask ourselves, 'Who am I to be brilliant, gorgeous, talented and

fabulous?' Actually, who are you not to be? Playing small does not serve

the world. "

- Mandela

[Guest guest]

Kathy and ,

That scale they have is based on Alzheimers.  One has not been designed based

on LBD other than the one our other group of spouses put together. 

Hugs,

Donna R

: Wednesday, December 14, 2011 9:58:14 AM

Subject: Re: Stages of Lewy Body Dementia

 

There are a lot of different scales that can be used. My suggestion would

be to Google LBD stages and see what you get. My first exposure was to

what is called the " scale " which has been around for quite some

time. It has six levels, with 6 as fully cognitive and 1 as the extreme

at the lower end. There are others, though. The members of the LBDA forum

put together another scale, with 1 as full cognition and 7 as the low end.

And there are others.

The best book I read for helping understand different stages was

Caregivers: Drowning in a Sea of Cognitive Challenges [Paperback] Delaune

Pollard<

http://www.amazon.com/s/ref=ntt_athr_dp_sr_1?_encoding=UTF8 & sort=relevancerank & s\

earch-alias=books & ie=UTF8 & field-author=Delaune%20Pollard >(Author,

Illustrator),

<

http://www.amazon.com/s/ref=ntt_athr_dp_sr_2?_encoding=UTF8 & sort=relevancerank & s\

earch-alias=books & ie=UTF8 & field-author=%20 >(Editor)

There is a section in the middle of the book that equates different stages,

and levels in those stages (based on the scale), to the ages of

children. It has helped me understand Mom's cognitive losses. (The rest

of the book is worth reading, too.)

It's important to recognize that few people, if any, are entirely within

one level, or even stage. You will see characteristics of the stages on

either side of the one you believe your LO is at. I would say take every

scale with a grain of salt and make your own best judgement.

At the LBDA forum, there has been a lot of discussion about stages and

their value. I like to approximate a stage and know the others because it

helps me be ready for what may or may not come. Others think it is an

exercise in frustration. But if you're like me and like to be prepared,

even over-prepared, check out the LBDA forum but also just search the web.

And even if something doesn't claim to address LBD, if it addresses

dementia, you've got something to work with.

Good luck and best wishes.

Kathy

On Tue, Dec 13, 2011 at 7:47 PM, mariesmac62 < mariesmac@... > wrote:

> **

>

>

> Can anyone tell me the stages of what to expect? My wife was diag in 2004

> with Parkinsons and then in 2008 with LBD. are there any signs of the

> stages?

>

> Thank You

>

>

>

--

Kate Knapp, OIT

University of Minnesota

" We ask ourselves, 'Who am I to be brilliant, gorgeous, talented and

fabulous?' Actually, who are you not to be? Playing small does not serve

the world. "

- Mandela

[Guest guest]

This was very accurate for my father. He had cancer as well, so it sped

up the process, as well as added some signs, but all in all I found

this to be true.

http://knittingdoc.wordpress.com/2009/02/17/mark’s-comments-on-the-phases-of-l\

ewy-body-dementia/

Re: Stages of Lewy Body Dementia

 

There are a lot of different scales that can be used. My suggestion

would

be to Google LBD stages and see what you get. My first exposure was to

what is called the " scale " which has been around for quite some

time. It has six levels, with 6 as fully cognitive and 1 as the extreme

at the lower end. There are others, though. The members of the LBDA

forum

put together another scale, with 1 as full cognition and 7 as the low

end.

And there are others.

The best book I read for helping understand different stages was

Caregivers: Drowning in a Sea of Cognitive Challenges [Paperback]

Delaune

Pollard & lt;

http://www.amazon.com/s/ref=ntt_athr_dp_sr_1?_encoding=UTF8 & amp;sort=relevancera\

nk & search-alias=books & ie=UTF8 & field-author=Delaune%20Pollard

& gt;(Author,

Illustrator),

& lt;

http://www.amazon.com/s/ref=ntt_athr_dp_sr_2?_encoding=UTF8 & amp;sort=relevancera\

nk & search-alias=books & ie=UTF8 & field-author=%20

& gt;(Editor)

There is a section in the middle of the book that equates different

stages,

and levels in those stages (based on the scale), to the ages of

children. It has helped me understand Mom's cognitive losses. (The rest

of the book is worth reading, too.)

It's important to recognize that few people, if any, are entirely

within

one level, or even stage. You will see characteristics of the stages on

either side of the one you believe your LO is at. I would say take

every

scale with a grain of salt and make your own best judgement.

At the LBDA forum, there has been a lot of discussion about stages and

their value. I like to approximate a stage and know the others because

it

helps me be ready for what may or may not come. Others think it is an

exercise in frustration. But if you're like me and like to be prepared,

even over-prepared, check out the LBDA forum but also just search the

web.

And even if something doesn't claim to address LBD, if it addresses

dementia, you've got something to work with.

Good luck and best wishes.

Kathy

On Tue, Dec 13, 2011 at 7:47 PM, mariesmac62 & lt; mariesmac@...

& gt; wrote:

& gt; **

& gt;

& gt;

& gt; Can anyone tell me the stages of what to expect? My wife was diag

in 2004

& gt; with Parkinsons and then in 2008 with LBD. are there any signs of

the

& gt; stages?

& gt;

& gt; Thank You

& gt;

& gt;

& gt;

--

Kate Knapp, OIT

University of Minnesota

" We ask ourselves, 'Who am I to be brilliant, gorgeous, talented and

fabulous?' Actually, who are you not to be? Playing small does not

serve

the world. "

- Mandela

[Guest guest]

Thanks. When we got Mom's diagnosis, I asked what scale the doctor was

using. (a level two on one scale could be quite different from a 2 on

another scale). He said they used an adapted form of the scale,

which is a cognitive scale - not necessarily a dementia or any specific

dementia scale. The original scale was developed decades ago and was

based on a study of the cognitive growth of children. It just works well,

in reverse, for dementia.

Kathy

> **

>

>

>

>

> Kathy and ,

>

> That scale they have is based on Alzheimers. One has not been designed

> based on LBD other than the one our other group of spouses put together.

>

> Hugs,

>

> Donna R

>

> : Wednesday, December 14, 2011 9:58:14 AM

> Subject: Re: Stages of Lewy Body Dementia

>

>

>

> There are a lot of different scales that can be used. My suggestion would

> be to Google LBD stages and see what you get. My first exposure was to

> what is called the " scale " which has been around for quite some

> time. It has six levels, with 6 as fully cognitive and 1 as the extreme

> at the lower end. There are others, though. The members of the LBDA forum

> put together another scale, with 1 as full cognition and 7 as the low end.

> And there are others.

>

> The best book I read for helping understand different stages was

> Caregivers: Drowning in a Sea of Cognitive Challenges [Paperback] Delaune

> Pollard<

>

http://www.amazon.com/s/ref=ntt_athr_dp_sr_1?_encoding=UTF8 & sort=relevancerank & s\

earch-alias=books & ie=UTF8 & field-author=Delaune%20Pollard>(Author,

> Illustrator),

> <

>

http://www.amazon.com/s/ref=ntt_athr_dp_sr_2?_encoding=UTF8 & sort=relevancerank & s\

earch-alias=books & ie=UTF8 & field-author=%20>(Editor)

>

> There is a section in the middle of the book that equates different

> stages,

> and levels in those stages (based on the scale), to the ages of

> children. It has helped me understand Mom's cognitive losses. (The rest

> of the book is worth reading, too.)

>

> It's important to recognize that few people, if any, are entirely within

> one level, or even stage. You will see characteristics of the stages on

> either side of the one you believe your LO is at. I would say take every

> scale with a grain of salt and make your own best judgement.

>

> At the LBDA forum, there has been a lot of discussion about stages and

> their value. I like to approximate a stage and know the others because it

> helps me be ready for what may or may not come. Others think it is an

> exercise in frustration. But if you're like me and like to be prepared,

> even over-prepared, check out the LBDA forum but also just search the web.

> And even if something doesn't claim to address LBD, if it addresses

> dementia, you've got something to work with.

>

> Good luck and best wishes.

>

> Kathy

>

> On Tue, Dec 13, 2011 at 7:47 PM, mariesmac62 < mariesmac@... >

> wrote:

>

> > **

> >

> >

> > Can anyone tell me the stages of what to expect? My wife was diag in

> 2004

> > with Parkinsons and then in 2008 with LBD. are there any signs of the

> > stages?

> >

> > Thank You

> >

> >

> >

>

> --

> Kate Knapp, OIT

> University of Minnesota

>

>

> " We ask ourselves, 'Who am I to be brilliant, gorgeous, talented and

> fabulous?' Actually, who are you not to be? Playing small does not serve

> the world. "

> - Mandela

>

>