Guest guest Posted November 10, 2011 Report Share Posted November 10, 2011 Thank you Judy and everyone. Yesterday I was feeling very weary and achy and didn't even go for my 40 min. walk with my dog - which is highly unusual. I decided I would rest and take a break from seeing Dad, because when I do see him - I am fine there, but completely collapse afterwards. So I went on a short errand, before laying down and my cell-phone went off - it was the Nurse asking if I could come right away - she said, don't speed - but come as soon as possible to be with your Mom and Dad. So I started shaking all over and drove the 45 minutes there and nurses told me to sit down in kitchen - they just wanted to talk and for my and my sister to be a support to my Mom. I said " Did it happen yet ? " and nurse said NO - but it would be " days " and the process has started and what to expect. So then I saw that the wonderful CNA was holding Dad's hands and he wasn't shaking that much as usual. She had pillows between his legs and on top of his legs - the pressure eases the tremors. and he usually hold the bars of the bed and shakes them noisily, but he wasn't do that either. He seemed out of it - but sometimes had eye contact and tried to talk. He asked for me, and I held both his hands and talked to him for 4 hours straight. It was very nice. If I felt like crying - I did not do it in front of him. I just smiled alot and sometimes he smiled. He whispered " I don't feel good " Which he NEVER said those words in his whole life - so that was sad. He had refused food, but he wanted soup and ice cream - from me - so that made me feel good. So the LBD PD MSA journey will be in the past at some point soon. I don't know how long this has been going on - but the PD for about 7 years and the LBD - we were told just a couple of years ago. Hew is 87. Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2011 Report Share Posted November 10, 2011 ! OMG, I am so with you as you move through this journey ! I am thinking about you, your dad and your mom!! You have been and remain strong and steady ! Hang in there - I know these have been some dark days and nights ! But dawn is coming- It's touching that dad is moving even closer to you at this time ! He really loves you and trusts you!! You are wonderful daughter !! Sending you prayers from NYC !! And virtual hugs !! Xoxox Judy Judy R. Strauss LMSW PhD Lead Faculty University of Phoenix Jersey City Campus 100 Town Square Place |Jersey City, NJ 07310 Cell- Email- Jrstr@... > Thank you Judy and everyone. > > Yesterday I was feeling very weary and achy and didn't even go for my 40 min. walk with my dog - which is highly unusual. I decided I would rest and take a break from seeing Dad, because when I do see him - I am fine there, but completely collapse afterwards. > > So I went on a short errand, before laying down and my cell-phone went off - it was the Nurse asking if I could come right away - she said, don't speed - but come as soon as possible to be with your Mom and Dad. > > So I started shaking all over and drove the 45 minutes there and nurses told me to sit down in kitchen - they just wanted to talk and for my and my sister to be a support to my Mom. I said " Did it happen yet ? " and nurse said NO - but it would be " days " and the process has started and what to expect. > > So then I saw that the wonderful CNA was holding Dad's hands and he wasn't shaking that much as usual. She had pillows between his legs and on top of his legs - the pressure eases the tremors. and he usually hold the bars of the bed and shakes them noisily, but he wasn't do that either. He seemed out of it - but sometimes had eye contact and tried to talk. He asked for me, and I held both his hands and talked to him for 4 hours straight. It was very nice. > > If I felt like crying - I did not do it in front of him. I just smiled alot and sometimes he smiled. He whispered " I don't feel good " Which he NEVER said those words in his whole life - so that was sad. > > He had refused food, but he wanted soup and ice cream - from me - so that made me feel good. > > So the LBD PD MSA journey will be in the past at some point soon. > > I don't know how long this has been going on - but the PD for about 7 years and the LBD - we were told just a couple of years ago. Hew is 87. > > Love, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2011 Report Share Posted November 10, 2011 May God watch over you, , as you move through this difficult time in your life. Sending you strength and hugs from NY, Helene > > Thank you Judy and everyone. > > > Yesterday I was feeling very weary and achy and didn't even go for my 40 min. walk with my dog - which is highly unusual. I decided I would rest and take a break from seeing Dad, because when I do see him - I am fine there, but completely collapse afterwards. > > > So I went on a short errand, before laying down and my cell-phone went off - it was the Nurse asking if I could come right away - she said, don't speed - but come as soon as possible to be with your Mom and Dad. > > > So I started shaking all over and drove the 45 minutes there and nurses told me to sit down in kitchen - they just wanted to talk and for my and my sister to be a support to my Mom. I said " Did it happen yet ? " and nurse said NO - but it would be " days " and the process has started and what to expect. > > > So then I saw that the wonderful CNA was holding Dad's hands and he wasn't shaking that much as usual. She had pillows between his legs and on top of his legs - the pressure eases the tremors. and he usually hold the bars of the bed and shakes them noisily, but he wasn't do that either. He seemed out of it - but sometimes had eye contact and tried to talk. He asked for me, and I held both his hands and talked to him for 4 hours straight. It was very nice. > > > If I felt like crying - I did not do it in front of him. I just smiled alot and sometimes he smiled. He whispered " I don't feel good " Which he NEVER said those words in his whole life - so that was sad. > > > He had refused food, but he wanted soup and ice cream - from me - so that made me feel good. > > > So the LBD PD MSA journey will be in the past at some point soon. > > > I don't know how long this has been going on - but the PD for about 7 years and the LBD - we were told just a couple of years ago. Hew is 87. > > > Love, > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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